❤️A L S❤️
ALS or amyotrophic lateral sclerosis is a disease which involves voluntary muscles. Over time, the patient loses the ability to use their muscles including those used to eat, swallow, breath, talk and walk. I have been keeping you updated on my friend @ihatestevemattforever since he was diagnosed with ALS almost 2 years ago. His symptoms started at only 40 years old. He started with non-specific hoarseness of his voice and minor leg weakness. After having multiple work ups through ENT/GI it was determined the vocal cords or reflux were not the cause of the hoarseness. He was referred to neurology because of the symptoms and because his dad had ALS and died at just 36 years old. ALS is genetic in only 10% of cases, so his doctors were optimistic that Steve may not have ALS, but after many studies it was determined he did indeed have ALS. Since I first introduced you to Steve he has remained in great spirits but his health has declined. He now has a feeding tube which he has to get 100% of his nutrition from because he can not chew or swallow. He also is intermittently in a wheelchair because of his extreme leg weakness.
ALS is a devastating diagnosis, not only for The Matt's, but every family that has this diagnosis. There is no cure and little interventions to slow or stop the process of the disease, so much more research needs to be done.
On May 25th Will BYOB in Philadelphia is holding a benefit dinner. This includes a 4 course meal for $200. The cost of the dinner is going towards a special dinner being held on May 31st for ALS patients and their families. Most ALS patients can not chew solid food, so the chef at Will BYOB will be preparing a special gourmet puréed meal just for them. A portion of the proceeds will also go to University of Pennsylvania towards ALS research. Please go to www.dinnerwithpals.com for more information and thank you for your continued support.