How did we get our awareness day for #atypicalhus? Thanks to our good friends ASHUA - Síndrome Hemolítico Urémico Atípico for sharing the background and all the incredible
work they do!
September 24, 2015 was selected as the inaugural date for the first aHUS Awareness Day because during this same week 60 years ago the term Haemolytic Uremic Syndrome first appeared in medical literature. HUS was given its name by Conrad von Gasser, when he and his research team described in an article for a Swiss clinical publication the illness they had been studying which caused blood clotting, anemia and kidney failure.
On 24 September, ASHUA and other international aHUS community invite all stakeholders in aHUS community to join together and aid visibility to highlight information, insights, and issues specific to aHUS.
#day4 #aHUSawareness #raredisease