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#chronicallyfabulous

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#stitchsproutsphotochallenge “Decorated” Keeping it low key. #chronicallyfabulous

Scenes from DC (last week): how many Cap PD does it take to arrest one me? (📸 Meryl Neiman)

Cuddling with Felix. Watching Gray’s anatomy #chronicillness #chronicpain #chronicallyfabulous #fibromyalgia

Olive looks really sad, but it is only because I was eating some chocolate and she wanted some (but obviously can't have any).. Her lies should not be given in to.

🌈USE CODE FRILLABILITY20 4 20% OFF YOUR 1ST SUBSCRIPTION.🌈
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💖Hello sparkly friends! I’m thrilled to bring you this video collab with @lovepipsticks ! I’ve been a subscriber at the Premium level for around five months now, and it’s been the sunshine I need to brighten up my month. For about $10-15 a month, you can have the cutest, most original stickers come to your door! ✨
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💖This bubbly gift set they sent me I’ve had my eye on for a while, and I LOVE IT!!! The tote is by a company called Sun Jellies, and the stickers are puffy, adorable, and from Japan! I highly suggest it. You get 10 sheets of high quality stickers + a tote!✨
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💖If you like videos like this, let me know! Give it a like, comment, and don’t forget to follow! Tell me what you’d like to see next!✨
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💖Music: Ligthning Bugs by Audionautix is licensed under a Creative Commons Attribution license (https://creativecommons.org/licenses/by/4.0/)
Artist: http://audionautix.com/✨
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#frillability #makegoodwithyourability #pipsticks #lovepipsticks #stickers #plannercommunity #planneraddict #plannerstickers #disability #chronicillness #chronicallyfabulous #disabledandcute #qpoc #nonbinary #theythem #enby

Why don’t all cafés have swings? Is the question we really should be asking. Thank you to @mycoffeestoryy for letting us film a little chat about self care for yesterday’s vlogmas ☕️✨💕 Click the link in the bio or go here to watch: https://youtu.be/hDGmGiEL7us
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Make sure you leave your self care tips in the comments! You never know who sharing them will help ♥️
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#JessicaOutOfTheCloset #thisisbrighton #mycoffeestory #selfcare #loveyourself #disabodyposi #pinupdoll #pinupgirl #vintagestyle #deaf #ootdsocialclub #chronicallyfabulous #invisibleillness #spoonie #vintagedoll #fblogger #realoutfitgram
#classyandfashionable #brightonblogger #vintageglamdolls #oldhollywoodglam #inspiration #lookafteryourself #sharethelove #feelinginspired

This fascinator from the lovely Holly Young at @hymillinery is just fabulous! I’m going to be making a Vintage Christmas Gifts Guide at some point this week where you’ll see more of this beauty. I wear my headbands and hair bows often since they’re so easy to store in our bedroom but I worry about looking after my fascinators and store them so carefully then don’t get to wear them! Very silly I know and something I shall soon be changing 🎀 What do you think about fascinators and hats?
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#monolidmakeup #maksweater #vintagemakeup #brokenbutbeautiful #1950s #vintagefascinator #vintageclothing #redhead #pinup #vintage #pinupdoll #pinuplove #rockabillygirl #pinupgirl #pinuphair #vintagestyle #deaf #ootdsocialclub #chronicallyfabulous #spoonie #invisibledisability #1940
#vintagelover #alltheprettythings
#classyandfashionable #fascinator #vintageglamdolls #oldhollywoodglamour

Throwback to that time I took my crohnies to 🇨🇳#neverleavethehousewithoutmyfannypackon #tbt #chronicallyfabulous #IBDdidntstopme

