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#transplantrecipient

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I sure hope that heaven is real and that he’s in the loving arms of his great nana, his uncle and second cousin. Jude passed on November 14th in my arms after his lungs could do no more. His life was a gift, his laughter was the best and he brought me more joy than I thought was possible from one kid. So thankful for his transplant and the time we got. Breathe easy little man, we already miss you so much. #teamjudebug #lifeposttransplant #doublelungtransplant #donatelife #restinpeace #gonetoosoon #judebug #breatheeasy #transplantrecipient

Child singing phenom and transplant recipient @angelicahale becomes first NKF Kid Ambassador! Check out this 15 second PSA with this amazingly talented girl! #BigAskBigGive #DonateLife #organdonation #kidneydonation #kidneydonor #transplantrecipient

New video up. Lauren asks her dad all your questions! Link in bio.
#cysticfibrosisawareness #transplantrecipient #carer #carersweek2017

This boy just had a great Stanford check-up and had to wear his Stanford gear! πŸ’šβ™»οΈ
Liver numbers are in the clear πŸ™ŒπŸΌ
Weaning off some meds πŸ’Š
Gaining weight like crazy! 16 lbs 8 oz πŸ’ͺ🏼
Blood draws only 1 time a week πŸ’‰
Next apt he will get his bile drain taken out and he will officially be tube free! Lots of exciting news.
Now for our 4 hour drive back to Sac 😳
#noahstrong17 #stanfordpride #biliaryatresia #stanfordchildrenshospital #donatelife #livertransplant #transplantrecipient #liverrecipient #organdonation #hospitallife .
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#baby #babyboy #itsaboy #mylittleman #8months #8monthsold #sacramento #paloalto

A picture taken a year ago today. I weighed almost 120 lbs, required no supplemental oxygen, lived in my own place for the first time in my life (with my now husband), had a job for the first time in 4 years, and hadn't lost my hair from chemo and other harsh medications. Sometimes it's sad to look back and think of my decline in just one year, but at the same time, I've gained so much emotionally and spiritually. Sure I miss "normalcy", but I still love my life and everyone in it. It's been a hard year, but I'm getting stronger every day and I know I'll get back to myself in time. #livehappy #doublelungtransplant #transplantrecipient #cysticfibrosis

Don't stop yourself from achieving things just because there is a little bump in the road!!! πŸ‘ŠπŸ‘ŠπŸ‘Š #chemotherapy #transplantlife #transplantrecipient #nivekbrand #emtstudent

It's not glamorous but it's real. Yesterday was 4 months since surgery and I was having the absolute worst day until I remembered how grateful I should be and I can't believe how fast my recovery has been going. It's almost like it never happened. We get caught up on everyday things and forget how beautiful life can be. You never know how strong you are until you have no other choice. #keepgoing #transplantrecipient #cornea

This father biked cross country to see the man who received his daughter's heart #family #organdonor #fatherlylove #love

24 Days.... I am officially counting down to the DC Kidney Walk. Today, I celebrate my sister, kidney donor, and hero, Shonte' Simpson. She unselfishly gave her kidney without me asking!πŸ˜€πŸ™ˆ You know that's LOVE, but that's who she is. Help me celebrate all of the kidney donors out there by joining my team and/or supporting the walk. Link in bio. #dckidneywalk #transplantrecipient #knowyourkidneys #advocate #grateful

MOST RECENT

This made me lol 🀣. Although when I’m having a flare up this is very much in my mind. Long journeys in the car need careful planning, it’s always good to know where the next toilet is 😬 #ulcerativecolitis #ibdlife #fact #chronicillness #toiletstops #flareups #symptomsofaflareup #planahead #livertransplant #transplantrecipient #spoonie #immunosuppressed

This boy just had a great Stanford check-up and had to wear his Stanford gear! πŸ’šβ™»οΈ
Liver numbers are in the clear πŸ™ŒπŸΌ
Weaning off some meds πŸ’Š
Gaining weight like crazy! 16 lbs 8 oz πŸ’ͺ🏼
Blood draws only 1 time a week πŸ’‰
Next apt he will get his bile drain taken out and he will officially be tube free! Lots of exciting news.
Now for our 4 hour drive back to Sac 😳
#noahstrong17 #stanfordpride #biliaryatresia #stanfordchildrenshospital #donatelife #livertransplant #transplantrecipient #liverrecipient #organdonation #hospitallife .
.
#baby #babyboy #itsaboy #mylittleman #8months #8monthsold #sacramento #paloalto

This Curvi Yogi is EMBRACING the beauty in progress!!! ⭐🌟@Fit.phe 🌟⭐ ・・・ Thanks for sharing your light❀❀❀
#ThisCurviYogiThursdays
・・・ #thisyogi is embracing the beauty in progress. from ytt, to a pose, to life - beauty is in the journey and the imperfections. i'm beginning to understand more and more why people say perfection is sometimes boring! it truly is. this pic was over the summer and i never intended to post it because it wasn't perfect, it wasn't the pose. but it was perfect for me and my body on that day! thank God for @samanthaharrisonyoga constantly saying "it's yoga practice, not yoga perfect!" thanks to you @thiscurviyogi i was reminded of this pic due to your challenge. #growth β€’ β€’
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#fallenangel #nike #fitness #workout #inshape #fitchick #getfit #workhard #nodaysoff #lifestylechange #youcandoit #justdoit #transplantrecipient #noexcuses #fitphe #ididntsurvivetobebasic #lifeaftertransplant #yogaeveryday #iloveyoga #igyoga #yoga #yogi #blackgirlmagic #blackgirlsdoyoga #blackyoga #yogaisforeveryone #thiscurviyogithursdays

