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#alsfindacure

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Because ALS has taken her voice away my Mom had a special card for my Dad for his birthday.❤️ #preciousmoments #parentslove #alsfindacure

Visiting My Bestie Heidi, with J.P. New flavor I found... 😀 She loves her Talenti Raspberry Chocolate Chip Gelato🍦 so much that it's now officially hidden in the freezer!!😂😂😂
#FuckALS #ALSfindacure #ALSawareness #ALS #FindAcureForALS

you ask
why i perch
on a jade green mountain?
I laugh
but say nothing
my heart
free
like a peach blossom
in the flowing stream
going by
in the depths
in another World
not among men. -Li Po

Happy Birthday, Mommy. I miss you.
#alsfindacure

https://alsnewstoday.com/2017/04/19/project-als-announces-dont-talk-a-thon-fundraiser/?utm_source=ALS+News&utm_campaign=56ac217d55-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_0593028b75-56ac217d55-72058133
#donttalkathon2017 #projectals #bulbarals #als #alsfindacure #alsfoundation #alsfitnessjourney

Had a great time at the ALS WalkStrong event today. It means so much to have the support of the community and even more to have the support of family. :)
#als #alswalk #alswalk2017 #alswalkstrong #alswalkstrong2017 #alssucks #alssupport #nowhiteflags #teamgleason #communitysupport #riverview #moncton #family #familysupport #alsfindacure #alsfighter #findacureforals #alsmonth #alssocietyofnbandns

So we moved into our new house last week and during cleaning up we found a secret rose garden under our stairs with only one surviving bud. I didn't get a photo of it when we found it as it was all pretty dishevelled but this is the last three days of its life. Somehow I believe this my big sister showing me to be strong and that she's here with me always in spirit ❤ #sisterstrength #imissyousis #familyneverdies #roses #gardeninglife #wasyourfavouriterosetoo #meaningbehindmoments #holdyourheadhighandcarryon #bestfriend #onlyonewhocared #lougehrigsdisease #alsfindacure #cureals #icantwaittobewithyouagain

Ava and her Grammy ❤️ #avadolly #grammy ##ALSfindacure

This is for all the women out there that are struggling today. My Mom has been the biggest influence in my life and I want to be the same for my kids. As all of her physical strength has left her body she still has a strong, fighting spirit that keeps going. Love you Mom ❤️ #strong #girlstrong #ALSfindacure #endALS #kissmyALS #fuckALS #everyAugustuntilacure #nowhiteflags #walkforJulie #avadolly 💕

MOST RECENT

Had a great time at the ALS WalkStrong event today. It means so much to have the support of the community and even more to have the support of family. :)
#als #alswalk #alswalk2017 #alswalkstrong #alswalkstrong2017 #alssucks #alssupport #nowhiteflags #teamgleason #communitysupport #riverview #moncton #family #familysupport #alsfindacure #alsfighter #findacureforals #alsmonth #alssocietyofnbandns

This is what awesome looks like, because I am in awe of these two. A husband, father and educator navigating #ALS with grit and grace and a wife and mother who steps up and gets a standing ovation. Blessed to share your courage and wisdom in #greenwichmag @elizaniblock #giffchangemaker #endals #alsfindacure #giff2017 @greenwichfilm #heroes

So we moved into our new house last week and during cleaning up we found a secret rose garden under our stairs with only one surviving bud. I didn't get a photo of it when we found it as it was all pretty dishevelled but this is the last three days of its life. Somehow I believe this my big sister showing me to be strong and that she's here with me always in spirit ❤ #sisterstrength #imissyousis #familyneverdies #roses #gardeninglife #wasyourfavouriterosetoo #meaningbehindmoments #holdyourheadhighandcarryon #bestfriend #onlyonewhocared #lougehrigsdisease #alsfindacure #cureals #icantwaittobewithyouagain

In February this year exactly 2 weeks shy of her 37th birthday I lost my big sister to #als So please believe me when I say cherish it, all of life and it's precious little "moments" cause you never truly know just how short it may be ❤ #bnemoments @blissneso I thank you guys @eso_28 so much for "off the grid" after all that's happened it put me back on the grid and a daily listen is the thread keeping me together through it all 😘 #blissneso #offthegridtour2017 #alsfindacure #familyaffair #loveyoursister #lougehrigsdisease

The month of May is ALS awareness month. Recently, my rock, my best friend, my biggest supporter... my mom was diagnosed with Amyotrophic Lateral Sclerosis (ALS), or better known as Lou Gehrig's disease. ALS is a motor neuron disease that can affect anyone. Never in a million years though did I expect something like this to impact someone so close to me. This post is to help raise awareness of ALS and to possibly raise support to help find a cure for it.

Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease is a progressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately, respiratory failure. ALS attacks certain cells in the brain and the spinal cord needed to keep our muscles moving. People with ALS only live 2-5 years after their first signs of disease. Early signs and symptoms of a ALS include muscle cramps and twitching, weakness in the extremities and difficulty speaking or swallowing. Eventually, it leads to the inability to move any part of your body, to speak or communicate with anything but your eyes, and will stop you from being able to breath on your own. Unfortunately, there is currently no cure for this disease.

My mom has been very strong throughout this process. She is still the rock of this family and makes sure we don't lose faith even in situations such as this. A common phrase that can be heard is "Faith > fear." We cannot let our faith be overcome by any fear that we may have for the future. We need to trust God and have FAITH that He has a plan for my mom to do wonderful things and reach many people while she is still with us.
One of the biggest ways that you can support is by donating money the ALS foundation. Your donations with help provide them with resources to continue to look for a cure for ALS. If you would like me to send you the link to donate just let me know. Thank you for your support!

#ALS #alsfindacure #alsawareness #alsfoundation #faithoverfear

https://alsnewstoday.com/2017/04/19/project-als-announces-dont-talk-a-thon-fundraiser/?utm_source=ALS+News&utm_campaign=56ac217d55-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_0593028b75-56ac217d55-72058133
#donttalkathon2017 #projectals #bulbarals #als #alsfindacure #alsfoundation #alsfitnessjourney

For my big sister ❤❤ love you jenny always with us xx #ALS #alsaustralia #alsfindacure #lougehrigsdisease

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