So, some things have been happening that have turned this into a busy week. Saturday morning I slipped on the ice and hit my head. We went to the ER, head CT was clear but wow, my back still hurts.
Monday I had a chest CT, the nodules that we're spotted when I was diagnosed have stayed the same, no growth. Tuesday I had a lot of blood tests and cultures then, saw Dr Westin. The main tumor and smaller tumors all show growth. Not much, but it's still growth. I have thrombuses (thrombi? No one seems to know the plural) in my portal veins, they're stable. Recently, we had to increase the blood thinner dose as the thrombus in the right portal vein had grown. I know it's serious, that was part of why I was nervous about skipping the enoxaparin for the port removal. Dr Westin felt that the port should come out since there was bacteria growing in it last time I had a blood infection, it came out this morning. We also went over all the info for the chemo trial I'm on. It's approved for colon cancer and has shown promise with cholangio. I started yesterday, a little nausea and backache but not bad, so far. I'll only have to go in once a month for labs and to pick up my pills. I'm hoping to be able to stay on this for awhile and have less Clinic/hospital time.
Today's port removal went well. I feel like I got punched in the shoulder but I'm guessing that will pass soon. Thank you so much for all the encouragement. I don't usually get nervous before scans or procedures but it hit me today. Thank you for being there with me.💚💚💚 #cholangiocarcinoma #thisiswhatchemolookslike #mayoclinic