#brittleasthma

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I'm home and in my cosy warm bed with Lily 🙈 irony is I actually have an appointment with my respiratory consultant in 7 hours time 😂 #asthmaattack #brittleasthma #asthma #asthmahumor #tubiefriend

Liten skrutta som kämpar på här 💗 Varit en lång natt men nu ligger det över 90% iaf och medicineringen går varm. Min Flipp 💗 #brittleasthma #fighter

Bubbly from the bottle?! Celebrating the end of a year that did its best to kill me. #sepsis, #brittleasthma, and numerous bouts of #pneumonia ain't got shit on me!

#hospitallife means trying to make meals out of nothing.... with stuff bought in from home and what I can eat on the menu we have a decent-ish breakfast to wash the first rounds of pills down #brittleasthma #asthmasux #lesigh #hospital

Just had seven shades of shite scared out of me when I rolled over and pulled an ECG sticker off, meaning I pulled a lead off and was therefore dead. 4 nurses and 2 HCAs waking me up to check I'm alive. At least the system works! #brittleasthma #poorly #telemetry

Been a while since Karma had to check up on me. Still #asthmatic. #brittleasthma #asthmasucks

Singing this while in an icu for people with lung problems.. I have amazing people in my life 😂😂👌 #brittleasthma #friends #iamsospoilt #itwasdeansidea @joyweideman

People don't understand how hard it is living with asthma 😓 #brittleasthmatic #asthmasucks #brittleasthma

"I'm not Chronically ill, I'm medically fascinating." #chronicillness #chronicpain #addisonsdisease #brittleasthma #ibs

MOST RECENT

#lungfunctiontests and a whole afternoon blowing into tubes before coughing up gunk for pots #sputumtest ... the glamorous life of a #brittleasthmatic . #brittleasthmasucks #asthmasux #brittleasthma #hospitallife

My weary #spoonie body allowed me my first dog walk in ages. I sat on a rock and watched the water! *pd beach and water and sky in sunshine* #brittleasthma #chronicpain #chronicillness #addisonsdisease #ibs #spondylolisthesis

Don't samples look purdy.... #sputumtest day today along with #lungfunction to see how bad we are getting as the last tests have been written off 😔😖😢 #chronicillness #brittleasthmasucks #brittleasthma #asthmasux #samples

Today I have had to have a couple of #manupprincess moments..... I was told that my body if they can't get shiz sorted has less than a year of fight in it. I had confirmed that a mate died. I am far away from home and realised that someone spent months lying to me. Whilst I face another month or so in hospital facing this and hoping something is found so we can solve it, gearing up for the tests to start whilst being moved I realise I am the master of this. #igotthis it's tough and my mates and family are rallying round. I am lucky I have a team of doctors and professors fighting to give me a life back. All I know is I loved and lived without regret. It is far from over and I am going to be kicking arse in years to come. #brittleasthma #portsmouthhospital #brittleasthmasucks #iwillwin #asthmasux #chronicillness #darthvader

#billions #chocolate #kokodairyfree #painmeds #asthmadrugs and #unicornpjs as soon as the #oramorph arrives and nebs are done it's time to settle down. After an #asthmaattack earlier and #lidocaine in my system it's going to be a sleepy night on #oxygen bring on #monday and the start of the massive tests #hospitallife #brittleasthmasucks #brittleasthma

This wonderful girl is melting my heart today! I'm poorly with steroid insufficiency after a long day yesterday (narrowly avoided an #adrenalcrisis though so that's good!), and she's helping her brother get ready for his shower- prepping the temperature, his flannel etc! *pd Isla with necklace 'crown' on* #autism #asc #asd #pda #addisonsdisease #chronicillness #chronicpain #brittleasthma #ibs

How I am spending my afternoon as an #inmate at #portsmouthhospital #ipod#beatsbydre#dissolution#cookies ✅ and #coffee ✅ I may be suffering with low #oxygen stats today and preparing for a major #brittleasthma attack but doesn't mean I have to be bored #brittleasthmasucks #asthmasux #hospitallife #igotthis

