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#burgundyforlife

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Burgundy ❄ #winter #burgundyforlife

Catching Pokémon, thanks to Ti@ l@c@. Uncle Edwin very kindly is looking after Shade this weekend so Mami can watch Mayan play soccer while daddy is in Rio working the Olympic Games. #avmsurvivor #burgundyforlife #mybrotherisbetterthanyours

Stay dark, even in the Summer time🍇🖤 #selfie #selfiesofig #carrides #burgundyforlife

"I do" Vincent Dancer Chasssagne Montrachet #chassagnemontrachet #burgundyforlife

Finally have all of my children home from storage!!! I cannot even begin to describe the trip down memory lane I took when I opened all of these boxes. #barolofordays #burgundyforlife #vino🍷 #winefridgeisfull

A collection of Shade's graduation pictures. #classof2017 #burgundyforlife #avmstrokesurvivor

MOST RECENT

July, Aug, Sept... definitely doing better... 🙌🏼💪🏼🙋🏻
(Orange indicates migraine)



Guess what Migraine, you are messing with the wrong girl! I WILL WIN!
-jjj



#keepingchronicpretty #warrior #spoonie #invisibleillness #migraineeverydamnday #migraineyousonofabitch #pills #madethisway #occipitalneuralgia #avmsurvivor #brainmalfunction #fulltimepatient #fibro #pcos #burgundyforlife #migrainebrain #notimeformigraines #semicolon #migraineresearch #ambassador

9/11/15 Diagnosed 2 years ago to the date. Life changing. #avm #cerebralavm #burgundyforlife #avmwarrior #2yearstoday

When traveling with Shade, most things revolve around either Pokémon or sometimes Sesame Street. We had stop at this legendary diner, very famous in Durham, NC before our appointment with Dr. Marcus at Duke University. Of course he ordered the Elmo's Bacon Burger 🍔 🥓💜 #avmsurvivor #burgundyforlife #elmosworld

I want! Love the #burgundy and warm reds. speaking of burgundy.... that is the #AVMawareness, #aneurysmawareness # color and September is awareness month for those serious conditions that can just sneak up on u without warning. My sis #teamgetjuliebetter has a #CranialAVM so this is close to my ❤

Please take a moment to visit @joeniekrofoundation and @atihsa and see the links in their profiles for more info ❤

#joeniekrofoundation #burgundyforlife #urbandecayheat #urbandecaynakedheat #nakedheatpalette #hemmorhagicstroke

Stay dark, even in the Summer time🍇🖤 #selfie #selfiesofig #carrides #burgundyforlife

Everything I was hoping for and more...thank you @perrinwolfe88!! #santenay #1ercru #iwantanother #happyplace #sommlife #burgundyforlife

Paying close attention to the instructions #avmstrokesurvivor #burgundyforlife #followtheinstructions

Getting to know the specs at work 💜 #avmsurvivor #burgundyforlife #cocacola

Allocations make me smile. Since I sold my last bottle of 2011 DRC Le Montrachet a few months ago, I have been anxiously awaiting this beautiful creature. The others are no slouches, to be certain. The real question is when to list her. #winestagram #sommlife #patienceisavirtue #drc #lemontrachet #latache #echezeaux #grandsechezeaux #domainelaromaneeconti #2014 #allocated #newtoys #burgundy #burgundyforlife #clublife #gobigorgohome #intothecellaryougo

The whole family went to Ocala today to visit a very cool place. Michelle has a horse sanctuary where people with or without disabilities go to enjoy Mother Nature. We did just that, had a great time away from everything. We will definitely go back 💜 #avmsurvivor #burgundyforlife #horsebackriding

Sometimes I miscalculate the number of #spoons needed for the day. Today I was able to work the #farmersmarket this morning (which I haven't done in almost 2 years) and do a few things when I got home, but unfortunately didn't make it to dinner with @saltandgrain which is the new norm. 🙄 Luckily, he keeps me and my body in check and knows when I need to slow down and knows my limits. HE MAKES ME TAKE BREAKS AND LEAVE EVENTS OR CONSTANTLY CHECKS ON ME❤️ It may be the most precious thing. #iamgrateful #madethisway #brainmalfunctionsarereal #moi


#itsnotjustaheadache #keepingchronicpretty #invisibleillnessawareness #yolo #injections #braindamage #brainmalfunction #neuroproblems #botoxisthenewblack #heavilymedicated #notimeformigraines #migraineresearch #ambassador #burgundyforlife #butyoudontlooksick #myhusbandisthebest #semicolon #spoonie #warrior #migraineyousonofabitch #nervedamage #occipitalneuralgia #fibromyalgia #avmsurvivor

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