#alsfindacure

122 posts

TOP POSTS

The month of May is ALS awareness month. Recently, my rock, my best friend, my biggest supporter... my mom was diagnosed with Amyotrophic Lateral Sclerosis (ALS), or better known as Lou Gehrig's disease. ALS is a motor neuron disease that can affect anyone. Never in a million years though did I expect something like this to impact someone so close to me. This post is to help raise awareness of ALS and to possibly raise support to help find a cure for it.

Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease is a progressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately, respiratory failure. ALS attacks certain cells in the brain and the spinal cord needed to keep our muscles moving. People with ALS only live 2-5 years after their first signs of disease. Early signs and symptoms of a ALS include muscle cramps and twitching, weakness in the extremities and difficulty speaking or swallowing. Eventually, it leads to the inability to move any part of your body, to speak or communicate with anything but your eyes, and will stop you from being able to breath on your own. Unfortunately, there is currently no cure for this disease.

My mom has been very strong throughout this process. She is still the rock of this family and makes sure we don't lose faith even in situations such as this. A common phrase that can be heard is "Faith > fear." We cannot let our faith be overcome by any fear that we may have for the future. We need to trust God and have FAITH that He has a plan for my mom to do wonderful things and reach many people while she is still with us.
One of the biggest ways that you can support is by donating money the ALS foundation. Your donations with help provide them with resources to continue to look for a cure for ALS. If you would like me to send you the link to donate just let me know. Thank you for your support!

#ALS #alsfindacure #alsawareness #alsfoundation #faithoverfear

Because ALS has taken her voice away my Mom had a special card for my Dad for his birthday.โค๏ธ #preciousmoments #parentslove #alsfindacure

Visiting My Bestie Heidi, with J.P. New flavor I found... ๐Ÿ˜€ She loves her Talenti Raspberry Chocolate Chip Gelato๐Ÿฆ so much that it's now officially hidden in the freezer!!๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚
#FuckALS #ALSfindacure #ALSawareness #ALS #FindAcureForALS

you ask
why i perch
on a jade green mountain?
I laugh
but say nothing
my heart
free
like a peach blossom
in the flowing stream
going by
in the depths
in another World
not among men. -Li Po

Happy Birthday, Mommy. I miss you.
#alsfindacure

https://alsnewstoday.com/2017/04/19/project-als-announces-dont-talk-a-thon-fundraiser/?utm_source=ALS+News&utm_campaign=56ac217d55-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_0593028b75-56ac217d55-72058133
#donttalkathon2017 #projectals #bulbarals #als #alsfindacure #alsfoundation #alsfitnessjourney

Ava and her Grammy โค๏ธ #avadolly #grammy ##ALSfindacure

Sorry haven't been very active over the last few months it's been very trying times for myself and my family. After finishing up my study in late novemeber I went to caring for my older sister who had ALS, pretty much full time and then Christmas, unfortunately throughout January her ALS progressed quickly and on the 1.2.17 it was time to say goodbye to my big sister, my first friend and my best friend. It's been a very emotional and physically trying time for myself and my family and I have only recently started to present myself of my social media accounts again and go back to training and being active. I appreciate all msgs of condolenses, support and love through this tough time and will try and get back to posting more workouts, motivation pics and more of my journey for you guys to follow ๐Ÿ˜Š #alsfindacure #thankyouall #bigsister #bestfriend #dustyourselfoffandtryagain #timetoremotivate #beastmodeengage

Maybe it's moments like these where in one glance I can summarize a thousand memories, a thousand emotions so close to my heart. Remembering Popa Joe today with a smile... I know you're still sitting on the dock of the bay watchin' time roll away with a smile too ๐ŸŒ… @mcguiretonia @natmcguire @mcguirekat #foreverinourhearts #ALS #alsfindacure #supportALS