So this morning I went for a little walk to costa downstairs and had to wear my bane mask (no seriously if someone could make me an actual bane mask that would be awesome... or some that are less scary). As usual the amount of people that look at you like you are going to either
A) mug them
B) infect them
C) both of the above
But today a child stopped his Dad to ask why I was wearing a mask, as usual I smile behind it waiting for what he will say.... "oh I don't know but we don't get close to people like that do we?" People like what? A business woman? A biker? A daughter? A patient? What am I like?
So let's clear something up Portsmouth 🙂 I am happy to tell your child why I need to wear a mask or why I have tattoos; education stops fear and judgement without education breeds fear. This is why you are afraid of me. I have to wear this mask, it stops allergens (pollen, pollution and dust), strong smells like your perfume, cleaning products and cigarette smoke causing my already aggravated airways closing up. The medications I am on mean I have no immune system, I am open to infections which means every time you cough or sneeze, you can make me very very sick. Any infection can kill me.
So people before you judge someone, educate yourself please, I may have tattoos but 3 seconds ago I was wearing unicorn slippers on a nebuliser, I may have a bio-mask on but you failed to notice my budda on my arm surrounded by shakra beads or the cross round my neck where this morning I was reading the bible.
I may be walking around with my head up high trying to be brave and smile, when all I want to do is curl up in a ball and cry. You don't know me to judge me, your child has a chance to part of a world where we educate people and stop hate and fear. Yet you sir, just made one more person judge another without asking a simple question. Why? #fear #hate #faith🙏 #educateyourself #judgementalpeople #judgemenot #brittleasthma #biomask #igotthis

Wishing my #biomask looked like this ha! #messyhairdontcare and #nebulisers as I chill in the ward waiting for a couple of bloods and X-rays. Pretty chilled weekend and monitoring as oxygen levels are low but all good #hospitallife #brittleasthma #dramallama #stupidlungs

Escaping the ward for a little to check out the view.... 😜😜😜#hospitallife #dramallama #brittleasthma

Appearance 9: World Asthma Day was 2nd May 2017.
Asthma is a common chronic health problem which affects the lungs. In the UK alone over 5.4 million people receive treatment for asthma, that's over 1.1 million children (1 in every 11 children) and over 4.3 million adults (1 in every 12 adults). Most people are aware of asthma and know that it affects the lungs however what most people are unaware of is that asthma can be completely disabling. For 5% of asthmatics who suffer with brittle asthma, this is the case. Brittle asthma is a rare form of asthma where attacks are severe in nature. The attacks often come on very quickly with very little warning. I personally suffer with brittle asthma type 2, this is where the person's asthma appears well controlled when they are not suffering from an attack and attacks come on very quickly in nature. I can be happily going about my day and then 20 minutes later I can be in the back of an ambulance struggling to breathe. It's resulted in countless hospitalisations and A&E trips with numerous visits to intensive care and high dependency and nearly being ventilated on various occasions. Asthma can have fatal consequences for some unfortunately, in the UK alone it is estimated that 3 people die every day as the result of asthma attacks and often times these people are classed as having mild or moderate asthma. It's important to take any prevention medication prescribed for asthma, even when feeling well, as it can reduce the risk of suffering an attack dramatically #beautyqueen #beautypageant #chronicillness #chronicsymptoms #spoonielife #spoonie #asthma #brittleasthma #worldasthmaday2017

Been a while since Karma had to check up on me. Still #asthmatic. #brittleasthma #asthmasucks

When you are sat on the ward with people that are helping you through some of the toughest times going and you realise the bonds for life that are made in #respiratorywards. Without the people on this Ward, my mates on WhatsApp and Facebook and my family there is no way the past few days would have been easy 🙂🙂 as I wait for a bed in #criticalcare at #Portsmouth I know we will have a few good days and despite everything #igotthis #hospitallife #chronicillness #brittleasthma #selfie

Found out today I need to move hospitals 😢😢 I am now too critical and need to have treatments they can't do here as well as tests #brittleasthma so I am soon moving to Portsmouth 😢 seems never ending #chronicillness #hospitallife

#13reasonswhy and #costacoffee this is how I am coping right now.... so much to fight including my #brittleasthma which is winning 😢😢 along with things in my head which I have no choice but to shut out #hospitallife #chronicillness #asthmasux #truestory

Surfed most of the beaches. Restarting the list since the diagnoses with brittle asthma, my new challenge is to surf EVERY beach in the world.
Harlyn is where I learnt how to surf. It was always have a special place.
I guess itʻs fight back with all *you* have got!
Each beach, each nalu bead.
#nalubeads #soulsurfer #surfcornwall #surfmission #stillfightingback #asthmatic #brittleasthma

Bad day for pain today, but feeling lucky that there's nothing I have to do, I had a great weekend, and I have this crazy beast cuddled up with me and my heatpad. Naff photo- but she kept licking me! 😂 *pd Stars face up close with tongue hanging out* #chronicpain #chronicillness #addisonsdisease #brittleasthma #ibs #chug #chugsofinstagram #pug #pugsofinstagram #chihuahuasofinstagram

At the end of day 19 in hospital and a lot has changed. I have had another major #brittleasthma attack which may keep me in here a few days but I am still fighting. I may now be doing this alone, I have seen peoples true colours and I may be far away from my family and friends, but they are all rallying round as much as possible to make sure I am not isolated and alone. #chronicillness is more than the daily fight for life it's the fight against #demons and #selfloathing I will beat this because I am stronger than most realise #iwillwin #hospitallife #selfie #singlelife

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