#andgotlost

MOST RECENT

Had the best time at the Houses of Parliament last night, celebrating 50 years of the Brittle Bone Society, and presenting some extremely well-deserved awards to the NHS centres of excellence for treatment of, and research into, osteogenesis imperfecta, or OI. It was such an honour to attend, and brilliant to see so many familiar faces, particularly the doctors representing each centre or organisation being recognised, many of whom have dedicated their entire careers to helping people with OI not just to live, but to thrive, achieve and aspire.
The event was a great success but, as ever, the real highlight came after we’d left the grandeur of Westminster, when a gaggle of us pushed through the crowds of ogling tourists for a pint on the Southbank. There are no words for the feeling that comes from getting to spend time with my wonderful, crazy, beautiful OI family; the feeling of total comfort and familiarity; the feeling of being, for a few hours, totally ‘normal’. Thank you so much to Lord Shinkwin and the Houses of Parliament for hosting us, and to the @brittlebonesociety for everything 💛
#sorrywedroveintoyourwalls #andcausedhavoc #andgotlost #brittlebonesociety #bbsatparliament #bbs
#50thanniversary #osteogenesisimperfecta #oi #brittlebones #lovelylittlepeople #pals #team #squad #rudy #paediatrics #metabolicbonedisease #housesofparliament #houseofcommons #westminsterpalace #joy #beauty #wishboneday #london #disability #disabilitypride #wheelchairlife #dwarflife

we went to the desert! #andgotlost #anzoborregostatepark #hiking

Homeward bound from this beaut of a view today #minimoon #pitlochry #weclimbedthathill #andgotlost

Today we went for a walk in the beautiful Devil's Dyke and ended up in a field full of cows 🐮 @luketorres91 #offtracks #wewentwild #andgotlost #realpros

Our first successful hike on our first day in cusco! It certainly tested us with the altitude, it sat 3800m above sea level and is a much smaller version of the one in Rio! This one is Cristo Blanco #wehikedit #andgotlost #butwefoundit #2hourslater #cusco #peru #cristoblanco #minichristtheredeemer #exploring #travel #abovecusco #altitude #altitudetraining #fitness #activeescape #hike #fitfam #healthy #happy #earlymorningadventure

Got a little lost while we're at it 😁 👭👣
#weclimedamountain 💪 #andgotlost 👅

Should have had our mountain goat socks on today.... #ormaybetheyweresheep #wescaledacliff #andgotlost #adventuredtoohard

🌿🌿🌿 #goneforahike #andgotlost

Shaena was the only one that knew we were lost...😂 her face says it all. #thattimeweclimbedamountain #andgotlost #wegetitfromourfather #sisterweekend @lilcheerioh52 #tymorpark

Day 59: So if you google "Lost in Switzerland", at least when you're in Switzerland, this is the first image that pops up. Which is fitting because it's a pretty accurate description of how I felt missing the station I was supposed to stop at and zooming 20 kilometers south on the last train on a Sunday night. Thank goodness for kind Swiss men who pick up late night hitchhikers #trippingthrougheurope #nopicturesbecauseitraveledallday #andgotlost

Just don't look at the rocks, they ruined everything #reflection #NB #ExploreNB #IExplored #AndGotLost #BetterLuckNextTime #JDIfitbit

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