#cfs

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先日、ご縁をいただき……


よしもとの芸人さんで “オレンジ” というコンビで
活動されながら、ご自分の経験を活かした 福祉や
いじめ防止の活動をされている 田中哲也さんと
お会いしましたヾ(*´▽`*)ノ✨✨✨

🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣

田中さんのお話は、勉強になることばかり❗️

福祉を学び、福祉の現状を知るからこそ……
そこにお笑いや体操を取り入れていたり。

ご自身がいじめを受けた経験から……
いじめ防止のための講演をされていたり。

そして、芸人さんとして活動をなさってきた
経験談なども聞かせていただきました。


お互いの紹介をして、お話した後に……
一緒に昼食をとったら、話が盛り上がり……

いつの間にか夕方にっ 😳⁉️⁉️⁉️笑

楽しくて、面白くて、ものすごく勉強になった日でした🌟

🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣🐣

#ME #CFS #活動 #勉強 #笑顔 #昼食 #素敵 #感謝 #尊敬 #人生 #楽しい #ハンバーガー #患者 #線維筋痛症 #脳脊髄液減少症 #生活 #オレンジ田中さん #写真が好きな人と繋がりたい #岐阜県民 #smiles #comedian #localcelebrity #model #yoshimoto #gifu #gifucity #yanagase #nagoya #japan #japanese

OPEN FOR PETS! And by pets, I mean belly rubs and ear scratches from my my girl's dancing choir students! They've been working tirelessly preparing for their spring concert, I couldn't help but want to lend them a paw with publicity. In fact they have been so diligent that they are invited to sing overseas AGAIN--Europe this time! Read on to see how you can help them get there!
How pawesome is that? For the next three weeks, her students will be hosting an online store to fund their endeavors.
The shop features personalized gifts, home goods, and MY personal favfurite: SNACKS! Scroll through the photos above for ideas and instructions (and really cute photos of moi). Most importantly, a fair portion of every order goes directly to the Deltona High School Choral Program. My girl keeps saying the spring holidays are upon us. I don't know what that means but she sounds serious! Link is in the bio! -L (with a lil extra help)

SCHOOL CODE: 10941
#fluff #fundraiser #forthekids #servicedog #servicedogintraining #sdit #dogonduty #workingdog #respectthevest #goldenretriever #servicedogsofinstagram #medicalalertdog #psychiatricservicedog #invisibleillness #chronicfatiguesyndrome #cfs #mecfs #cfsme #mecfswarrior #myalgicencephalomyelitis #millionsmissing #lymedisease #spoonie #foodallergies

My little cup of happy! (Feeling like @trillium_studio with this today😊) It gets me out of bed every time! Today as I was sleeping I did not want to get up, if I could I would probably sleep until 12 everyday😭 As I was making my lemon water I thought to myself "Man when is my fatigue going to let up"? And then immediately I said back to myself, "It HAS let up!!" And then I remembered and recounted all the ways it's has gotten better and how much has dropped off. The mornings are just the hardest part for me to get going, however I used to wake up in the morning and be so so tired I was like angry I think I had close to adrenal burnout. I was saying yesterday on my fb post how I feel as though I've reversed 3 years of illness in one year. So today I had to nudge myself along with love, I know what it's like to suffer and deal with something that gets frustrating day after day - year after year, but what always helps me is counting the positives and I imagine how I will feel when I'm fully recovered😊
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#medicalmedium #rawvegan #chronicillness #chronicallyill #cfs #cfsme #chronicfatigue #spoonie #recovery #foodasmedicine #foodasmedicine #plantbased #plantpowered #plantstrong #wellnesswarrior #poweredbyplants #801010 #vegansofig #vegansofinstagram #heal #cleanse #detox #healing #autoimmune

#EndTheStigma9 I have gotten a lot of support since my journey began. However, I have also come across so many ignorant and hateful people (Dr.s, ex-friends, ex-coworkers, even some family). I've been cussed out, physically hurt, gossiped about, & even called a liar. People can't understand what they don't go through. Some try to, others don't want to. Why on earth would someone with a chronic illness want to fake this? For the tiny amount of Social Security? For excruciating pain? For the hundreds of thousands of dollars in medical bills? To not go to school and be with the people they love? When you think about it... who would want to live that way? This is why we need to #educate2advocate everyday. Show compassion. Educate yourself. Love others.❤

Last night was my last shift at sainsburys, I can't believe it 😮 but now I'll have time to heal and hopefully fully get rid of cfs ✨ "your body is the sacred vessel you've been given to experience life, so honour it, cherish it, nourish it" 🌻

