#ZofranToTheRescue

MOST RECENT

Thankful for these special ladies who threw a hell of a bachelorette party! #overserved #irememberwhenihadanasslikethat #zofrantotherescue

So this happened today. My pharmacy gave me a refill in a ziploc bag. So weird.

#lupus #lupusawareness #zofran #wellokthen #lupusproblems #pharmacy #lupuslife #zofrantotherescue

Happy “Recital Day”! Alternatively known as “The Worst Stomach Bug I Have Ever Seen Requiring Medication to Stop the Vomiting But It Worked Like a Miracle and Even Tho She Is Still Too Worn Out to Dance In the Recital I’m Just Grateful to Have my Happy Girl Back” day. #zofrantotherescue #planb #dancemom Also, Frank and I had a 20 min date - we went to the grocery store to figure out and extra dinner we hadn’t planned on, while she slept and grandparents kept an ear out for her. We make the best of things.

The views were worth driving on a road made of carsickness and near death experiences. #zofrantotherescue #hana #hawaii2018 #banyantrees

Dear Zofran.. I'm going to need you to DO YOUR JOB, FFS. The nausea is so real today. On the brighter side of things, benlysta is finally sorted out and I should have the delivery tomorrow. 🤞🤞
#lupus #sle #zofrantotherescue #hopefully #lupusproblems #ididntchoosethesicklife #thesicklifechoseme

Soup w crackers, endless grey’s anatomy, Tamiflu, and lots of Zofran have been my best friends since Monday. I have been glued to my bed since. Influenza A is no joke. The doctor didn’t believe I could have it, being that so called, “flu” season has somewhat ended. It almost feels like my body was hit by a semi. There’s no joke when they say it’ll hit you so abruptly. #damnyouflu #influenzaa #goaway #itsmay #whyamialwayssickthough #zofrantotherescue #everythingfuckinghurts

This has not been the Mother’s Day I had planned. While swimming yesterday, this little guy decided to drink half the pool water! 🤦🏻‍♀️ Needless to say, he started vomiting and having diarrhea so we spent the late evening into wee morning hours at the ER. He’s doing better this evening! 👏 Still has a slight fever though. Even though my little guy was sick, it’s still been a good day at home with my boys! #zofrantotherescue #mothersday2018 #idontdovomit #mommastired

Back at it....this is paradise but the post Lyme maintenance just sucks! #zofran #zofrantotherescue #lymedisease #lymediseaseawareness

Feeling like this is going to be a long night😞I’m really hoping it’s coincidental that I’m just feeling off tonight and not the start of some nasty side effects of my new medication💊I felt “okay-ish” earlier on but once I’ve laid down my nausea his gone into full swing along with stomach looking like a balloon🎈. I’ve taken an extra lot of my nausea meds and buscopan plus a sleeping tablet to try and get me settled. I really do hope that this medication helps me and it’s worthwhile.
I honestly didn’t think I would suffer too much but I probably spoke too soon🤦🏻‍♀️. As usual got my trusty @lush twilight spray and sleepy lotion and @peteralexanderofficial wheat bag to help as well. Here’s hoping I’m feeling better by morning and things settle. Keeping a positive attitude best I can🙌🏻. I hope everyone else is having a lovely Saturday night whatever you may be doing and my fellow spoonies aren’t suffering too much. #longnightahead#coincidence#idontknowwhy#nausea#pain#chronicillness#chronicpain#chronicillnesswarrior#painwarrior#medications#zofran#zofrantotherescue#advil#resotrans#gastroparesis#gastroparesissucks#mylife#notsofun#makemebetter#hopeful#tryingtobepositive#keepfighting#saturdaynight#lush#sleepy#twilightspray#obsessedwithlush#lemonadehelps#wheatbag#peteralexander

