Sadie and her amazing oncologist, Dr. Korones // Feels like the party is over. Treatment is done, tumor is gone, and we so are thankful, but now we're moving into uncharted territory where things aren't as clear-cut or old-normal or medicine-free as we had hoped they'd be. New normal looks like: continuing meds every day multiple times a day (thyroid related, diabetes insipidus, adrenal insufficiency - all hormones controlled by her permanently damaged pituitary), "stress" doses of meds - steroids - for every day childhood illnesses like fevers and vomiting, ordering a medical alert bracelet because what she's dealing with could be life threatening in a crisis without immediate care, worrying about every little ache and pain, figuring out how to function without twice weekly labs to give us insight and reassurance that everything is going okay, concern about her physical growth in the years to come, working through another grieving cycle over the consequences of her tumor, heartbroken again but this time over what new normal looks like... We will figure this out. We will be even stronger and braver and more resilient still. We will adjust. We won't lose heart. God is still good. He still has a good plan for Sadie's life and our family. // "In the wait, whatever you lose, don’t lose heart — you never lose what lasts forever. You’ve just got to believe it: whatever is being lost momentarily, more is being gained eternally. In the wait, if you shift the way you see — see that the wait could make you into the person you’ve been waiting to become."
#TheBrokenWay #WaitOnGod #sadiekatielemonlady #braintumor #germinoma