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#burgundyforlife

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Another angle, a better one. Thanks, aunt Seliena, how lovely that you guys were there #avmstrokesurvivor #burgundyforlife #classof2017

#burgundyforlife 😂✌

I didn't think it would happen, but it did! 3000 Likes by my birthday on http://fb.com/avmalformation (link in profile!) 💕💕💕 Best birthday present. Thank you all so much for your continued support!! #BurgundyForLife #AVMSurvivor #AVMSurvivors #ArteriovenousMalformation #avmalformation

shout out to pink Christmas trees, old lady glasses, and good company 🖤

#tisthesesson #inparadise #positivity #burgundyforlife

"I do" Vincent Dancer Chasssagne Montrachet #chassagnemontrachet #burgundyforlife

Finally have all of my children home from storage!!! I cannot even begin to describe the trip down memory lane I took when I opened all of these boxes. #barolofordays #burgundyforlife #vino🍷 #winefridgeisfull

🙋🎒🐙 #matchmycrazy #burgundyforlife

Copa América watch out, Shade is getting his game on ⚽️ It was very nice having Edwin and Brett visit yesterday, we watched a couple of games and had dinner together. Edwin was here for a very short time and has now gone back to NYC. Today, we had a family Sunday with daddy and Mayan in town; even Dadabob chimed in with a FaceTime phone call. It was a chill day for Shade. He only had one therapy session for about 30 minutes that involved kicking the ball around while hanging from a harness. Tomorrow he is going back to the heavy-duty-full-on therapy. As the days go by we see Shade getting better, very slowly but in the right direction. #avmsurvivor #burgundyforlife #balr

MOST RECENT

shout out to pink Christmas trees, old lady glasses, and good company 🖤

#tisthesesson #inparadise #positivity #burgundyforlife

The best thing to serve up at an opening of a clinic is to present your friends a mini wine tasting! Even better when most of it were Burgs. 🤣🤣 .
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#roumier #comtedevogue #musigny #ruchotteschambertin #petermichaelwinery #aubert #leflaive #wineoftheweek #burgundyforlife #cotedenuits #chambollemusigny

💋 Celebrate Your femininity with passionate burgundy 🍷🔥
Shop, shop, shop! Link in bio.
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#SAZaw17 #sazshoes #designershoes #handcrafted #burgundyforfall #burgundyforlife #burgundy #followthebuyers #luxury #luxuryshopping #luxuryshoes

🧠 It's #AVMAwareness Month! I posted my first blog post about #ArteriovenousMalformation on my #blog! Direct link in profile! ➡️ http://twistedpaths.org/accepting-mortality/
#AVMSurvivor #AVMSurvivors #BrainAneurysm #BurgundyForLife #Burgundy4Life #BrainInjury #TBI #Recovery #Craniotomy #BrainSurgery #Spoonie #ChronicIllness #MentalHealth #BossGirl #BossLady

ᴏɴᴇ ᴍᴏʀᴇ sʜᴏᴛ ғᴏʀ sᴛʏʟᴇ. ɴᴇᴇᴅ ɪᴛ ᴛᴏo 👓
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#glasseson #glassesswag #squared #animalprintlover #animalprintglasses #burgundy #burgundyfilter #winelips #inglotlips #blackeyelashes #burgundyforlife #winterseason #jeanfordays

July, Aug, Sept... definitely doing better... 🙌🏼💪🏼🙋🏻
(Orange indicates migraine)
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Guess what Migraine, you are messing with the wrong girl! I WILL WIN!
-jjj
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#keepingchronicpretty #warrior #spoonie #invisibleillness #migraineeverydamnday #migraineyousonofabitch #pills #madethisway #occipitalneuralgia #avmsurvivor #brainmalfunction #fulltimepatient #fibro #pcos #burgundyforlife #migrainebrain #notimeformigraines #semicolon #migraineresearch #ambassador

When traveling with Shade, most things revolve around either Pokémon or sometimes Sesame Street. We had stop at this legendary diner, very famous in Durham, NC before our appointment with Dr. Marcus at Duke University. Of course he ordered the Elmo's Bacon Burger 🍔 🥓💜 #avmsurvivor #burgundyforlife #elmosworld

I want! Love the #burgundy and warm reds. speaking of burgundy.... that is the #AVMawareness, #aneurysmawareness # color and September is awareness month for those serious conditions that can just sneak up on u without warning. My sis #teamgetjuliebetter has a #CranialAVM so this is close to my ❤

Please take a moment to visit @joeniekrofoundation and @atihsa and see the links in their profiles for more info ❤

#joeniekrofoundation #burgundyforlife #urbandecayheat #urbandecaynakedheat #nakedheatpalette #hemmorhagicstroke

Everything I was hoping for and more...thank you @perrinwolfe88!! #santenay #1ercru #iwantanother #happyplace #sommlife #burgundyforlife

Paying close attention to the instructions #avmstrokesurvivor #burgundyforlife #followtheinstructions

