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#childhoodcancerawareness

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Loving my new @loveyourmelon beanie which is coming in handy up here in snowy Utah. I encourage you to check out their website that has quality products and 50% of their profit goes to cancer research & support. To date, they have given over 2.6 million dollars and over 110,000 hats to children battling cancer. Show them some ❤️. #loveyourmelon #childhoodcancerawareness #spreadtheword

Thirteen years after Pam did a fundraiser for our family ( Laura died less than six weeks later) Lily donates her hair to Locks of Love and Pam is now cutting Lilys hair #childhoodcancerawareness #locksoflove

"The reports are in....Landon is still cancer free!!!!!!!!! I know it had only been 3 months since his last scans but Neuroblastoma has such a high relapse rate, especially in the first 6 months of being declared NED (no evidence of disease). Thank you everyone for all your prayers. I know we will all sleep a little better tonight."
#GiveADamn #StepUp #Help #ChildhoodCancerAwareness #ChildhoodCancer #Fight #PediatricCancer #Cure #4PercentNotEnough #GOGOLD #Awareness #Gold #BeAware #Fight #BeBold #NoOneFightsAlone #ItsNotRare #CancerIsNotAChildhood #MoreThanFour #Neuroblastoma #Remission #CancerFree
FB: Loving Landon

A great cause with great friends and great fun! Attended a great benefit last night at The Winey Wench of Oviedo Paint Night to benefit Dawson's Circle of Hope! All proceeds will benefit childhood cancer research! #dawsonscircleofhope #www.dawsonscircleofhope.com #dawsonscicleofhope@gmail.com #childhoodcancer #childhoodcancerawareness #childhoodcancerresearch #findacure #thewineywenchoviedo #benefitpaintandsip #greatfriends #greatfun #wine #winetasting

"Luke’s 6 month post treatment scans are in and they are CLEAR!!!!!! He is still CANCER FREE!! ❤️ We are overjoyed and so so thankful and excited that he is still cancer free and doing so good!! His liver did show super elevated iron levels still so he will continue to have a flabotomy done once a month to draw off 75ml of blood and replace it with fluids to help his body get that extra iron out and dilute what’s left in him. He also has scarring on his left kidney and scar tissue from his tumor resection but all his other organs look beautiful! His oncologist did give us some fantastic news as well: she cleared him for port removal surgery!!!!! His post-op surgery appointment is March 1st and his port removal surgery is scheduled for March 27th!!! We are all so so excited for his port to be removed and just overjoyed as a family at how healthy our sweet boy is! These pics are from his visit today and with his wonderful oncologist Dr. Granger! She has saved Luke’s life more than once with her knowledge, medicine and chemo choices and through the treatment plan she set for Luke way back on April 22, 2016. We love her and she and all our nurses are forever a part of our lives! Thank you Lord for continuing to keep our sweet boy cancer free!! ❤️"
#GiveADamn #StepUp #Help #ChildhoodCancerAwareness #ChildhoodCancer #Fight #PediatricCancer #Cure #4PercentNotEnough #GOGOLD #Awareness #Gold #BeAware #Fight #BeBold #NoOneFightsAlone #ItsNotRare #CancerIsNotAChildhood #MoreThanFour #Neuroblastoma #Remission #CancerFree
FB: Prayer warriors for Luke Nelson

Please keep Matthew in your thoughts and hearts.
"Update: Hello Mighty Matthew Supporter's! Long time since I wrote an update. As you all know, I personally was hospitalized for most of last month but I am happy to report that I am home and improving ever day. My kids and family were my motivation and Matthew my inspiration.
A lot has happened this past month. First let me start by saying that Matthew is stable, happy and home. Today, on this day of love, is his 3 month mark since his Transplant. Matthew's labs last month began to drop after having been on an upward trend, which can be concerning and suspicious. This concern was not as bad as his day +60 marrow biopsy ........ which showed 4% blasts (cancer cells). This is a low %, but having any is scary. We consulted with his BMT Onc team and together agreed to an alternative plan. Because it is 1% below "relapse", they could not definitively say he has relapsed and this quick after transplant, honestly don't want to since he would have no options prior to at least 6 to 12 months post transplant. The alternative plan is that the DLI (additional donor cells) that Matthew was to receive due to no GVHD, was cancelled and instead they will hold on to the preserved cells and pull more if / when needed to delay any progression when at a higher % and extend time wanted / needed. In mean time, they are testing his Chrimerism and Gene every two weeks with weekly labs to keep a close eye on him.
The important part is that we are all together and home. Matthew is still on BMT restrictions so he is still limited on going out and eating certain foods but he has adjusted great and counts down the days to when he can do and or eat certain things. We thank you all for your continued thoughts, prayers and support!"
#GiveADamn #StepUp #Help #ChildhoodCancerAwareness #ChildhoodCancer #Fight #PediatricCancer #Cure #4PercentNotEnough #GOGOLD #Awareness #Gold #BeAware #Fight #BeBold #NoOneFightsAlone #ItsNotRare #CancerIsNotAChildhood #MoreThanFour #ALL #Leukemia #AcuteLymphoblasticLeukemia #Relapse #BMT #BoneMarrowTransplant
FB: Morales Family

