#bronchopulmonarydysplasia

MOST RECENT

Loud wheezy cough this morning and a headache. Didn't sleep well cause of coughing. Continuing to wear my oxygen machine. The weather today... high of low 40's. Rain and snow mix. I'm so tired of this weather. My lungs are tight and sore. I'll be taking mucinex every 4 hours today. News say there's a 27 degree temperature drop compared to this time yesterday. #chronicillness #lungdisease #sickofcoughing #lungcrud #wheezles #miserable #spoonie #copd #bronchopulmonarydysplasia #sicknotweak #lungs #tightlungs #lungshatecold #disability #sick #chronicillnesswarrior

#Repost @acfurniss1120 You guys, big things are happening over here! ・・・
Totally having a mom freak out moment!!! If anything good comes out of this hospital stay it’s that @zeppelinmountainmover finally learned to sit unassisted! YAY #zeppelin #zeppelineli #zeppelinmountainmover #25weeker #micropreemie #oneyearold #preemiestrong #bronchopulmonarydysplasia #bpd #o2baby #adrenalinsufficiency #aibaby #sickbaby #rsv #situp #unassisted #soproud #proudmom #whoneedstoeatwhenyoucansitup

#Repost @acfurniss1120 my parents are pretty awesome 💜
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@zeppelinmountainmover and @salem_menthols making the best of a crappy situation. Zeppelin and daddy love playing ball together while mama finally relaxes! We’ve been treated wonderfully here and have the best staff doing everything to make this stay as good as possible! Z loves playing on this mat and loves looking at himself in the mirror they brought for his crib. #zeppelinmountainmover #25weeker #micropreemie #bronchopulmonarydysplasia #adrenalinsufficiency #rsv #childrenshospital #omaha #hopefullyhomesoon

@zeppelinmountainmover and @salem_menthols making the best of a crappy situation. Zeppelin and daddy love playing ball together while mama finally relaxes! We’ve been treated wonderfully here and have the best staff doing everything to make this stay as good as possible! Z loves playing on this mat and loves looking at himself in the mirror they brought for his crib. #zeppelinmountainmover #25weeker #micropreemie #bronchopulmonarydysplasia #adrenalinsufficiency #rsv #childrenshospital #omaha #hopefullyhomesoon

#Repost @zeppelinmountainmover ・・・
Guys, they’re letting me eat real food in here! I had jello for my first time and even managed to drink a few ounces from my bottle! #zeppelin #zeppelineli #zeppelinmountainmover #25weeker #micropreemie #bronchopulmonarydysplasia #adrenalinsufficiency #rsv #rsvsucks #childrenshospital #omaha #preemiestrong

Guys, they’re letting me eat real food in here! I had jello for my first time and even managed to drink a few ounces from my bottle! #zeppelin #zeppelineli #zeppelinmountainmover #25weeker #micropreemie #bronchopulmonarydysplasia #adrenalinsufficiency #rsv #rsvsucks #childrenshospital #omaha #preemiestrong

Dream come true. I got to ride the train (PRT).... I will never ask to ride it ever again. It was scary and I was so happy to get off of it at the end.
When the PRT was returning to the hospital, he yelled “me hommmeeeee, me hommmeeeee, I get off?” #everythingisscary #dentistwasscary #nicugrad #bronchopulmonarydysplasia

#Repost @zeppelinmountainmover my sweet baby 😭 ・・・
We thought we made it through the season without catching anything... but the doctor just spoke the nasty three letters every preemie hates to hear, RSV. On the upside, the ED doc thinks I’m well enough to go home. Hopefully we don’t have to come back! #zeppelin #zeppelineli #zeppelinmountainmover #25weeker #micropreemie #bronchopulmonarydysplasia #bpd #o2baby #adrenalinsufficiency #aibaby #wealmostmadeit #fluseason #rsv #rsvsucks #suchafighter

We thought we made it through the season without catching anything... but the doctor just spoke the nasty three letters every preemie hates to hear, RSV. On the upside, the ED doc thinks I’m well enough to go home. Hopefully we don’t have to come back! #zeppelin #zeppelineli #zeppelinmountainmover #25weeker #micropreemie #bronchopulmonarydysplasia #bpd #o2baby #adrenalinsufficiency #aibaby #wealmostmadeit #fluseason #rsv #rsvsucks #suchafighter

This is the worst Kavante has been. He is in a coma. All your prayers are very much appreciated.

Kavante just got meds to take him out of the coma & they put a new trach in

Kavante says 🖕🏽 to #bronchopulmonarydysplasia

This baby boy is just so sweet! He’s doing so well and I’m so proud to be his Momma. Today he ate Mashed Potatoes, Chicken (which is a BIG deal, meat has been difficult for him), and about half a biscuit. I’d say all in all, he probably ate about the equivalent to a whole meal for him! Such a happy day 😍😍😍
#gtube #tubie #oralaversion #tubielove #babyboy #28weeker #preemie #bpdbaby #bronchopulmonarydysplasia #chroniclungdisease

“Some bunny” loves me. In fact, a lot of some bunny’s do 🐰🐰🐰 thank you ALL so much for the prayers. Huge thanks to our wonderful friends for taking Kennedi for the day so Zach and I could both be here with Finley💕 #pprom #bronchopulmonarydysplasia #trachbaby

One year ago today + NICU journal (+ spider who lives in my car 🙃) ... last year, as her lung disease progressed and her condition declined, we were unsure if Melée was going to respond to additional steroid treatment or if she would need to be reintubated. Fortunately it would be one of her last bad weeks in the pulmonary department! The extra emergency dose of steroids she’d get would improve her condition dramatically. What a rollercoaster. #meléethemicropreemie #lookingback #lifeafterNICU #bronchopulmonarydysplasia

#Repost @zeppelinmountainmover THAT’S MY BOY! ALL the feels today! 😍😭
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It’s my first birthday! What a long, crazy, wonderful year! My journey isn’t over but I’ve come long way. They don’t call me the mountain mover for nothing! Swipe for more photos #zeppelin #zeppelineli #zeppelinmountainmover #25weeker #micropreemie #preemiestrong #bronchopulmonarydysplasia #bpd #o2baby #adrenalinsufficiency #aibaby #invisibleillness #comesofar #notoutofthewoodsyet #whatacrazyyear #livinginthetwilightzone #birthday #firstbirthday #one #birthdayboy

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