I sure hope that heaven is real and that he’s in the loving arms of his great nana, his uncle and second cousin. Jude passed on November 14th in my arms after his lungs could do no more. His life was a gift, his laughter was the best and he brought me more joy than I thought was possible from one kid. So thankful for his transplant and the time we got. Breathe easy little man, we already miss you so much. #teamjudebug #lifeposttransplant #doublelungtransplant #donatelife #restinpeace #gonetoosoon #judebug #breatheeasy #transplantrecipient

#thisyogi is embracing the beauty in progress. from ytt, to a pose, to life - beauty is in the journey and the imperfections. i'm beginning to understand more and more why people say perfection is sometimes boring! it truly is. this pic was over the summer and i never intended to post it because it wasn't perfect, it wasn't the pose. but it was perfect for me and my body on that day! thank God for @samanthaharrisonyoga constantly saying "it's yoga practice, not yoga perfect!" thanks to you @thiscurviyogi i was reminded of this pic due to your challenge. #growth β€’
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#fallenangel #nike #fitness #workout #inshape #fitchick #getfit #workhard #nodaysoff #lifestylechange #youcandoit #justdoit #transplantrecipient #noexcuses #fitphe #ididntsurvivetobebasic #lifeaftertransplant #yogaeveryday #iloveyoga #igyoga #yoga #yogi #blackgirlmagic #blackgirlsdoyoga #blackyoga #yogaisforeveryone #thiscurviyogithursdays

Um... how exactly do these things relate, you ask? πŸ˜‚ Like tree 🌲 trunks, our bones provide us w stability and a framework that our muscles πŸ’ͺ🏽 and tendons connect to and a structure to protect our organs ♻️ People who've had an organ #transplant are usually on corticosteroids πŸ’Š (prednisone), which when used long term, can cause depletion of minerals from the bones, including calcium and vitamin D β˜€οΈ. If you are supplementing these minerals, talk about dosing with your doctor πŸ‘©πŸ½β€βš•οΈ Long term corticosteroid use requires having a bone scan done periodically, as defined by your transplant ♻️ program. I have mine every 2 years and have some depletion in my bones which could lead to osteoporosis, in combination w other risk factors that I πŸ‘±πŸ»β€β™€οΈhave.

A bone scan πŸ“Ί has many functions; for what I'm referring to, it determines if there are problems ⛔️ w bone metabolism, which can identify osteoporosis early.
#kidneytranplant #organdonation #renaltransplant #kidney #organtransplantrecipient #donatelife #transplantrecipient #healthyeating #fitness #vegan #healthylifestyle #mytransplantlife #melanoma #skincancer #giftoflife #RN #registerednurse #medicine #nephrology #instafollow #love #instagood #shareyourspare

ok @brigidamack you FINALLY got me!!! i CAN do 7 days! πŸ˜‰ ok fit phe fam, let's do this challenge - 7 days, no sugar. i'm literally eating the last of my halloween candy corn as i type this and extremely happy i finished my box of cinnamon toast crunch this morning! lol this challenge starts TOMORROW!!! if you need proof this works (along with exercise of course) #swipeleft and see her beautiful before and healthy after pics! LOVE YOU!! and so proud of you brigida!!! #a1sinceday1 πŸ€—πŸ˜πŸ˜˜
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#teamnosugar #challenge #fitness #workout #inshape #fitchick #getfit #workhard #nodaysoff #lifestylechange #youcandoit #justdoit #transplantrecipient #noexcuses #fitphe #ididntsurvivetobebasic #lifeaftertransplant #yogaeveryday #iloveyoga #igyoga #yoga #yogi #blackgirlmagic #blackgirlsdoyoga #blackyoga #yogaisforeveryone

#Repost @nationalkidneyfoundation (@get_repost)
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Child singing phenom and transplant recipient @angelicahale becomes first NKF Kid Ambassador! Check out this 15 second PSA with this amazingly talented girl! #BigAskBigGive #DonateLife #organdonation #kidneydonation #kidneydonor #transplantrecipient

Child singing phenom and transplant recipient @angelicahale becomes first NKF Kid Ambassador! Check out this 15 second PSA with this amazingly talented girl! #BigAskBigGive #DonateLife #organdonation #kidneydonation #kidneydonor #transplantrecipient

Delighted to be at the Writing For Life Prize-Giving Ceremony with fellow judges @nadialking and Brigid Lowry.

#writingforlife #DonateLife #writingcompetition #judges #transplantrecipient

Just because it’s been awhile as usual πŸ€·πŸ»β€β™€οΈπŸ˜ I was Lung Transplant number 1,577 at Barnes Jewish Hospital πŸ€™πŸ»πŸ€™πŸ» & that’s since the program very began in the 1980’s. It increased verryy slowly for years as the success rate was a lot lower. The number is already above 1600 since mine and increasing πŸ™ŒπŸ»β€οΈ & a fact to end it lungs have the highest rejection rate of all transplants being the only organ that’s still exposed to outside germs 😷😷 So STAY the heck away from me if you were, are, or might be sick πŸ€šπŸ»πŸ˜‚πŸ’― #lung #lungtransplant #transplant #transplantrecipient #justbreathe #secondwind #newlife #newlungs #cysticfibrosis #donatelife #beadonor #beanorgandonor #spareparts #crazy #midamericatransplant #barnesjewish #hospital #pulmonaryrehab

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