Tobias loves going down the slide! He’s gone off the rest of the park .. just obsessed with the slide! He went to a Peppa Pig music class today where he loved the bubbles and footballs. The class teacher was very impressed with how well he did for his age .. he doesn’t speak much but he is understanding more and more. I am a proud Mummy 💙
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#mychildismyhero #childhoodcancerawareness #proudmummy #fightlikeakid #gastrostomy #feedingtherapy #yoghurt #weaning #tubewean #thomasthetankengine #teamtobias #toby #ilovemyson

Please keep Prestun in your thoughts and hearts. "Prestun continues to have headaches. So this makes three in a week. This is very unusual . I'm concerned and worried and quite frankly stress isn't even the right word to describe my emotions at the moment. Yesterday I took him to the doctor to have him checked out. They did discover his right ear has an infection. Though Prestun isn't complaining of ear pain. They are hoping this is the cause of his headaches. Prestun currently on my lap resting and trying to sleep off another headache he is having. We are a week and a half away from NYC and can't come fast enough. He will be getting an MRI of his brain and spine. All of this is hard sometimes more often I feel alone and people have to be mean and questions what you are doing all the time. I promise you. There shouldn't be any questions. As a mother, I am doing everything I can do to keep my son alive with noncureable cancer. I honestly think I have done a good job. Five years and counting he is still here and it's because of your guys help. Thank you, guys. Never stop believing and always hold your children close to you.

#prestunthesuperhero —————————————————————
To help Prestun with ongoing medical expenses and travel for treatment

https://www.paypal.me/prestun

https://www.gofundme.com/prestunsuperhero2"
#GiveADamn #StepUp #Help #ChildhoodCancerAwareness #ChildhoodCancer #Fight #PediatricCancer #Cure #4PercentNotEnough #GOGOLD #Awareness #Gold #BeAware #Fight #BeBold #NoOneFightsAlone #ItsNotRare #CancerIsNotAChildhood #MoreThanFour #Neuroblastoma #Relapse #Remission #MRI #Scans
FB: Prestun Seibel journey kickin' neuroblastoma butt.

We recently received this sweet family’s thank you note and it broke our hearts. Since Heroes for Children is the primary funeral assistance resource in Texas, and in some regions the only funeral assistance resource, we mourn a lot of losses with our families. No family should have to bury their child, much less worry about the cost of the funeral. Thanks to all of the Heroes for Children, like you, HFC provides $1500 funeral assistance grants so families like this precious one, are able to celebrate the life of their Hero. Thank you for supporting these families in their fight against childhood cancer, so no matter the outcome they are never alone 💛
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#itsneverover #cancersucks #littleandbrave #childhoodunplugged #childhoodcancerwarriors #pediatriccancersucks #weneedacure #cancerfighter #notalone #findacure #childhoodcancerawareness #childhoodcancer #kidsgetcancertoo #bethelight #kidswithcancer #childhoodcancersucks #childrenwithcancer #stopchildhoodcancer #pediatriccancerresearch #childhoodcancerresearch #heroesforchildren #heartofahero #bebrave #givenow #nonprofit #donatenow #texaskids #texas
#dontmesswithtexas #deepintheheartoftexas

So proud of Tobias making a good start at licking his spoon now that he is feeling less sick 💙💪🏼 .
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#mychildismyhero #childhoodcancerawareness #proudmummy #fightlikeakid #gastrostomy #feedingtherapy #yoghurt #weaning #tubewean #thomasthetankengine #teamtobias #toby #ilovemyson

It is always incredible to see supporters from all over wearing and showing off their Friends of Jaclyn ALEX AND ANI elephant bangle! This bangle is changing lives. We cannot thank you enough for affecting the moment and helping us improve the quality of life for some truly heroic kiddos! 🐘Where has your elephant been?! 🐘