MOST RECENT

Us chronic illness fighters don’t have to work hard to differentiate ourselves from others, what we do have to work hard to do is be content in our differentness. Never in my life have I been called weird/bizarre, strange, unusual, rare.. ect. As much as I have in the last three years. It’s hard to blend in when you have wires and tubes, Mobility aids and masks on you when you go out. Some days you just wish you could go to the grocery for 10 minutes without a stare or a “what happened?” . So on the days your ready to face the stares; wear your cutest tube pad, decorate that wheel chair and wear your favorite outfit with a coordinating mask. While your out being #chronicallyfabulous pick up an extra pint of ice cream for the days you just want to stay in because it’s okay to have those days too. Sending all of you love. Ps my stem cell trip was postponed because I’m currently in the hospital fighting sepsis again, I’m recovering well though and hope to get those stemmies soon enough ❤️ #chronicnausea #cancerkid #surgery #shopsmall #cysticfibrosis #gastroparesis #gastroparesissucks #dysautonomia #lupus #lupuswarrior #cf #chemo #chemotherapy #stemcell #stemcelltransplant #medicalmask #surgicalmask #chronicallyill #chronicillness #chronicpain #mals #dysautonomia #spoonie #tubie #tubefed

ROOFTOP ROOMIES...Christmas movie date with my awesome housemate... rhyming.
I’ve spent a LOT of time in bed over the past couple of weeks, so managing to get out of the house & onto the rooftop of an old theatre, smack bang in the middle of Hollywood, was a nice change.
So was the rum they put in our hot cocoas.
And if you don’t agree that Die Hard is the best holiday movie ever made, we will fight you.
Yippiekiyay...
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🔫🎅🏻☕️❄️
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#ChronicPain #Dysautonomia #ChronicallyIll #Spoonie #ChronicIllness #Spoonies #SpoonieLife #POTS #SpoonieStrong #InvisibleIllness #EhlersDanlosSyndrome #EDS #Disabled #InvisibleDisability #EhlersDanlos #CFS #ChronicFatigue #InvisibleIllnessFighter #RareDisease #RareIllness #RareDiseases #InvisibleDisease #ChronicallyFabulous #ChronicallyAwesome
#Festive #Hollywood #ChristmasMovies #DieHard #UglySweater

Getting my nightly meds together is starting to feel like rocket science 🚀 i swear I’m doing more math now that I’m on medical leave from school... Ft. the “weekly” pill case that can’t even hold entire day🤦‍♀️ and i haven’t even picked up my two new prescriptions (beta blockers and anti histamines), not to mention my injections and pain patches. So thankful though that these medications exist!
#spinabifida #tetheredcord #ehlersdanlossyndrome #pseudoseizures #mastcellactivationdisorder #POTS #HPOTS #dysautonomia #clonus #invisableillness #chronicallyill #chronicallyfabulous #spoonie #spoonielife #medications #drugs #rocketscience #pills #strong #fight #photooftheday #betablockers #sick #chronicillness

I started bleeding again today. Its awful and it sucks and I’m over it. I’m having awful back pain and cramping and I have so much pressure it feels like I have to go to the bathroom. I took my medicine and have a heating pad on my back and it hurts to move. I literally move an inch and I’m almost in tears. I’m really hoping something starts to work real soon 😩. #autoimmunedisease #crohns #crohnsdisease #crohnsfighter #crohnsandcolitis #colitis #chronicillness #chronicpain #chronicallyill #chronicallyfabulous #ibs #ibd #invisibleillness #spoonie #spoonielife #spoonieproblems #spooniestrong

(belated) scenes from DC: #wps in handcuffs outside our esteemed Senator @johnboozman‘s office/considering contacts 🤓 (📸 @laurelburgio - thank you for the new pics of an old action! Hard to believe I’m already on my 5th arrest when this 2nd one seems like it was yesterday)

💠Been in the hospital all day💠 But I got prescribed a new anti histamine which i hope keeps me from going into anaphylaxis until i see the mast cell activation syndrome expert in February... ⏳

#anaphalaxis #allergies #hospital #waiting #mastcellactivationdisorder #chronicallyill #vogmask #immunesystem #histamine #drugs #newmeds #strong #fight #hospital #sotired #photoofday #invisibleillnessawareness #invisableillness #spoonie #spoonielife #chronicallyfabulous #sick

