#ZebraStrong

MOST RECENT

My specialist lives 4 hours out of town, we have recently discovered ridesource and can have a taxi take us for free! It's been so amazing since both my mom and I are always so fatigued and exhausted, we always have to nap after our appointment before driving home. It has been such a blessing to have someone else drive us! My favorite part about this far trip is this waterfall, it's less than a two-minute walk from the parking lot so we can always get to it even when we're hurting!!! It. Was. SO. Beautiful today. Took my breath away like always 💫💜
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#mastcellactivationdisorder #mastcellactivationsyndrome  #mcad #mcas #ehlersdanlossyndrome #eds #heds #hypermobility #stretchyjoints #swelling #inflammation #collagendefect #gastroparesis #tachycardia #posturalorthostatictachycardiasyndrome #pots #syncope #pain #chronicpain #chronicfatigue #zebrastrong #edssurvivor #hydrationhelps!

•I feel like I am disappearing before my own eyes. I’m very anxious to get my gastric emptying study done and whatever else they have to do to figure out why I can’t eat food. The waiting game is the worst... especially while being incredibly unwell, not eating, and feeling so sick every day.
Is anyone else going through this? ✨💛
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#chronicillness #chronicpain #raredisease #disabledandcute #cripplepunk #eds #heds #hypermobileeds #ehlersdanlos #ehlersdanlossyndrome #pots #IBD #IBS #dysautonomia #hypotension #syncope #fainting #mcas #mcad #mastcell #mastcellactivationdisorder #mastcellactivationsyndrome #spoonie #spooniewarrior #zebra #zebrastrong #bendyaf #darkcomedy

Gorgeous view looking across the golf course during my ride this evening! The mosquitoes are now all happily fed and I need a blood transfusion, but aside from that, great ride! #dopeytraining

Oh I wonder what I could be filming for this weeks video... that’s right! A rough template for how to make a scar using only makeup products. No special effects!! Something easy to create at home for the spooky season👻☠️ let me know what else you’d like to see!
#eds#pots#posturalorthostatictachycardiasyndrome#ehlersdanlossyndrome#chronicillness#zebrastrong#spoonie#postie#mobilityaids#disabilityblogger

I am having a difficult time and I need your help.
I am in bad shape right now. I hurt everywhere. I fell. I am fatigued with terrible brain fog.
And I’m under a great deal of stress trying to get my fundraiser for my surgery to take off. Being stressed is a HUGE trigger for my illnesses. On a good day, stress will make me bedridden with a fibromyalgia flare - and these have not been good days. This is where you come in.
If everyone would be so kind as to post my fundraiser on their social media pages(Facebook, Instagram, Twitter, etc), share it with groups you are in, ask your coworkers... just please help me share it while i am out of commission- it would help me so much! Share it everywhere- #spoonie boards, #chronicillness support groups, #animalrescue groups (where my heart is), #prayer pages, #buddhist #sangha pages, even amongst the #spnfamily 🖤. Please take a moment to show some #lovingkindness to a fellow human in need.
Thank you all so much in advance for your understanding, compassion and support. Link in bio/profile. Or here : https://www.gofundme.com/endo-sucks

Love to you all! ♥️💛💜🙏🦓
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#invisibleillnessawareness #invisibleillness #chronicpain #ehlersdanlossyndrome #myalgicencephalomyelitis #endometriosis #support #alwayskeepfighting #pleasehelp #notalldisabilitiesarevisible #butyoudontlooksick #millionsmissing #zebrastrong #supernatural @misha @jaredpadalecki @jensenackles @dicksp8jr @ruthie_connell @alainahuffman @alancummingsnaps @americanendofendoproject @endostrong @endometriosisandme @robenedict @robertdowneyjr @susansarandon @fibromyalgiaawareness @uglyshyla @jeffreydeanmorgan @jefferyscott1019 @iansomerhalder @theellenshow @therealve @therealdebbieallen @therealelvira @realleadelaria @cw_supernatural @spntapeball @raygunsandrust @rubyrose @whododatlikedat @chronicfatigueawareness @theunchargeables #kindness #payitforward @gish

Så är det. EDS syns inte och vi är oerhört bra på att dölja smärtan.
På gott och ont.
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Regrann from @ehlers.danlos - Not all pain is visible #myedshurts
#EhlersDanlos #ChronicPain #hypermobile #hypermobility #EhlersDanlosSyndromes #pain #EDS #EDSAwareness #ChronicIllness #Spoonie #ZebraStrong #DazzleTogether #Zebra #hEDS #vEDS #cEDS #HSD - #regrann