Getting to know the specs at work 💜 #avmsurvivor #burgundyforlife #cocacola

Allocations make me smile. Since I sold my last bottle of 2011 DRC Le Montrachet a few months ago, I have been anxiously awaiting this beautiful creature. The others are no slouches, to be certain. The real question is when to list her. #winestagram #sommlife #patienceisavirtue #drc #lemontrachet #latache #echezeaux #grandsechezeaux #domainelaromaneeconti #2014 #allocated #newtoys #burgundy #burgundyforlife #clublife #gobigorgohome #intothecellaryougo

Sometimes I miscalculate the number of #spoons needed for the day. Today I was able to work the #farmersmarket this morning (which I haven't done in almost 2 years) and do a few things when I got home, but unfortunately didn't make it to dinner with @saltandgrain which is the new norm. 🙄 Luckily, he keeps me and my body in check and knows when I need to slow down and knows my limits. HE MAKES ME TAKE BREAKS AND LEAVE EVENTS OR CONSTANTLY CHECKS ON ME❤️ It may be the most precious thing. #iamgrateful #madethisway #brainmalfunctionsarereal #moi •
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#itsnotjustaheadache #keepingchronicpretty #invisibleillnessawareness #yolo #injections #braindamage #brainmalfunction #neuroproblems #botoxisthenewblack #heavilymedicated #notimeformigraines #migraineresearch #ambassador #burgundyforlife #butyoudontlooksick #myhusbandisthebest #semicolon #spoonie #warrior #migraineyousonofabitch #nervedamage #occipitalneuralgia #fibromyalgia #avmsurvivor

Cheers for Migraine Free Days and hoping to continue this streak! •
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Looks as though #moosejohnsonjones is in disbelief and is preparing for the next migraine. ❤️🐶 (he knows me well) •
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Happy Feel Good Friday Warriors! •
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#keepingchronicpretty #invisibleillnessawareness #cheersforthegooddays #pills #injections #heavilymedicated #medicinalhound #mooseandmoi #butyoudontlooksick #avm #avmsurvivor #braindamage #brainmalfunction #neuroproblems #madethisway #spoonie #warrior #semicolon #burgundyforlife #butterfly #yolo #real #notjustaheadache #notimeformigraines #migraineresearch #ambassador #smileisthebestmakeup

Migraine Solidarity Day! 😎@shadesformigraine •
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I am thankful for all the support from family and friends! It's not just wearing a pair of shades, it's showing me you give a damn.
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My husbands entire company is wearing shades on the next pic! So grateful for their support! I know it means a lot to him too!! @teamcornett Pictured are also my former coworkers, an elementary bff, my parents, one of my sisters and some of my nieces.
It takes a village to get through some things and I am thankful to have such great people in my life.
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#shadesformigraine #heavilymedicated #neuroproblems #butyoudontlooksick #avm #burgundyforlife #madethisway #brainmalfunction #injections #invisibleillnessawareness #juneismigraineawarenessmonth #solidarity #youarenotalone #keepingchronicpretty #mooseandmoi #semicolon #stopthestigma #medicinalhound #theitalian #sahdm #botoxisthenewblack #migraineresearch #ambassador

Me trying to express how I feel...
"I don't know... I feel like...I don't know...it's like I...I don't know...
...I'm good"
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Some days I wake up feeling perfectly fine (migraine wise) yet my body is full of random ass emotions I cannot control. 🤦🏻‍♀️Living with Mental Medical Depression (known as MMD) I am just a basket of goodies. It's so hard to explain...I really wish I could. •
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To avoid more tears this morning I am having a coconut coffee and going for a long walk to let the wind dry my eyes. I hope for a better afternoon and I am thankful for friends that listen to my "nonsense" so early in the morning. @kwboaz @bethanybargosmith 🤳🏼🤳🏼🤳🏼
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#avmsurvivor #juneismigraineawarenessmonth #semicolon #stopthestigma #youarenotalone #moi #migrainebrain #migraineresearch #ambassador #keepingchronicpretty #butyoudontlooksick #hidebehindtheshades #emotionalwreck #botoxisthenewblack #burgundyforlife #needles #pills #fibromyalgia #injections #invisibleillnessawareness #yolo #thisheadihold #brainmalfunction #neuroproblems #heavilymedicated #realshit

Graduation Station--so proud of my future OTA 🎓 /
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#graduationday #collegegrads #futureota #bestfriend #burgundyforlife

Attention WSET students! All roads lead to Burgundy. The word on the street is that both our South Melbourne and Sydney stores are putting on 2015 Burgundies this Saturday for their free tastings. Perfect for you to brush up on this very significant but increasingly cost-prohibitive region. @princewinestore @pwssydney @wsetglobal @domaine_de_bellene @cellarhandwine #jeanmarcpillot #matrot #bourgogne #burgundy #burgundyforlife #whiteburgundy #bourgogneblanc #bourgognerouge #redburgundy #beaune #chassagnemontrachet #meursault #freetasting #winetasting #burgundy2015