We’re all back to normal this morning 😊 #throwupsucks #zofrantotherescue

I haven’t done a proper update in a while but this was from Wednesday when I was re-admitted for my 2nd part of my double sympathetic nerve block💉. Things have been rather average 😤and I’ve just been plodding along these past couple of weeks and managing work best I can. As soon as I’m home I’m totally zonked and end up sleeping for hours before I can even get things done around the place. I’ve had numerous appointments with doctors and scans done to see where things are at with my GIT and I’ve still got more to go yet. As usual things are never straight forward when I have my procedures done as well. Lots of vomiting🤮very low blood pressure & a fast HR plus multiple blown IV’s🙄 but we got there in the end. I was discharged from hospital yesterday and just been sleeping a lot😴I also had an appt with my new GI so I was allowed “gate leave” on Thursday. The temptation to not go back to hospital was difficult😂. So happy with my new GI though she’s amazing and so glad that I have found someone that understands my conditions. Hoping that this last procedure will get me back on track for a while. In the mean time I’m going to try get back to my regular posting on here. Hope everyone has had a lovely weekend😊. #keepfighting#health#update#donttakehealthforgranted#procedure#painprocedure#anaesthetic#sleeptime#gastroparesis#gastroparesiswarrior#chronicpainwarrior#dysmotility#exhausted#chronichealthproblems#invisibleillness#nauseasucks#IV#hospital#hospitallife#spoonie#spoonieproblems#spooniestrong#doctors#cyclizine#zofrantotherescue#keepfighting#nerveblock#nerveablation#nervedamage#sundayupdate

I'm starting my morning off with coffee☕ then doing some light chores. It's not glamorous but it has to be done. Today is a high pain day and a high symptom day so after my to do list today I'll be resting😴. I had painsomnia 😩all night and constant ostomy problems so I'm hoping for naps later but I know I'll wake up worse if I do. #coffee #chores #adultingwithchronicillness #adulting #ehlersdanlossyndrome #painsomnia #chronicillnessawareness #ostomyawareness #ostomy #highpainday #nausea #zofrantotherescue #nap #spoonie #nospoons #tryingtobeoptimistic #chronicpainprincess #gettingthingsdone #tryingtoliveabeautifullife #ehlersdanlosgrrrls #disabledandcute #disabledbabe

These babies have been my saviour this pregnancy. On the countdown now and hoping very optimistically this may be the last box I have to buy... I should have kept count of how many prescriptions my poor doctor has had to give me... I just want to be able to eat .
#notevenfluffymedicated #hgcansuckit #nearlythere #zofrantotherescue

First time seeing my battle wounds... nearly passed out (my usual response to medical stuff), but I’d preloaded with Zofran before my appointment so a comforting hand from my boyfriend kept me afloat. Overall I’m really happy with where I’m at. I had expected more bruising. I do have numbness (expected) that made me pretty woozy. I have total extension already though and can bend to 35 degrees. Eager to start my newly assigned exercises and improve my ROM as my graft continues to heel.

This kid... giving us a run for our money. Thrown up about 40 times today. 😷 #zofrantotherescue

After a solid start, it's definitely been a zofran and ensure kind of day.

Meal replacement shakes have become mu bread and butter pretty quickly, but me and old vanilla ensure are becoming fast friends this week.

GP folks: Tips for the new kid on shake options? ❓❓ [Image description: A vanilla original ensure and zofran dissolvable tablet.] #chronicillness #gastroparesisdiet #gastroparesis #motilitydisorder #sickgirl #ondansetron #zofrantotherescue #ensure #diet #health #wellness #mealreplacement #shake #drinkyourveggies

Well I tried my best to avoid the inevitable. 5 days of practically no food intake got the better of me. I somehow managed to go to work for 2hours this morning but then I caved and spoke to my specialists and all agreed hospital was the best place for me. I have a bit of a dilated section in my bowel along with bad faecal blockage 🙄 sorry TMI but hey it happens. I’m waiting to see my pain Dr in the morning and I’m hoping he can refer me to a new gastroenterologist as I’ve just found out mine is very unwell himself which is so sad 😞 he was amazing! I was seen by the emergency gastro and my god I’ve never experienced such rudeness and arrogance in my life from a Dr. basically dismissed all of health problems and how my existing team treat things and had the most revolting bedside manner I’ve ever come a crossed. I was so upset but I’m not going to let him get the better of me. I’m beyond exhausted and just want to get better so fingers crossed improvements begin soon. I’m on the neurosurgey ward this time and at least my nurses are amazing! I’ve known them well over 4 years and are so caring. Will keep you all updated once I know more and after I see my wonderful pain dr in the morning. IV fluids, pain relief, picoprep all on board. Goodnight world and I hope everyone is doing well as can be. Keep fighting! #2ndhome#admitted#iavoidedit#sickgirlprobs#gastroparesis#nausea#ivfluids#chronicillnesslife#chronicpain#flareup#zofrantotherescue#painrelief#hospital#hospitallife#canibebetternow#chronicillnesswarrior#spoonie#spooniestrong#keepfighting#mylife#chronicloveclub

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