#boweldysmotility

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Things are pretty crap at the moment. Lennon came to the hospice on Monday as he is currently needing 2-1 nursing care whilst we try to find a bag that sticks. We've been through so many bags, seen 5 stoma nurse and in one day we did 11 bag changes 😩 his skin is now red raw, open and weeping and nothing will stick to it. He is currently asleep on my lap, covered in barrier cream whilst I press a baby nappy against his stoma. I honestly can't see an end to this. I am supposed to be going away on my hen in a couple of weeks and the following weekend isn is going to Portugal for 3 days on his stag. God knows how either of us will cope or if we will even be able to go πŸ˜” I feel defeated πŸ’” #ileostomy #greatormondstreet #autism #deafblind #boweldysmotility #postsurgeryproblems

There are so many different varieties of fruits and veggies that there’s no way I could feel bored or restricted. I really don’t even want most of the other food that I’m around because I know (1) The damage is causes to the body and my body is sacred and precious so I will not harm it (2) My taste buds are coming to a place of total purity, not clouded with artificial stimulants and chemical flavors (3) My meals have EVERYTHING I need and nothing I don’t. Filled with tons of pure water, gentle fiber, carbs, just enough fat & protein, vitamins, minerals and AMAZING, DELICIOUS flavor, fruit and veggies are totally satiating and healing. -->> check out the latest update on My Raw Fruitarian healing journey on the blog now!

I may be having a current tube nightmare, but at least Jessie J is festive! πŸŽ…πŸ»πŸŽ…πŸ»πŸŽ…πŸ» Merry Christmas everyone! ❀ #jtube #jejunostomy #jtubenightmare #ouch #painful #poorly #boweldysmotility #chronicillness

Intestinal Failure Factoid no. 1 - When your bowel dies (along with the rest of the digestive system) it means you stop farting. It also means you have to be creative getting medication into you when you are extremely limited what your feeding tube can tolerate - I haven't pumped for 6 months, so imagine my surprise and sheer delight when one of the side-effects of sticking pain killers up my bum is bottom whistles!! Very long musical bottom whistles I should add, as I have absolutely no bum muscles to hold in trumpy pumps! #intestinalfailure #hospitallife #truthbetold #farting #ladylike #chronicallyawesome #boweldysmotility #ichoosejoy #findsomethingtobethankfulfor

Today has been bittersweet πŸ’« tomorrow is Day 1 on this new journey, its daunting, it's new but I got this πŸ’˜πŸ’ͺ🏼 #keepfighting #warrior #chronicillness #GP #boweldysmotility #gastrointestinalproblems #dysfunction #proudofmyself #igotthis #firststeps #day1 #IBD

Do you suffer from chronic constipation or know someone who does? Our unit is part of a multicentred trial looking into treatments for chronic constipation. If you are local give ua a call or email the address given! #bowels #constipation #boweldysmotility #boweldysfunction #cantpoop #bowelproblems #ibs #nursing #colorectal #studentnurse #studentnurses

Oh Jessie J, (the #jtube) πŸ’– Yesterday we were friends, but today you've started to be a pain in the bum again! 😩 Sort it out love!! πŸ˜°πŸ¦„ (Yes, I'm high on prescription drugs! πŸ˜‚) #jejunostomy #tubie #tubeissues #ouch #naughtyJessie #smile #positivevibes #tummytroubles #chronicillness #boweldysmotility #yucky #tubelife

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There are so many different varieties of fruits and veggies that there’s no way I could feel bored or restricted. I really don’t even want most of the other food that I’m around because I know (1) The damage is causes to the body and my body is sacred and precious so I will not harm it (2) My taste buds are coming to a place of total purity, not clouded with artificial stimulants and chemical flavors (3) My meals have EVERYTHING I need and nothing I don’t. Filled with tons of pure water, gentle fiber, carbs, just enough fat & protein, vitamins, minerals and AMAZING, DELICIOUS flavor, fruit and veggies are totally satiating and healing. -->> check out the latest update on My Raw Fruitarian healing journey on the blog now!