We definitely enjoyed our Siame Thai from @skipthedishes last week! I mean who can go wrong with Massaman Curry! 😍 #ontheblog I have our experience as well as a coupon for $7 off your order at the top of the blog (major deal!!) *link in profile

#stitchsproutsphotochallenge “Something blue” Blue is my favorite color! Here are some of the blues that kept me company this year. #myyearofcreating #knittersofinstagram #quiltersofinstagram #crossstitchersofinstagram #chronicallyfabulous #fibrowarrior #cfssucks #couchlife

Soooo had no idea till tonight that CBD is legal in the UK, I've done quite a bit of research into this and it's possibility of helping me. I'm pretty hopeful it will and I've made sure to go for an organic, non GMO, and outside tested brand. Has anyone used CBD to help them, if so has it?
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#restlesslegsyndrome #tired #invisibleillness #pain #spasms #fibromyalgia #fightlkeagirl #chronicillness #chronicpain #chronicfatiguesyndrome #chronicallyfabulous #chronicfatigue #myalgicencephalomyelitis #musclespasm #cbd #cbdvape

I have a new clutch from @rockmyvintage and I love it! Did you see it in my Vintage Gifts Guide video? What was your favourite thing? Claudia pointed out that I pretty much made a video to tell her what to get me for Christmas and... um... yep 😉 Cheeky? Maybe 😏 But hopefully it gave you a few gift ideas too!
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#vintagelife #vlogmas #vintagehair #redhead #oldhollywoodglam #pinup #vintage #lace #pinupdoll #vintageglamdoll #femmetribe #pinupgirl #pinuphair #vintagestyle #theinvisiblefemme #classichollywood #instadaily #vintageupdo #monolidmakeup #ootdsocialclub #chronicallyfabulous #spoonie #vintagedoll #fblogger #disabledandcute

I just like to smile--smiling's my favorite.😁 #fabulousfriday #workselfie #grateful #chronicallyfabulous #spoonie

Meet Sheryl @achronicvoice she lives in Singapore, a sunny island in Southeast Asia. Sheryl has antiphospholipid syndrome, Lupus, Sjögren's, epilepsy, a heart rhythm disorder and a gore-tex band for a heart valve. Apart from that, she enjoys writing and travelling when she is able to do so. ⠀
Show Sheryl some love by checking out her social media on Pinterest, Instagram, and Facebook at @achronicvoice
#feature #disabled #chonicallyill

Got this 14 day heart monitor off thank goodness... but my ehlers danlos / mast cell activation syndrome skin is very cranky, swipe to see [warning kinda gory]. Has anyone had similar experiences? My skin is still flaring like mad🤷🏼‍♀️ Ft. the weird ER bandaging of my stitches
#chronicallyill #heartmonitor #zio #ekg #hospital #cardiology #cardiologist #clinic #burn #rash #sensitive #mastcellactivation #ehlersdanlossyndrome #help #advice #chronicallyfabulous #disabledandcute #disabled #heartcondition #heart #POTS #hpots #dysautonomia #autonomicdysfunction #strong #fight #skin #breakout #red #spoonie

I completed my crimbo shopping this afternoon in my PJs .... in town 🤫 But I was too tired and hurty to get dressed. And my hair, man. Oh my goodness - it’s a matted wreck 😱

The caption on this picture was entirely different 4 hours ago when I originally posted this. I wasn't feeling motivated to be transparent, or sensitive, or real, or vulnerable, or anything other than lazily vain because I liked this picture and it's the first selfie I've taken in almost a month where I haven't felt like I looked like an actual zombie or undead creature. It's hard to feel attractive when you're sick. It's hard to feel like your body is a place where you can feel any kind of confidence when you're sick and slowly dying and nothing works right and everything feels a little bit terrible. But then you think about #bopo and #bodyconfidence and #effyourbeautystandards and remember that confidence is for all bodies, not just able bodies. I'm allowed to be sick and feel shitty and also think I'm kind of hot sometimes. Granted the latter is more difficult due to the former, but, I am still kind of hot sometimes. And this is a really great lipstick. (#DBAstrong and #chronicallyfabulous)