MOST RECENT

In February this year exactly 2 weeks shy of her 37th birthday I lost my big sister to #als So please believe me when I say cherish it, all of life and it's precious little "moments" cause you never truly know just how short it may be โค #bnemoments @blissneso I thank you guys @eso_28 so much for "off the grid" after all that's happened it put me back on the grid and a daily listen is the thread keeping me together through it all ๐Ÿ˜˜ #blissneso #offthegridtour2017 #alsfindacure #familyaffair #loveyoursister #lougehrigsdisease

The month of May is ALS awareness month. Recently, my rock, my best friend, my biggest supporter... my mom was diagnosed with Amyotrophic Lateral Sclerosis (ALS), or better known as Lou Gehrig's disease. ALS is a motor neuron disease that can affect anyone. Never in a million years though did I expect something like this to impact someone so close to me. This post is to help raise awareness of ALS and to possibly raise support to help find a cure for it.

Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease is a progressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately, respiratory failure. ALS attacks certain cells in the brain and the spinal cord needed to keep our muscles moving. People with ALS only live 2-5 years after their first signs of disease. Early signs and symptoms of a ALS include muscle cramps and twitching, weakness in the extremities and difficulty speaking or swallowing. Eventually, it leads to the inability to move any part of your body, to speak or communicate with anything but your eyes, and will stop you from being able to breath on your own. Unfortunately, there is currently no cure for this disease.

My mom has been very strong throughout this process. She is still the rock of this family and makes sure we don't lose faith even in situations such as this. A common phrase that can be heard is "Faith > fear." We cannot let our faith be overcome by any fear that we may have for the future. We need to trust God and have FAITH that He has a plan for my mom to do wonderful things and reach many people while she is still with us.
One of the biggest ways that you can support is by donating money the ALS foundation. Your donations with help provide them with resources to continue to look for a cure for ALS. If you would like me to send you the link to donate just let me know. Thank you for your support!

#ALS #alsfindacure #alsawareness #alsfoundation #faithoverfear

https://alsnewstoday.com/2017/04/19/project-als-announces-dont-talk-a-thon-fundraiser/?utm_source=ALS+News&utm_campaign=56ac217d55-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_0593028b75-56ac217d55-72058133
#donttalkathon2017 #projectals #bulbarals #als #alsfindacure #alsfoundation #alsfitnessjourney

For my big sister โคโค love you jenny always with us xx #ALS #alsaustralia #alsfindacure #lougehrigsdisease

Sorry haven't been very active over the last few months it's been very trying times for myself and my family. After finishing up my study in late novemeber I went to caring for my older sister who had ALS, pretty much full time and then Christmas, unfortunately throughout January her ALS progressed quickly and on the 1.2.17 it was time to say goodbye to my big sister, my first friend and my best friend. It's been a very emotional and physically trying time for myself and my family and I have only recently started to present myself of my social media accounts again and go back to training and being active. I appreciate all msgs of condolenses, support and love through this tough time and will try and get back to posting more workouts, motivation pics and more of my journey for you guys to follow ๐Ÿ˜Š #alsfindacure #thankyouall #bigsister #bestfriend #dustyourselfoffandtryagain #timetoremotivate #beastmodeengage

Someday we are gonna leave this world, and we are gonna go together where the pain will be something nonexistent and you gonna walk and live and breath and eat and move by youself like the independent woman that you've always been... Your pain is my pain ,your tears are my tears, nobody will understand better your sorrow cause I'm the only one that have seen you going thru hell but, hell is just the beginning to set us free...Love you mom with all my heart! ALWAYS.. #iloveyoumom #myhero #loveyoumorethanlife #mymommyhero #mymommylife #sophie #coco #lana #alswontstopus #alssucks #alscondition #lougehrigsdisease #stupidicebucketchallenge #alsfindacure #mypuppiesaremylife #dogsarebetterthanpeople #ilovemypuppies #imwithyouforever

Visiting My Bestie Heidi, with J.P. New flavor I found... ๐Ÿ˜€ She loves her Talenti Raspberry Chocolate Chip Gelato๐Ÿฆ so much that it's now officially hidden in the freezer!!๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚
#FuckALS #ALSfindacure #ALSawareness #ALS #FindAcureForALS

Most Popular Instagram Hashtags