With the 2017 Crossfit open in the books I couldn't think of a better way to start the next year of training. Pulled 500 lb, haven't tested a max in over 2 years. #Cfs #deadlift #gainz #gotmoreinthetank

Hey everyone! Today is the first day of my new #medicationseries which will be featured here daily on my Instagram account. 💊 For more information about this series, check out my 2nd to most recent most.
The first medication to be featured is Gabapentin. If you have tried this medication, please use the comment section below to share your experiences with it. ⬇️
*Remember that no 2 potsies are the same and although one may experience terrible side effects with one medication, that same medication might be a lifesaver for others*
My experience: I am currently on 100mg 3x a day for nerve pain. I have been informed that this is a tiny dose but I'm hypersensitive to medications (MCAD). This is the only medication I've tried in history that I didn't experience any side effects with. It completely took away my nerve pain (which many Potsies experience) and 30 other neurological symptoms. When I had mini seizures 2x a day as a side effect of trying 1 dose of Bisoprolol once, increased my Gabapentin by 100mg (from 200mg a day to 300mg) and it completely took away those seizures. I'm not exaggerating and I know how unlikely that sounds.
I had tried Amitriptyline and Lyrica for nerve pain with no relief and numerous side effects before a doctor prescribed Gabapentin.
This medication has taken away the most symptoms for me.
HOWEVER, I developed a thyroid tumor 2 years ago and gained 50lbs because of it. I have had extreme difficulties with weight loss despite eating healthily and working out. Recently a new geneticist of mine suggested that if I am having troubles losing weight, it's probably because of Gabapentin. He said Gabapentin is nicknamed "the fat drug" in the medical community. Although Gabapentin didn't cause weight gain for me, he's suggesting it might be preventing weight loss. This is just a theory at this point and should be taken with a grain of salt though! In the future I might try reducing my Gabapentin and see if I can go off completely and switch meds to see if that helps, but Gabapentin has been such a lifesaver for me so I'm afraid of going off of it.

We are all addicts. Alcohol, sex, insecurity, gossip, and my personal dish of the day: self hate. Pick a poison, get used to the chemical hit in our brains, then run that pattern
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Same hit and run pattern with women? Same comparing your ass to hers? Sabotage relationships? Why stop when it feels so damn bad?
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Neuropsychology shows, through mapping these reward pathways, that we are so intoxicated by the chemicals our brains release when we run a familiar pattern, that our body’s addiction to them has become more powerful than our conscious ability to choose something new
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Society, upbringing, relationships; all program us with false beliefs about who we are. By 35, 95% of our behaviours and thoughts are a set of learned beliefs and habits from our past, that we call our personality
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So if we think we are not worthy of love, that wound in our heart hurts. Instead of turning inwards and learning to love it (as who the fuck teaches us to do that?!) we learn to fill it with alcohol, self hate, the buzz of a new sexual connection etc, to fire up those reward pathways to get the hit we think we need
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Obviously it’s an external addiction pattern trying to fill an internal wound. So it fails, creating the same outcome, same emotion, reinforcing the false identity/belief that we are not worthy. And round we go again
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So who are you without that negative self belief? Who are you without your protective patterns that separate you from real connection and love?
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It turns out we will do almost ANYTHING for something we identify with. Even when it entirely fucks us up. We are silly humans
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This is why we end up staying more comfortable in fear and separation from others, rather than being in love and communicative states, aka positivity, vulnerability and self assurance
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And this is why I meditate. My hardwiring was quite frankly fucked. And it turns out my self beliefs were all wrong. I can love myself and feel complete without these addictions. Occasionally I run into someone still in the grip of their patterns and I feel them pull on mine. But I can choose to say no thank you. I am not going to feed your or my addiction here. We both deserve better for ourselves.

Bought myself a cheer up present on Monday evening after we dropped Ed off at the airport! 😍
Sorry for not being on here this past week or so, I was busy having an amazing time with Ed here on our farm in Ireland and wanted to enjoy it to the full. We had such varied weather with snow at the beginning of the week and clear blue skies and scorching sunshine for the last four days! And to my complete surprise my body cooperated with me and gave me a week of minimal symptoms, I had the most energy I've had in years and could manage to go for multiple dog walks on the moss with literally no payback! It was incredible! Almost like a miracle?! I'm not sure whether it's to do with the high dose vitamin d I'm now on thanks to finding out I'm severely deficient or what, but it was honestly such a surprise to wake up each morning and feel alive rather than half dead!
Sadly it was back to reality with a bump yesterday as I only slept about an hour on Monday night due to pain and I've felt truly awful yesterday and today with nausea, pain, fatigue and low bp. But it was nice while it lasted! And maybe it's a sign of better things to come after only seeing my health continue to decline for over a year now? Fingers crossed! 🤞🏻It made mine and Ed's week feel so special because my good days are so rare, to have 7 good days in a row is unheard of!! I'm definitely going to remember his trip over this time because of all the fun we had 😊