Decided to make a lil account for my medical journey... It’s quite exhausting constantly updating people separately (although i appreciate the concern very much), and perhaps I’ll meet some people with similar experiences.
My diagnosed conditions as of now are: Tethered spinal cord (it’s been surgically released... but unfortunately it became tethered again), spina bifida, ehlers danlos syndrome, mast cell activation syndrome, Gilbert’s disease, gilbert's diseases, TMJ, cranial instability, hypertension stage 2, pseudoseizures, Clonus, chronic lung infection, GERD/heart burn, Hyperadrenergic Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, IBS- testing for IBD, functional gastritis- testing for gastroparisis, CFS/ME, low-lying conus mesullaris at L5, Chronic Migraines/fainting, Chronic pain, Orthostatic Intolerance, Doral elements missing at L5, Partial laminectomy at L4, Fibroadenoma tumor, impaired vision, Hematologic/Lymphatic easy brusing, chronic dislocations/sublocations of joints, Hyper-mobility of joints, Weakened immune system due to neurosurgery,Extreme light sensitivity, Loss of feeling in legs/feet,Atrophic scars/poor healing ability, Hyper elastic skin, RLS, Dysautonomia, Chronic insomnia, Autonomic dysfunction multiple types, Chronic vasovagal syncope, And raynaud’s syndrome.
#POTS #ehlersdanlos #spinabifida #tetheredspinalcord #chronicallyill #disabled #dysautonomia #mastcellactivationdisorder #ibs #crohnsdisease #sick #chronicallyfabulous #hospital #photooftheday #vogmask #hypermobility #radiology #ultrasound #invisbleillness #spoonie #spoonielife

Olive looks really sad, but it is only because I was eating some chocolate and she wanted some (but obviously can't have any).. Her lies should not be given in to.

This is a GREAT GIFT IDEA!!! ☃️🎁❤️..... 'EXTRA STRENGTH:
Herbal Infused Pain Relief Lotion'

Every single one of these lotions are handcrafted with a base blend of cannabis infused organic coconut oil and a variety of beneficial essential oils. All of the ingredients included are 100% natural.
This new 'Extra Strength: Herbal Infused Pain Relief Lotion' is made with a higher level of activated THC and all of the essential oils included have been increased.

This lotion has a refreshing aroma that all will enjoy, it's non-greasy, fast acting, and deep penetrating. Herbal infused Pain Relief cream works wonders when it is massaged into the skin. This lotion helps give relief to the pain and swelling of joints and muscles. It is a soothing formula for back, neck, hips, knees, legs, arms, wrists, hands... anywhere that hurts!
I strongly suggest Herbal Infused Pain Relief Cream to anyone who suffers from pain, arthritis, fibromyalgia, muscle stiffness, muscle soreness, dry skin, and so much more! .... 💚🙏🍁✌️💜#weed #weedstagram #weedporn #chronicpain #pain #painrelief #sick #disease #sore #illness #invisibleillness #chronicillness #marijuana #thc #cbd #musclepain #stiffness #fibromyalgia #arthritis #medicine #ganja #cannabis #cannabisculture #organic #natural #reallyworks #chronicallyfabulous #weedlotion #ganjagirls #weedlotion #eds ..... MESSAGE me for more details 💓🙋🏻💚

"Welcome Christmas, fahoo ramus,
Welcome Christmas, dahoo damus,
Christmas Day will always be,
Just so long as we have we,
Fahoo fores, dahoo dores,
Welcome Christmas bring your light..."
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Getting into the holiday spirit over here! This is from our mini Christmas tree. 🎄 I would leave it up all year round if I could!!! It seems crazy that the holidays are only a little more than a week away. Trying to soak in all the little moments. The reasons to smile. Sending love and holiday light to everyone today. 💗💛💚💛💗 #welcomechristmas
#spooniexmas2017 #inspiredatheart

