[PR] Gain and Get More Likes and Followers on Instagram.

#cfwarrior

18767 posts

TOP POSTS

Had my second tattoo done today, and I’m so happy with it💫🌹 #CFwarrior

Feelin’ so fresh & so clean!! The wound from my surgery on my hip is starting to heal up nicely and I got to take a fresh shower this afternoon!!
.
Today I will have been in the hospital 24 out of the last 26 days. While I was originally expecting to only be in the hospital for 24 hours after my sinus surgery you have to always expect the unexpected when it comes to transplant life. The final decided discharge date is going to be Tuesday...just in time for Thanksgiving!! I will have finished a full course of two antibiotics & will only be going home on one IV antifungal that I will be on for at least 8 weeks. This will make my home regimen much easier.
.
This year I have so much to be thankful for. My loving family who has supported me along this entire transplant journey, my friends who are always by my side, modern medicine & the advancements of new drugs, my doctors and the rest of the medical staff who cares for me at the hospital, my donor Samantha. The list of things I am thankful for could go on forever! Most of all I am just thankful to be alive & to be able to take a deep breath every day! There are always things in life to be thankful for! If you’re going through a rough time, take a moment to think of all of the positive things you have going for you at the moment. Don’t focus on the negatives or the tough things, focus on the good. No matter what, there are always things to smile about! You will find something to smile about!
.
What are you thankful for this holiday season? What has made you smile in recent days?
.
.
.
#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

Got my bronchoscopy done this morning! Things look good inside👌🏽, they did a lavage which is a "wash" and then they took biopsies to check for rejection. I could feel them when they took the biopsies even though I'm sedated. Strange feeling. Won't get results from those till Thursday and then it can be a few weeks for anything else to pop up from what they collected from the lavage. Been sleeping/ recovering from the sedation for the rest of the day. 😴🌙✌🏼
.
.
#lungstoryshort #cysticfibrosis #cfawareness #65roses #cfwarrior #posttransplant #doublelungtransplant #bronchoscopy

I'd like to take this oppertunity to look back on the memories of those who put up such a brave fight but unfortunately we're taken far too soon.

On this day 3 years ago beautiful young lady lost her fight with Cystic Fibrosis, Jade Cullen a family girl, her pets best friend and a massive Disney lover flew her kite up to the highest height and broke free from the incurable disease that filled her days with endless pain and gasps for breath.

I would love if everyone could honour and cherish the memories of the beautiful young lady and give all the love they can to the her family especially Jades little sister Chloe @indeeditschloe who held Jade tight through her final breath.

#CysticFibrosis #CysticFibrosisWarrior #CF #CFWarrior #Spoonie #SpoonieWarrior #Strong #LungDisease #Illness #Lung #LungIllness #ChronicIllness #Disease #Remember #Memories #GoneButNeverForgotten

• This weekend marked our 16-month anniversary... And we spent it MOVING IN!!! 😍 ⠀

The house is more wonderful than we could have ever imagined, not only aesthetically, but because it’s been months since we’ve had a settled living situation. For the first time since July, we can let out a sigh of relief that we are safe. That this is it. That we are home ❤️⠀

Mom, thank you for the unthinkably beautiful gift of letting us add a bathroom and move into this place so we can get our lives back on track and live stress-free(er) for a while. ⠀

James, Jacob and Isaac, y’all have truly been Godsends. Your friendships full of wisdom and encouragement came exactly when we needed them and you did a phenomenal job at turning this mess into a message. Thank you.⠀

And just look at Biscuit. Have you ever seen a happier pup than our little ant in his new back yard?! He’ll be marking territory for decades!⠀

Our cups runneth over.⠀

#homesweethome #teamdeboforlife

Thoughts and prayers would be much appreciated as we head in for another visit at Duke tomorrow morning! I'm not entirely sure what to expect from tomorrow's appointment but always hoping for something positive 💕#cfwarrior #cysticfibrosis

"No matter how much it hurts, how dark it gets or no matter how far you fall. You are never out of the fight ". #cfwarrior #progress 📷: @ngorshack_9

They just took her back. She's older and wiser but it hasn't gotten easier for either of us to say goodbye. Thank you for all the prayers and love💜 They are so appreciated.
#cfwarrior #cfsucks #weneedacure #curecysticfibrosis #kadynskrew

Quel che il sole è per i fiori, i sorrisi sono per l'umanità. #cfwarrior

MOST RECENT

Be brave hug from the little one ❤😢 IV's await #cf #cfwarrior #cysticfibrosis #needlenightmare #masterbuilderbobby

My girl cooked me such an awesome meal tonight. With a touch of Brazilian style. I was walking in the rain and got home to this dinner being ready. You rule baby!
#dinner #homecookedmeal #mygirlrules #nanaimo #nanaimobc #vancouverisland #cfwarrior #cysticfibrosis #cysticfibrosislife #hungry #hungryaf #deliciousmeal #wifematerial #lovemygirl

Drive Miss Desi to a cure during the holidays.
We have a few friends asking about activities they could involve their children in during the holidays that would benefit the Cystic Fibrosis Foundation. I have one main email of a few ideas I plan to send out.
I am happy to add any other #DrivingMissDesi Chauffeurs' that have interest in it too! Just DM me. 💜








#cysticfibrosis #cureCF #65roses #2yearsold #justbreathe #CFwarrior #CFirl #CFtoddler #cffighter #cfawareness #needaCure #cfingeorgia #cfinatlanta

My anxiety always increases the week leading up to my three month check-up. It's nerve racking wondering how my lung function scores will be even though I do take good care of myself.
One of the ways I like to help alleviate my anxiety is by going on long runs to see how well I do. I feel if I can run a far distance at a good pace without stopping to walk then my lung function has to be pretty good.
Today I went for 8 miles in the cold snowy weather. The run felt good and I'm feeling pretty confident about tomorrow (knock on wood)! Tonight I will say a prayer that everything goes smoothly tomorrow and my scores are still at baseline or higher!

