#cfs

MOST RECENT

Интересный #лофт #cfs

Using my fitbit to try to help me pace. I've got a current step goal of 5000 (not sure if that's too high?), it used to be 11,000 a day and makes me sad things have changed so much. But rolling with the changes and monitoring how I feel. I'm wiped out today with a banging headache, and feeling very nauseous. Unsure if I overdid it mentally or physically over the weekend so today its just Slimming World this morning, online shopping and a little bit of work this afternoon. I don't know that I have the energy to sit at SW, but I know if I don't, I will struggle to eat well and that's very important to my recovery and state of mind, so its a double edged sword situation. Will have to see how I go! .
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#cfsrecovery #cfsme #cfs #chronicfatiguesyndrome #myalgicencephalomyelitis #undiagnosed #fitbit #slimmingworld #eatwell #fatugued #exhausted #doubleedgedsword #catch22 #staytogroup #invisibleillness #butyoudontlooksick #meaction #millionsmissing #millionsmissinguk #paceyourself #pacing #headache

So tomorrow is going to be fun.
My GP said she could do an outpatient referral, but that she’d prefer I be seen ASAP.
I promised I’d go soon. I couldn’t face the thought of going this afternoon. I was already exhausted from getting to my GP.
Optic nerve photos, peripheral vision tests, blood tests, and CT or MRI scans, come at me!
Very grateful to have a family member coming with me because I’m pretty damn anxious about it all.
Hopefully I get a solid diagnosis this time!
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#papilledema #pseudopapilledema #IIH #idiopathicintracranialhypertension
#chronicillness #chronicillnesslife #chronicillnesswarrior #spoonielife #spoonie #spoonieproblems #cfs #chronicfatiguesyndrome #myalgicencephalomyelitis #dysautonomia #dysautonomialife #posturalorthostatictachycardiasyndrome #pots #lowbp #lowbloodpressure
#fml #scared #anxious #eek

Quark and fruit for breakfast! I need to draw that invisible line 🐷 ••••••••••••••••••••••••••••••••••
#slimmingworld #caloriecounting #myfitnesspal #fibromyalgia #fibrowarrior #cfs #gettingfit #slimmingworldfriends #healthyeating #swmafia #slimmingworldmotivation #weightloss #SWmafiaUK #fooddaily #healthyliving #weightlossmotivation #slimmingworldsupport #slimmersofinstagram #losingweight

So after a couple of hours of seeing family yesterday today my body feels broken...legs are burning, knees just want to go the wrong way, shoulder keeps doing it's own thing and falling forward, back is aching and even after 11 hours sleep I'm ready for bed 😂 but it was so worth it! I don't see my grandparents too often as they live a couple of hours away and I can't drive that far. It was also a perfect way to spend father's day as I'm not in contact with my dad (believe me I've tried 😂 but hey his loss 😂) now for a day in bed recovering 😴😴 #payback #notfair #family #love #chronicillness #thisgirlcan #positive #me #cfs #mecfs #cfsme #myalgicencephalomyelitis #pwme #pain tired #chronicpain #chronicfatigue #chronicillnesswarrior #staystrong #bed #sleep #sleepy #unfair #fixme #thisisme #pyjamaday

Adrenal Friendly Cardio Stairs Challenge // 👟
A quick weekly cardio kick! I was asked again recently how to improve cardio with an autoimmune condition.
This my friends I could speak all day about, having personally manage an autoimmune condition & a love of running. In short it’s all about boundaries & balance + a few more little technical bits and pieces, but mostly the 2 B’s!! So here is a super simple & effective 14 minute cardio challenge to avoid fatigue & burn out if completed once weekly.
Set your timer for 14 minutes.
Put 85% into the ups & use the downs as an active recovery.
Everyone’s 85% will be different. Some a sprint & others a fast walk. As will your active recovery. Some may find a jog does the trick, while others a slow walk is perfect to pull that HR down again (the HR must come down however). Repeat this for the full set time.
With autoimmune the biggest thing to remember is your 85% can be VERY different from one week to the next. Listen to your body & be ok that one week it may be a sprint and the next just a fast walk.
The same thing applies for those perfectly functioning systems. Stress, sleep, our cycle can all play a big part in weekly energy changes. So feel what your 85% is rather than comparing it to previous times.
X