👐🏽#frommetome #nevadoroses

Starting my happiness project today. #beach #run #camping #ocean #australia #motivation #tbt #sydney #happiness #start

Alberta's finest offer! #closdesmouches #josephdrouhin #cotedebeaune #mythicalcreature #burgundyforlife and #pabst #goodtimes #alberta #calgary #AtAzuridge 🍷🍇🤘🍺🍻

Scooped up this pup just in time. ☔️It came a downpour. Neither of us care for the rain. Just another reason we were made for each other.😜❤️🐶
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#keepingchronicpretty #mooseandmoi #butyoudontlooksick #burgundyforlife #migrainebrain #weekendvibes #sundayfunday #walkawaythestress #semicolon #brainmalfunction #madethisway #occipitalneuralgia #botoxisthenewblack #moi #migraineresearch #ambassador #meandmyitalian #medicinalhound #warmcoldnose #moosejohnsonjones

Tania Dalton, dies aged 45 after suffering brain aneurysm during game of touch rugby last week
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Former New Zealand international’s life support turned off after suffering brain aneurysm during game of touch rugby.
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Former Silver Fern netballer Tania Dalton has died peacefully in Auckland, nearly a week after suffering a brain aneurysm.
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The 45-year-old was surrounded by family at Auckland City Hospital when she died on Wednesday, a day after her life support was turned off.
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Dalton suffered the internal aneurysm during a social game of touch rugby in Takapuna last Thursday.
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She never recovered after being admitted to hospital in a critical condition, having suffered massive blood loss and a loss of oxygen to the brain for an extended period.
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A mother of three, Dalton played 12 Tests mostly at shooter across an 11-year international career which finished in 2007.
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She was part of the 2003 world championship-winning team, and also in the side that finished runners-up four years earlier.
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She also played for the Northern Force and the Southern Sting, helping the latter to three national titles.
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After her retirement, she became a well-known television commentator.
Numerous former team-mates and netball identities have expressed their sadness and support to the family over the past week.
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She was hailed as a fun-loving, at times irreverent character, earning praise for her ability to balance motherhood with an extended and successful sports career.
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The Guardian

Annnd people say memberships to Sams and Costco are useless. This weekend I traveled to @pinnersconf In Atlanta so I brought all the spoons!
So thankful I came medically prepared, shots before I traveled, medicine on hand, earplugs, heating pads, oils, calming strategies and staying stress free!
Winning $500 allowed me to not worry about my budget so that definitely helped my body be carefree and have a blast! What a fantastic surprise I'm so glad I went!! •
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#keepingchronicpretty #migraineresearch #migrainebrain #neuro #spoonie #warrior #ambassador #pills #invisibleillnessawareness #injections #butterfly #avm #burgundyforlife #occipitalneuralgia #yolo #doindisforme #weekendwarrior #madethisway

Recently I was asked...
"what do you think causes your problem?"
Me:
1. how much time do you have for me to list triggers.
2. "My problem" isn't curable.
3. I get really confused what people think the definition of "Chronic" is and how they actually interpret it. You don't walk in my shoes...please don't try to be my doctor.
4. If I hear..."you'd think they could fix you" one more time I seriously may throat punch someone. 🥋🥊🥋🥊
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#migraineeverydamnday #brainmalfunction #invisibleillnessawareness #occipitalneuralgia #nerveblock #avm #burgundyforlife #butterfly #migrainebrain #migraineresearch #ambassador #yolo #stopthestigma #semicolon #youarenotalone

Depression comes in many forms. No one knows and it's easy to hide but damn it's hard sometimes. It will wear your ass out and the folks around you. I was diagnosed with mental medical depression almost 2 years ago once I found out I had Arteriovenous Malformation. So here I am once again at the psychiatrist office...Keeping Chronic Pretty.
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#moi #semicolon #spoonie #chronicillness #keepingchronicpretty #stopthestigma #youarenotalone #mentalillness #invisibleillnessawareness #avm #butyoudontlooksick #butterfly #burgundyforlife #yolo #pills #injections #routine #botoxisthenewblack #occipitalneuralgia #thisheadihold #madethisway #migrainebrain #migraineresearch #migraineeverydamnday #ambassador

#Repost @keepingchronicpretty
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Posting selfie's to some people may be ridiculous but #whatevs. When I wake up and I feel good I'm gonna share it because it is rare.
Today I feel great (not sure how long it will last, but I'm not complaining) it's 8 o'clock and I'm headed to my moms to celebrate my pap's 88th birthday! Shades on! Sun is out! Smile on my face! Cheers Saturday!
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#keepingchronicpretty #winning #warrior #invisibleillness #burgundyforlife #butterfly #pills #injections #occipitalneuralgia #botoxisthenewblack #invisibleillnessawareness #chronicillness #spoonie #semicolon #moi #mystyle

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