Feeling pretty good 👍 for having been sliced and diced! 😱😷 It's ironic: compared to all my #CrohnsDisease #surgeries this was *much* less complicated, yet the impact will/should be (🙏) exponentially greater.
See, #SuperiorMesentericArterySyndrome tries to (mechanically) starve you to death 😵; so my body's been under severe nutritional and functional duress for the last 18 months. Unfortunately, #complicated and made worse by my #Crohns and #ShortGutSyndrome issues, many of the #SMA treatments actually made things worse (those 30lbs I gained were NOT without significant tradeoff). I spent the last year or so fading further and further from existence... There's constant pain and nausea (despite the G tube to vent my stomach, the SMA obstruction often blocks it), and (often violent) vomiting. I sleep 😴 10-12 hours a night and still nap bc my body works so hard to digest (18 hours on the feeding tube plus what I manage by mouth). Other times, bc of the position of the stomach and vagus nerve, my body reacts to simple stress with a full-out meltdown: my hb and bp shoot up, I get shaky, and sweat *pours* out of my head, face and neck until I cool down, 😌 at which point I literally shudder uncontrollably until my body temp evens itself out. These episodes last up to 30 mins and are beyond exhausting 😥.... Between pain, meds, and the metabolic stress my body is under, my brain exists in a permanent fog 😵. I struggle to think, for neurons to connect. Factoids I've known for years (including my own!) disappear and I can't remember shit... I've withdrawn from people and friends bc I literally don't have energy to expend on them (sorry!)... For months I've been physically, mentally, emotionally unable to perform the necessities of daily living-- (normal daily essentials like a shower, making/eating food, chores, etc)-- nevermind the fun, enjoyable, extras that make life worth living.
So here's hoping I can be a part of Life again... 🙏👍🎉🌈🌸🐾🎆😘💞 #SMASWarrior #ChronicPain #ChronicNausea #ChronicExhaustion #vagus #BrainFog #NYPresbyterianWeillCornell #DigestiveDiseases #FabrizioMichelassi #DDJ #DuodenoJejunostomy