Things are pretty crap at the moment. Lennon came to the hospice on Monday as he is currently needing 2-1 nursing care whilst we try to find a bag that sticks. We've been through so many bags, seen 5 stoma nurse and in one day we did 11 bag changes 😩 his skin is now red raw, open and weeping and nothing will stick to it. He is currently asleep on my lap, covered in barrier cream whilst I press a baby nappy against his stoma. I honestly can't see an end to this. I am supposed to be going away on my hen in a couple of weeks and the following weekend isn is going to Portugal for 3 days on his stag. God knows how either of us will cope or if we will even be able to go πŸ˜” I feel defeated πŸ’” #ileostomy #greatormondstreet #autism #deafblind #boweldysmotility #postsurgeryproblems

My tummy medication literally makes me feel SO gross! πŸ˜©πŸ˜­πŸ’© Imagine the worst hangover ~ that horrible nauseating feeling, you literally feel disgusting & like its seeping from your pores, despite showering! πŸ˜ͺ ...& you have to take medication & feel that way at least once or twice a week! πŸ’« Not intentionally having a pity party tonight ~ just wish my #colon would start behaving, so I didn't have to take medication & feel this way! 😷😒😭πŸ˜ͺπŸ˜©πŸ’© #tummytroubles #ouch #yucky #boweldysmotility #stomachproblems #stomachproblemssuck #digestiveissues #gastroenterology #bowelpreparation #medication #invisibleillness #notsoinvisibletoday #intestinalfailure #ouch #chronicpain #chronicillness #tiredbunny #centralline #hickmanline #struggles #toughtimes #toughdays

So, my tummy is super #poorly & I'm feeling absolute πŸ’©!!! πŸ˜­πŸ™„ Apparently the X-ray shows I have a massive blockage so I'm currently trying to stay out of #hospital! πŸ˜­πŸ’– Need to get better quickly as next weekend is the first wedding of the year, (yay!) & my birthday! πŸ˜ŠπŸ’•πŸ¦„ But today, I've managed to put some #makeup on today & have got dressed in actual clothes, so that's a start, isn't it!?... ⭐️ #tummytroubles #boweldysmotility #invisibleillness #intestinalfailure #ouch #chronicillness #chronicpain #smile #makeuplife #makeuplover #life πŸ’– Amazing #glasses from @pretloves πŸ’– #glassesgirlie #glassesswag #amazing #love #opticians

Today has been bittersweet πŸ’« tomorrow is Day 1 on this new journey, its daunting, it's new but I got this πŸ’˜πŸ’ͺ🏼 #keepfighting #warrior #chronicillness #GP #boweldysmotility #gastrointestinalproblems #dysfunction #proudofmyself #igotthis #firststeps #day1 #IBD

Overwhelmed by the love following my #feedingtube collage, for #feedingtubeawarenessweek πŸ’– Having a feeding tube really isn't all bad ~ & we're very lucky that the #medicalworld has advanced enough in such a way, to allow us to have feeding tubes as an option! πŸ’• It's funny though, when you can eat 'normally' you really do take it for granted ~ & when you can't, you suddenly realise just how important #food is, it's such a social thing & can be a source of pure enjoyment! So, never take it for granted if you're able to enjoy food, pain free & without any problems! 😊#tubefeeding #NGtube #NJtube #jtube #jejunostomytube #food #vitamins #minerals #lucky #health #bowelproblems #boweldysmotility #tummytroubles #nationalfeedingtubeweek #parenteralnutrition #PN #hospital #hospitallifeπŸ₯ #doctors #nurses #dietitianapproved #intestinalfailure #feedingthroughmyheart #awareness #feedingtubeawarenessweek #tubie

It's #nationalfeedingtubeweek ~ tubes, whether they be NG, NJ's J tubes or a #centralline, they all save lives & help to provide adequate #nutrition & enough nourishment for your body! πŸ’– I feel totally blessed to be on #TPN, feeding via a central line, which goes into my heart - which in my case, is a #hickmanline, after failed attempts at tube feeding! πŸ’• It's certainly saved my life in more ways that one! 😊😊😊 #tubefeeding #NGtube #NJtube #jtube #jejunostomytube #food #vitamins #minerals #lucky #health #bowelproblems #boweldysmotility #tummytroubles #nationalfeedingtubeweek #parenteralnutrition #PN #hospital #hospitallifeπŸ₯ #doctors #nurses #dietitianapproved #intestinalfailure #feedingthroughmyheart #awareness #feedingtubeawarenessweek #tubie

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