You can get your very own FOJ elephant bangle here: http://bit.ly/2vN952W

Meet Leukemia fighter Sophia! 💛 She is our hero. You have an army behind you! 🎗

Please read
ENGLISH-ESPAÑOL
🐇🎗I will be making Easter packages for 50 local warriors, i want to deliver them during a week and spend time with them. With the awesome help of @fighting_together_la and @jennpuricelli ,33 easter baskets have been sponsored, but im still looking for 17 people from all over the world that would like to sponsor a little warrior. I need $15 per kid to make the basket. If you would like to help a cancer warrior to receive a moment of hope this easter by Sponsoring a package, please message me or comment below! Thank you all so much.
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Estaré haciendo 50 paquetes de pascua para pequeños guerreros y los pienso entregar durante una semana para pasar tiempo con ellos. Gracias a la asombrosa ayuda de @fighting_together_la y @jennpuricelli , 33 paquetes han sido patrocinados, pero aún estoy necesitando 17 personas que quieran patrocinar el paquete de un niño, el costo es de $15 (dólares). Si alguien desea hacer parte de esta iniciativa y regalarle a un pequeño un momento de esperanza durante estas pascuas, pueden mandarme un mensaje directo. Infinitas gracias a todos.
#cancer #childhoodcancer #childhoodcancerawareness #kidsgetcancertoo #momentsofhope #momentosdeesperanza #morethan4 #keepfighting #staystrong #pray #prayers #littlewarrior #warriorprincess #gogold #cancerinfantil #fightlikeakid #donate #sponsor #fightlikeagirl

We are so honored to share that our With Purpose Awareness Fair was published in the San Jose Mercury news as well as the Spartan Daily. Thank you for sharing our message and helping raise awareness! 🎗#SJSUWithPurpose #WithPurpose #IAmHappy

Back to familiar routine of clinic visits. Mix of tears and smiles and long days! Because Aiden had his cvl line removed shortly after treatment every week he need to get poked for blood draw which is a process of 2 nurses and yelling profanities. Then onto scale where I hold my breath - down 2 kgs a punch in gut. I ask about steroids to increase appetite but side effect out weigh the pros. We play board game with another girl waiting, unable to finish before name is called to meet with doctor. Review of the week and exam. Aiden said he saw spots on Thursday and his body has felt weird this last week so that has been concerning. He has started in canabis oil so doctors are trying to determine if symptoms of oil or tumour. 2 doctors and hour later it’s decided no immediate risk based on Aiden joking around and strong when physically tested. Visit from Almonte mom with donuts to share was my highlight as Aiden ate half chocolate HFT donut - first food I have seen him eat since back on #chemotherapy. I was told to watch over next week if symptoms worsen. Met with social worker and case worker. Referrals for more support put in. Blood results back with drop in hemoglobin and platelets again told to watch symptoms. Prescription sent for next week of chemo then a break for 7 days and round 2 complete. Mri confirmed for March and next Friday appointment same time same place. Collection of #couragebeads - 3 hours later back in car on way home to #Almonte - what did you do today? #childhoodcancerawareness #chemotherapy #dayinlife #cheo #getajob @cheohospital @leanne_candlelighters

Visiting some grant-ies and cousins up in MI this weekend with her Grandma and Pah. I miss her already 💛 #DIPGWarrior #dipgawareness #teamaddiemae #UnicornStrong #FightLikeAHooligan #FightLikeAKid #DIPG #braincancer #kidsgetcancertoo #childhoodcancerawareness

23) 13.65 miles. 1:55:23. Six names. 310 total. Cold and sloppy conditions. Here’s to #ryan, #jake, #sage, #duck, #tess and #jean
#childhoodcancerawareness
#humanetchasketch
#runforarmstrong
#stillstreaking
#questto400names

Repost from @livelikebella - VIRTUAL PARTICIPANT ANNOUNCEMENT!! If you registered for our Live Like Bella® Superhero 5k as a virtual runner/walker, your race packets will be arriving to you via mail.
If you won't be in town but want to join us in the fight against childhood cancer you still have time to register as a virtual participant by visiting the link in our bio ❤️🎗
#LiveLikeBella #LoveLikeRayna #ChildhoodCancerAwareness #LifeisaGift #5k #SuperHero5k #TextBELLAto243725

This is true! I need a tan! I used to ‘fake bake’ but after my son was diagnosed with cancer, I pretty much swore it off. Does anyone have a favorite sunless tanning product they would recommend? ☀️👙🌞🕶 .
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#beauty #productjunkie #beautycommunity #beautyblogger #sunlesstan #childhoodcancerawareness 🎗#cancersucks

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