A bowl of sunshine on this grey day! Orange smoothie bowl made with lots of veg and topped with my homemade cacao orange granola. Gorgeous fresh tangy flavour. Bit of a repetitive background for my last few smoothie bowl posts - which will make sense when my blog is published - fingers crossed this should be by the end of the month 🤞 🤞#smoothiebowl #smoothie #greensmoothie #granola #breakfast #breakfastandme #breakfasttime #glutenfree #dairyfree #vegan #fodmap #refinedsugarfree #healthyfood #healthyeating #healthybreakfast #instapic #instafood #food #foodie #foodpic #foodblog #foodphotography #foodstagram #cfs #chronicfatigue #mecfs #chronicfatiguesyndrome #mecfsrecovery #newbeginnings

Inspire yourself each day.
I battle my days with chronic pain & extreme fatigue. I may not be out running and doing classes and I may not be preparing meals and attending a group.
But my journey is my journey. 11kg down with November 2017 and I'm proud of that. After my diagnosis in 2015 I ballooned almost 40kg, thanks to little exercise, little motivation to eat properly and medication side effects. Here I am now. Fighting against my debilitating illness to try and love the skin I'm in, some days I succeed and others I don't. But I'm trying.

#weightlossfriends #weightlossdiary #weightlossjourney #weightlosstransformation #inspirational #inspireyourself #selfmotivation #selfappreciation #chronicillness #fibromyalgia #pots #ist #m.e #cfs #pain #diet #dieting #slimmerme

What a cutie. She always knows when I am in extra pain and snuggles right up to me 💜
My neck and shoulder pain has actually got worse probably because I haven't rested it enough and did that roast dinner. I don't regret it but there were definitely signs I was doing too much. Shaky hands, heart palpitations, lightheadedness and my hands overheated and all my veins started raising to the surface 😕
Today I am doing the bare minimum and tiger balm has been liberally applied to my neck and shoulders to help ease some of the muscle pain 💪

#husky #huskiesofinstagram #cutie #snuggle #snugglebuddy #fibromyalgia #fibrowarrior #cfs #chronicpain #chronicillness #spoonie #spoonielife #extrapain #overexertion #tigerbalm #heartpalpitations #lightheaded

I'm a #spoonie!
This applies to any chronic illness and can help promote understanding of what it's like to live with severely limited energy.
Check out https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The original spoon theory, written by Christine Miserandino.
How many spoons have you already used today?
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#chronicillness #chronicillnesswarrior #spoonie #myalgicencephalomyelitis
#m.e. #pots #dysautonomia #Endometriosis #spoonielife #chronicillnesslife #cfs #spoontheory

Well health issues are tricky aren’t they? I’ve been having a great response to my healing journey and the hard work I’m putting into my recovery. However sometimes despite that the body has its own plan lol 😂. So since Thursday I’ve been resting and healing in response to high pain and fatigue levels in my body!!! I’m so thankful for wonderful loving family and friends in my life who have checked up on me, looked after me and made sure I’m not alone and had some lovely times ❤️
@some.ms.believer @lellap1 @hannahwilliamson23 @squibo17 @nbry @rachelellenandrews @jotaylor9543 thankyou so much, I love you all ❤️
#healingjourney #spoonielife #fibromyalgia #cfs #pots #fatigue #pain #musclespasms #restandrelaxation #selfcare #family #friends #blessings #gratitude #love ❤️

Sitting by the warmth of the fire, recovering from being away for the weekend as the sneaky fatigue starts to kicks in and remind me who’s in charge. I wouldn’t have been able to manage that on my own, thanks to great friends for looking after me #fatigue #tired😴 #cfs #mecfs #fireplace #winter #chronicfatiguesyndrome #chronicfatigue #resting #relaxing #selfcare #selflove #goodvibes #recovery

Tal vez empezar una nueva semana puede suponer una carga muy pesada para muchos
😓
Por eso en CFS Box te enseñamos a llevar cargas ¡muy pesadas!
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Saca el leon wue llevas dentro y ¡déjalo rugir!
🦁
#cfs #box #sevilla #strenght #conditioning #crossfit #wod #funcionalTraining #Fitness #leones #fun #instagood #photooftheday #beautiful #lifestyle #motivation #inspiration

Shake time x #weightloss #herbalife #order_now #cfs #feelingood #weighinwednesday x started at 12st6lbs watch this space for results x whose going to join me #21daychallenge #summerbody

🌳Woman of the Woods🌳 a sketch from Sunday arvo. It has been so long since I last posted! Due to health, I had to do a bit of reshuffling of my daily life and figure out my new limitations. One thing is certain, despite moving at a slower pace I am determined to continue creating ✌️
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#sketchcard #aceo #artisttradingcard #atc #illustration #copicart #copicmultiliner #staedtler #staedtlerpigmentliner #blackandwhiteart #blackandwhitedrawing #greyscale #fantasyart #sketch #drawing #pensketch #miniart #minidrawing #nzart #nzartist #cfs #chronicfatiguesyndrome

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