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MOST RECENT

“Sometimes when I say I am okay, I don’t actually mean it. Maybe it just means I want to bury my head and cry. Hide away from all that is causing me this heartache and pain. Sometimes, just sometimes, ‘okay’ doesn’t mean what you think it does!” #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

~Link is in the bio~
It has taken me a while to write this Blog, mainly as I kept finding it so hard to remember all the events and what happened when. This is just a tiny tiny slice of what the past 917 days has consisted of!!! Only seems like a couple of months ago that this all started, but then on other days it is as if I have never known anything different. 💜💜💜 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

I keep meaning to do an update on here but I just can’t seem to find the words to do it🤔 It’s all so complicated and I have once again been lied to and let down by Doctors who are meant to be doing what’s in my best interest😕😠
Currently working on a Blog for ‘My story so far...’💜💜💜 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

~Old photo... reminiscing about healthier days. This was taken just after I got the job as a Health Care Worker. I was so happy as it was another step closer to getting my life on track. Is it insane saying I want to be a doctor because I want to show SO many people that there are health professionals out there that care, not just for the money or the free research trials or for anything other then but for their patients and there patients best interests!. I will achieve my goals no matter how long it takes or how hard it is!~
✨💜✨🦋✨💜✨ #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

🌸🌺Mums lovely flowers!!🌺🌸
A few weeks ago there was a car accident outside our house and mum went running out to help the elderly lady who was involved, she was all alone, scared, hurt and had the man from the other car shouting abuse at her. Mum helped to calm the situation down and this evening the lovely little lady brought mum some flowers😢💐😊 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

Here is to a healthier New Year🎉 Not just for me but for all of my Spoonie Sisters💜💚There definitely has been plenty of ups & downs. Points where the family thought they were going to lose me once again😰...BUT I showed Chronic Illness who is BOSS!!!!!!! I have so many amazing ideas planned out for 2018 already💡 Blogs, Vlogs, days out, days in.... I have made a promise to myself, to make the most of everyday whenever I am possible to get out of bed. Because I am fed up of losing the important years of my life!🤔🤗🤭 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

~Manual download time~
I had a nasty seizure today, I fell over and hurt all down my right hand side😩 Very very sore down my rib cage and shoulder!😥 So I am feeling pretty sorry for myself tonight, snuggled up in my bed being unhappy😞🤕
Going to finish off my Christmas Blog tonight and try have it ready and posted up tomorrow📝
#daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

I have five fingers for a reason:
My Pinky Finger- For my best friend and the promises I will never break.✨
My Ring Finger- For that special one when the time is right.💍
My Middle Finger- For the fools who push me to hard.🖕🏼
My Pointer Finger- To pick out my dearest family members.👨‍👩‍👧‍👦
My Thumb- To show the rest of the world I’m going to be okay.👍🏼 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

So many seizures🤯🤕 So much Lorazepam & Diazepam💉💊 Yet I can’t sleep😰😴 My body just never wants to cooperate with me!🧠 I am laid here listening to all of the bleeps, the buzzes, the cry’s and the screams of the ward while I write out a new blog to try and past the time📝
💜💜💜 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

~I wanted to write down exactly what I felt but somehow paper seemed empty. And I could have not described it better.~
I’m exhausted, physically and mentally, I have a stinking EEG stuck to my head... along with the In The Night Garden backpack to keep it in🤬🙄 There is funny then there is taking the piss!!!!!!!!!! Just get me home for Christmas that is all I am asking😩🎄 #daisysepilepsyjourney #epilepsy #epilepsylife #epilepsyfighter #phenytoin #heartproblems #seizuressuck #epilepsywarrior #domperidone #epilepsyproblems #seizuredisorder #medication #eplim #sodiumvalproate #keppra #heartcondition #supraventriculartachycardia #svt #verapamil #gastroparesis #hospital #cerebellarectopia #looprecorder #chronicallyill #buddybeads #amitriptyline #kinesiologytape #tensmachine #epilepsysociety

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