Ready for tomorrow! Let's do this💪

#cysticfibrosis #cysticfibrosiswarrior #cf #cfwarrior #postivethinking #running #healthylifestyle

• This weekend marked our 16-month anniversary... And we spent it MOVING IN!!! 😍 ⠀

The house is more wonderful than we could have ever imagined, not only aesthetically, but because it’s been months since we’ve had a settled living situation. For the first time since July, we can let out a sigh of relief that we are safe. That this is it. That we are home ❤️⠀

Mom, thank you for the unthinkably beautiful gift of letting us add a bathroom and move into this place so we can get our lives back on track and live stress-free(er) for a while. ⠀

James, Jacob and Isaac, y’all have truly been Godsends. Your friendships full of wisdom and encouragement came exactly when we needed them and you did a phenomenal job at turning this mess into a message. Thank you.⠀

And just look at Biscuit. Have you ever seen a happier pup than our little ant in his new back yard?! He’ll be marking territory for decades!⠀

Our cups runneth over.⠀

#homesweethome #teamdeboforlife

"There's something I've learned from being a doctor for so long. It's that everyone has a hero inside of them." -Doc McStuffins
.
.
.
CF Clinic for my Tiny Girl tomorrow. Clinic anxiety is through the roof as I know she hasn't gained any weight, even on the appetite stimulant, and is still culturing Pseudo and MRSA and her GI doc was less than pleased with her lack of weight gain at her Friday appointment. She's also been fighting a viral cold but luckily it's not in her chest. Fingers crossed low weight is the only major obstacle we have to deal with tomorrow. .
.
.
#purpleforpaxton #cfwarrior #supertubie #ibdfighter #ibd #ulcerativecolitis #spoonie #cysticfibrosisawareness #cysticfibrosis #65roses #cfirl #weneedacure #saltygirl #fucf

“What type of physio are you doing?” Valid question. Here I use a Flutter device, Therapep and ABC (active breathing cycles). Prior to that I delivered several medications, two by nebulizer (salbutamol and a mucolitic). I then went for a ride, as the mucoltic has a lag time. All the while I am diligent about staying hydrated. After physio I used a maintenance medication by nebulizer as well as other oral meds. I will repeat this later in the day as well as other medications and therapies. I continue to open the window to my life. No complaints - gratitude only. I try my best. @conniptionkit #cfcanada #cflife #cfwarrior #cfawareness #neverquit #itispossible #gratitude #motivation #mindful #mytruth #aworldwithoutcf #physiotherapy #breathe #tryingtobreathe #thewayicfit #resilience #iamlucky #perspective #present #simplejoys #dontgiveacare #anymore #homegym #kindness #believe photos by Kate Kostandoff 🙏

@theshopforward sells products to pay it forward. A portion or all of the proceeds from every single one of their products is donated to charity. One of my favorite items they sell is the customizable #4ThingsTote. The proceeds from this tote benefit an orphanage in Haiti that @radioamy works closely with. You can put any 4 things on the tote. The four things I chose are related to cystic fibrosis & my lung transplant.
.
New Lungs : Because I got new lungs!!
06/21/2016 : The date of my lung transplant.
65 Roses : A nickname given to cystic fibrosis. If you say “65 roses” and then “cystic fibrosis” out loud you will notice they sound very similar.
@PricelessBreaths : The name of my blog and because every breath really is priceless.
.
Check out theshopforward.com...they have some really cool stuff, all for a good cause! And maybe by liking this post/commenting we can convince them to spend a period of time donating the proceeds from an item to the @cf_foundation. 😉🙃 It would mean the world to a lot of people & because we need funding to have CF stand for Cure Found one day!!



#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

We are only 18 days away! Come join me and help us fight for MORE life for Vivi and all those with #cysticfibrosis
Dec 8, 9, 10th at the Red Berry Barn. #cf #cfwarrior #cfmama #fundraiser #holidaybazaar #shoplocal #sherwoodoregon
if you’re coming copy and SHARE on your feed!

Most of you know that my youngest daughter Vivian was born with #cysticfibrosis
Well last year we started Vivi’s Vintage Market as a way to fundraise for CF research and to raise awareness for the disease. We are so excited that our 3rd market is coming up December 8th, 9th and 10th at the @redberrybarn
If you need to do some holiday shopping and want to shop amazing local goods, come see us at the market! You will find one of kind items and be supporting a great cause! Follow us at @vivianleefoundation for more details and we hope to see you there!
Please feel free to COPY and SHARE this image 😊
#vivisvintage #cf #weneedacure #cfwarrior #cfmama #fundraiser #shoplocal #holidaymarket

Most Popular Instagram Hashtags