THEY’RE HERE! The first issue of #PatientsHavePower arrived and we are beginning to send them out TODAY. Want your very own copy? All you need to do is make a donation of any size to one of our amazing patient advocacy partner orgs. Link in bio, tag a friend, etc etc etc. HAPPY HOLIDAYS!
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#CCAwarenessWeek #PatientsHavePower #PatientEngagement #BreakthroughCrew #research #treatments #cures #IBD #arthritis #autoimmune #clinicaltrials #spoonie #chronicillness #chronicallyfabulous #PatientAdvocate #PatientAdvocacy #Healthcare #DigitalHealth #Autoimmune #Cancer #ChronicIllness #Spoonie #IBD #Crohns #Colitis #Diabetes #chroniclife

Infusion day! Bright and early 8am! It is the one appt that I will make that early because it takes four hours to run. I brought my next big project with me to work on and got so much done with it so I’m super thrilled! One thing I like about Remicade over Simponi is that it doesn’t usually make me sick after wards, though it still makes me super tired and does make me really sore all over for about a week. We’ll see if that happens this time around.

“She read books as one would breathe air, to fill up and live.” –Annie Dillard (The Living)

#selfiesinseattle #selfie #potsie #posturalorthostatictachycardiasyndrome #POTs #eds #edszebra #spoonie #chronicallyfabulous

I’m in such a savagely bad mood. Today has been a really shit EDS day. I had Physio this morning, my wrist is now in a splint to immobilise it and try and reduce pain. My Physio said the dreaded words “referral” and “MRI scan.” I would have cried but all my tears have gone. We then discovered that three ribs were out of place. And then she attempted to sort my back out, which had completely seized up. So. Much. Pain. I went home, with instructions to rest and not use my back. Which is almost impossible. I ignored that advice (don’t judge) so I’m now suffering.
To top my day off nicely, as I was picking up a towel, something snapped in my finger. That “something” probably being the tendon. Hello mallet finger, it’s been a few years. Looks like I’ll be going to minor injuries tomorrow morning. I hate everything.
#ehlersdanlossyndrome #ehlersdanlos #fibromyalgia #reactivearthritis #spoonie #spoonielife #spooniesquad #spooniesunite #spooniediaries #pain #chronicpain #chronicillness #chronicallyfabulous #lifeafterdiagnosis #laurasspooniediaries #hospital #hospitallife #hospitalappointment #badnews #defeated #linkinbio #blog #blogpost #blogger #bloggerlife #lblogger #lbloggers #spoonieblogger #spoonieblog

I think yesterday was the most useful appointment with a rheumatologist I've had in years.
Shout out to Dr Taylor, not that I really wanted this new diagnosis, but for finally answering my questions about all the pain I've been having for the past few years that my old Rheumatologist just passed off as my RA.
Hopefully now we will be able to work together my my other doctors to come up with some sort of game plan from here.
#spooniestrong #fibromyalgia #rheumatoidarthritis #cfs #chronicpain #chronicallyfabulous #spoonie #fibrowarrior #rawarrior

I’m proud of Mitch every day, but today I am THE MOST proud! 🎓 I know he’d probably rather me not, but I’m going to brag a bit anyway 💁🏼‍♀️ #fbf to the beginning of the longest 19 months we could’ve imagined.....He has been enrolled full time while working full time (with overtime & overnights almost every week), meaning he’s been going full speed 7 days a week with rarely ever a day off for almost two years 😵 I know people say, “Ah, you’re young, you can burn the candle at both ends!” But trust me, it’s been hard. He gets tired, he feels overwhelmed, but he has never complained or given up. If anything, he was the one reassuring me that we could make it through 😌 We got to celebrate & watch him walk for graduation in June knowing he still had a rough few months of classes ahead...but today he finishes his LAST DAY at Jtech & receives his auto tech toolbox! 🎉🙌🏻 I am so lucky to be married to one of the most hardworking and selfless people I know. And did I mention he can fix cars & now has a degree to prove it? 😄🚗🔧 Congrats, my love! You made it!!! 💕🎉