MOST RECENT

#theendophotochallenge
Day 29: Selfie
All I have to offer is a makeup free pj wearing bed head Selfie!
The past 8 days have been really tough, my endometriosis and fibromyalgia have pretty much had me bed ridden apart from a hospital and cinema trip last week!
I've never been so ill from my endo before, only 4 days this month I haven't bled, I've been sick so much and constantly nauseous, not been able to walk some days but it's starting to get a little better. The fatigue has properly kicked in now though from over a week of barely any sleep! 💤💤💤💤💤💤💤💤
💤💤💤💤💤💤💤💤💤💤💤 I got a lot of catching up to do ! 🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺🐱🐺
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#theendophotochallenge #endometriosisawarenessmonth #endometriosisawareness #endometriosis #endosisters #endowarrior #girlswithink #mandalatattoo #invisibleillness #interstitialcystitis #girlswithtattoos #420girls #butyoudontlooksick #fibromyalgia #myalgicencephalomyelitis #chronicfatiguesyndrome #cfs #anxiety #ptsd #autoimmunedisease #fightlikeagirl #chronic_illness420 #spoonie #recovery #spoonies #chronicillness #chronicpain

Sometimes something's gotta give and right now it's blogging. It's been a huge part of my identity for six years now and it is something i never thought I'd say but for now at least it's time to say goodbye. There's a post about it on the blog (oh the irony) if you'd like to read more.

Car rides with @helper_dog_harlow 😘. I can't believe we have been training together for our entire puppy lives😭❤.
My girl and I treasure spending time with Har and her girl, @chronically_jaquie! Our girls' illnesses kept them inside resting for most of their time together today. Never fear, they're resting up TOGETHER today in preparation to kick chronic illness booty for the remainder of the week! -L👖🐾
#servicedog #servicedogintraining #sdit #dogonduty #workingdog #respectthevest #goldenretriever #servicedogsofinstagram #medicalalertdog #psychiatricservicedog #invisibleillness #chronicfatiguesyndrome #cfs #mecfs #cfsme #mecfswarrior #myalgicencephalomyelitis #millionsmissing #lymedisease #spoonie #foodallergies

Goodness gracious, I look so beautiful!! #tryingtobepositive
#roughnight #lifeofcfids #lifeofcfs #cfs

The birthday girl @lisamarienicholls1980 completing her birthday calories on the assault bike after cardio hell! And blowing her candles out in style!! Happy Birthday Nicholls!! 💪💪💪
#CFS #crazyfilthybirthdaysnatch #birthdaysnatch #birthdaycalories ##birthdaygirl #blowoutthosecandles #airdyne #assaultbike #wolverson #cardio #birthdayworkout

Describe my day in 1 sheet 😪. This says it all. Little sleep last night as I'm in so much pain. When I did sleep I was hearing voices. Pain all day today. All over. Brain fog. Slurred speech. Tears driving home because of the pain. And then it will be another night of extreme fatigue and insomnia. #hadenoughalready #cfsnewbie #cfs #chronicpain #stopnow

My last day at the Mayo Clinic! I have a lot of rehabilitation ahead of me, but here I have found validation and hope! I now have a plan to get me back to a normal life and am so excited for what is to come! The doctors, therapists, nurses and staff have been incredible and I beyond grateful!

Behind the scenes between classes...Training with others is simple, yet so effective! The atmosphere at CrossFit Simplicity is one thing that sets us apart! • • • •

#CrossFitSimplicity #CFS #SimpleYetEffective #CrossFit #downtownburlington #community #wearedowntown #burlingtonnc #btown #fun #results @dreckert_the_barber @dhbunc12

People always tell me how great I look. The thing about having #EhlersDanlos is we DO look great. Our lack of collagen makes us appear healthy and beautiful. I assure you, we are not. This is what I need to take every day just to exist. 😩💊💉 #EDSandPOTS #Dysautonomia #EDS3 #PosturalOrthostaticTachycardiaSyndrome #CFS #InvisibleIllness #SpreadAwareness #SpreadHope #FindACure

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