Abrir el corazón...
«De la abundancia del corazón habla la boca»
Lucas 6:45
✨Para decir con el alma que te amo, hay que sanar por dentro. Para decir de corazón que te quiero, hay que sacar la amargura del alma. Así podremos amar de verdad, expresando lo que sentimos de corazón, con dulces palabras, todo el tiempo. Pronunciando bendiciones, diciendo frases cariñosas, sacando amor de la abundancia de nuestro corazón.
He aquí algunos consejos de la Palabra para sanar el corazón herido: 💫1. Lucas 6:45
El hombre bueno dice cosas buenas porque el bien está en su corazón, y el hombre malo dice cosas malas porque el mal está en su corazón. Pues de lo que abunda en su corazón habla su boca.
💫2. Ezequiel 36:26
Pondré en ustedes un corazón nuevo y un espíritu nuevo. Quitaré de ustedes ese corazón duro como la piedra y les pondré un corazón dócil.
💫3. Salmos 147:3
Él sana a los que tienen roto el corazón,
y les venda las heridas.
#yogaforthesoul #yoga #healing #heart #cvid #zebrastrong #strong #yogaeveryblessedday #yogagirl #yogaforlife #yogainspiration

The vocals for Dusty's current work in process.

Which name do you like best for this song - "Cheezy" or "Undesirable"? Leave your vote in the comments! - - -

Waiting For January is a new indie rock band from Vancouver, WA. The lead vocalist and songwriter Dusty is a young woman with an unusually deep, strong voice.
Their music is influenced by heavy metal, alternative, and punk, with some of Dusty's favorite bands being Five Finger Death Punch, Three Days Grace, Papa Roach, Linkin Park, Theory Of A Deadman, and 3 Doors Down.
Dusty's lyrics are hard-hitting with deep personal meaning, often dealing with difficult topics like death, abuse, mental illness, and the neverending search for happiness.

Waiting For January is still looking for a few additional band members! Interested local musicians can check out the band's Facebook page to learn how to audition.

i had an appointment & unfortunately learned the end of my colon is quite stretched. taking care of it is going to take time & for rn will take my independence, and removal of the end may be something we consider in the future. i’ll be going to the hospital daily and working with my dr and nurse to figure out details this coming week. but I’m very grateful for more answers and a plan 🙌 Having cEDS, my complications can be quite different than other types, but I’m sure there are some of you out there feeling the same way. I was very reluctant to share this “taboo” subject, but I want anyone else to know they aren’t alone in their battles 💕

Don’t let other people define you. Be yourself & be proud of it.💪🏼💙

A good support system is so important when shit goes down. And this guy right here, is amazing. He's seen me in my worst flare ups, at my best, and has not turned away once. He makes the journey to my school to see me when it's been a rough day, he makes sure I feel alright, and does whatever he can to make me feel better. He is my rock❤️ @fb6_scooter


#myrock#bestboyfriendever#hlersdanlos#ehlersdanlossyndrome#potssyndrome#dysautonomia#chronicillness#spoonie#spoonielife#zebrastrong#lgbt#panromantic#demisexual#genderfluid#makeup#smallyoutuber#smallinfluencer#dysautonomiaawareness#eds#edsawareness#littlebopeep

Y'all. I made some BOMB soup with my new crock pot!! It can be so frustrating when our diet is so limited, my friend just gave me this crock pot so I chopped up all the foods I can eat and threw them in there!!!
#potatoes #carrots #broccoli #onion #garlic #saltandpepper #chickenbroth 😍😍😍😍😍😍😍
I think I'm going to be eating soup ALL. WINTER. 😍😁🤘🤘
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#mastcellactivationdisorder #mastcellactivationsyndrome  #mcad #mcas #ehlersdanlossyndrome #eds #heds #hypermobility #stretchyjoints #swelling #inflammation #collagendefect #gastroparesis #tachycardia #posturalorthostatictachycardiasyndrome #pots #syncope #pain #chronicpain #chronicfatigue #zebrastrong #edssurvivor #hydrationhelps!

I know you all wish you were as fashionable as me. 💁🏻‍♀️💁🏻‍♀️

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