Thank you for the vlogmas love everyone, I’m so pleased you’ve been enjoying them! This was my outfit on the day I met @meganfromwegan (and yes, I’ve been following Wegan since 2009ish. And yes, I fangirled hard 😅) Click the link in the bio or go here to see it in action: https://youtu.be/YULmBIzuaBE
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Please share your Christmas outfits with me too using the #JOOTCXmas hashtag- planning to do something special for my favourites...
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Details of this #adventoutfit: skirt- @1950sglam, shirt- @hellbunnyofficial shoes- @phaseeight .
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#JOOTCVlogmas #vlogmas #vlogmas2017 #christmasootd #1950sglam #pinupdoll #hellbunny #rockabilly #pinupgirl #ootdsocialclub #chronicallyfabulous #phaseeight #1940 #vintagedoll #vintageootd
#vintagelover #alltheprettythings
#flashesofdelight
#vintageglamdolls #oldhollywoodglam #liveintentionally #embracetheday

Today I decorated my Grandparents’ Christmas cake! We do one for them every year but this year I did it 😁. I’m so please with how it turned out, especially the painted tree on top (took me hours 😂). Cake decorating really sets off the chronic nerve pain in my arm and shoulder so I rarely do it, but hopefully when I get my spinal cord stimulator I can do even more! #christmas #cakedecorating #christmascake #grandparents #chronicpain #chronicpainwarrior #chronicallyfabulous #spinalcordstimulator #feelingproud

Cuddling with Felix. Watching Gray’s anatomy #chronicillness #chronicpain #chronicallyfabulous #fibromyalgia

Day 2 of 12 Days of Spoons: Inspirational Quote .
“I may be chronically ill, but I am also chronically fabulous!” .
So this quote is what started my entire blog, my team name for Take Steps for Crohn’s and Colitis, and this Instagram! I know many of you have probably thought “she spelled chronically wrong...” But it was intentional as a play off of my Crohn’s disease... get it? CROHNically Fabulous? 😝 .
Anyways, I used to let Crohn’s run my life, but I saw this quote one day and remember thinking to myself..”you know what?! I AM Fabulous!” And so it began. I wanted to help others going through similar situations. Since I felt so incredibly alone for so long suffering with my disease, I wanted to help others not feel so alone! .
Have a fantastic day all you FABULOUS chronic illness warriors! 💜💜😊

Ahhhhhrrrrrgggg first period in like 6 months really and it's baaaad. At least I know why I've been having actual emotions the past few days.
But fuck it isn't half making my fatigue worse, slurring and fogginess is worse today to, not sure if that's related or just one of those days. I think the slurring and fogginess is the worst symptom for me, almost everything else I can hide behind a smile but when I'm like this I can't and I can see the worry in my kids faces.......shit got more real there than expected sorry 😂.
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#resting #period #sharkweek #invisibleillness #pain #damnthesecramps #spoonlife #spoonie #fatigue #fibromyalgia #fightlikeagirl #lifeofaspoonie #chronicillness #chronicpain #chronicallyill #chronicallyfabulous #chronicfatiguesyndrome #memyselfandme #mecfs #cfsme #myalgicencephalomyelitis #periodpain #nouterusnoopinion

Illness🌻is🌻not🌻the🌻most🌻interesting🌻thing🌻about🌻you! It seems with each passing day, the spoonie lG qcommunity attempts to outdo itself. Who has the most accessories? Whose tube clogged the most? Listing 37 diagnoses. Being a 'tubie' isn't enough, now you need to be a super tubie. Looking at some Insta accounts, I could tell you exactly how many dx a person has, the name of their GJ tube, how many times they went to the ER this month, and their daily vitals. What I couldn't tell you is if they believe in something bigger. I could not tell you the topics which make them grin and ramble before saying 'sorry, I'm just a bit obsessed', nor what goals they are actively working towards, their dreams, their fears outside of illness. No one needs a daily update, or a daily vlog of ten plus minutes updating on the daily occurrences of ones disease. My bf doesn't need such information, nor my parents, not even my doctors. Especially not my doctors. They would laugh me out of the room and tell me I've been smoking crack. It's okay to talk about your illness, the latest events in your health, your fears for your next procedure. But when you post daily, or even multiple daily updates on your illness, you are not sharing a part of your life; you are making it your life. When we become unwell, it's so fkn easy to lose your sense of identity. But for the love of Golden Retrievers, don't fall down the rabbit trap of BECOMING your disease. It is simply not that interesting. It serves no purpose, other than to one up other people, to become obsessed to the point of psychological illness with your own illness , and to make it the most important thing about yourself. I absolutely promise you, there is no disease so interesting in the world that it warrants daily/multiple daily IG updates and daily vlogs. The next time you go to take a selfie with your port 'just so happen to be poking out' your top, or yet another update and photo on your vitals/tube/symptoms, take a moment to think about sharing something else about yourself. Maybe you secretly paint, write, or photograph flowers. Take a chance, and explore a deeper part of yourself. Life is too short to be your Disease 🌻

Wanted to share my friend Siobhan’s rockin’ Red Bubble store! Totally eyeing those “Salty” and “Not Your Inspiration” shirts. #Repost @siobhansimper
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Thanks to a post by @makelemonadewithlupus I opened a RedBubble store to emphasise both my love for salt (#pots) and my bitter disdain for societal conceptions of disability. All designs are available on a variety of tees, hoodies and spiral bound notebooks in a wide range of colours.
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This is just something fun I've wanted to do for a long time as I can't find a good "Salty" tee anywhere. But if you're a salty, bitter bitch like me and want some uninspirational gear to say it feel free to check out The Salty Spoonie on RedBubble (redbubble.com/people/thesaltyspoonie/shop).
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#mecfs #me #cfs #cfsme #spoonie #spoonielife #chronicillness #chronicallyfabulous #dysautonomia #butyoudontlooksick #spoonfighter #sensoryprocessingdisorder #spd #disability #criplife #crip #cripplepunk #cpunk #invisibleillness #ruraldisability #anxiety #MEaction #millionsmissing #thisiscfs #salty

⏰Count down to my 🎉BIRTHDAY🎉 which is in ‘nine’ days now! When I think of birthdays I’m always so excited because that’s another year! That’s another year I made it! That’s another year I kicked diabetes💉 or PAH🔬 in the balls and surpassed their expiration date on me! I’ll be twenty-five this year. I still feel like I’m that fourteen year old girl lost in wonderland but I’m soon to be twenty-five. When I was first diagnosed in the middle of 2013? of my twentieth year of being alive they said I might not make it to my twenty-first birthday. Then they said that as well on my twenty-second and the pattern continues. As I get older I know my chances of surviving decline in percentages but, I’m here. I made it! Five birthdays later and you invisible, chronic-terminal illness can kiss my ass! I’m making it to twenty-five and so many more! I want to get to know my other survivors! Let me hear your stories! Either DM me or comment them. We need to congratulate each other today, because, this little thing to others is a big accomplishment to me and others like me. 🎁🎉🎁🎉🎁🎉
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#disabledandcute #disability #chronicillness #chronicpain #disabled #invisibleillness #wheelchair #butyoudontlooksick #disabilityawareness #disabilitypride #wheelchairlife #christmas #disabledmodel #chronicallyill #anxiety #chronicallyfabulous #chronicfatigue #ptsd #disabledandproud #chronicallyawesome #depression #fashion #mentalhealthwarrior #chronicpainwarrior #love #babeswithmobilityaids #autoimmunedisease #zebrawarrior #sicknotweak #chronicbullshit ✨✨✨ If you would like to send me a 🎁📬💌 BIRTHDAY CARD 💌📬🎁 let me know! I’ll give you my P.O. Box Address!!! ✨✨✨

You can read my full blog post about how stress has contributed to my chronic health problems over the past year at mwjhart.com/lightbulb

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