#TransplantRecipient

MOST RECENT

just opening the hips and lubricating the spine a bit before my all-levels class this morning! 💚🖤 every tuesday 8:30-9:30 🙏🏾






#transplantrecipient #noexcuses #ididntsurvivetobebasic #lifeaftertransplant #yogaeveryday #iloveyoga #igyoga #yoga #yogi #yogaisforeveryone #greenvillenc #greenvilleyogis #fitpheyoga

@justkidneythings
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One morning, after class, Isis’s grade 12 history teacher, @brendan.malanga, asked if he could help, try to be her kidney donor. Isis didn’t think he was serious—dismissed his offer with a “Yeah, sure”—but he was. He knew what she’d been through.
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Isis was 12 when her kidneys failed, when she began peritoneal dialysis. Every day at 5 pm, she’d go into her room, “connect” to a cycler (via the catheter in her abdomen), and start her 12-hour treatment, letting cleansing fluids filter toxins out of her body.
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When she was 14, Isis received a kidney, one from a deceased donor. The transplant worked; Isis could pee again. (You don’t pee when you’re on dialysis.) But it didn’t work for long: months later, Isis got lazy with her meds (“they made me really sick”) and a year later, her new kidney failed.
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After that, she began hemodialysis. Every MWF, she’d go to the hospital for 4 hours, have her blood cleansed via a lumpy fistula in her left arm (which you can still see). That was the easy part; the hard part was restricting fluid intake to one litre per day on account of having fewer treatments.
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“I felt dehydrated, was constantly thirsty. If I drank the prescribed amount, I’d lose up to five pounds of fluid after a treatment; if I drank too much, I’d lose about ten pounds. And because I ‘didn’t pee’ over the weekend, I’d be super heavy by Sunday night.”
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Isis had been on hemodialysis for 3 years when Brendan stepped up, found out he wasn’t a match, and joined the swap program, offering to donate his kidney if Isis got one. But two years later, an anonymous Good Samaritan volunteered to give her kidney to someone who needed it—just because—and Isis got it.
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Not long after her surgery and subsequent isolation period this summer, Isis met her donor, Emily, @heymsem. (“She’s wonderful.”) They had pictures taken in the hospital’s rooftop garden and, after the social worker left, talked over frozen yogurt. They became friends.
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At present, Isis is taking all the meds her doctors tell her to, and Brendan’s still preparing to give his kidney away, even though Isis no longer needs one. In November, he’ll become a Good Samaritan, too.
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Burgers for Good (BFG) Pub Night!
Please come out to support pediatric transplant research at the third annual Addison Fund pub night fundraiser. This is a fun, family friendly event!
October 14 @ 6:00pm - 9:00pm
Location: The New Oxford, 1144 Homer Street in Yaletown, Vancouver
Tickets: $25 each, includes beer, burger (veggie option available) and an evening of fun.
You can bid on silent auction items and buy BFG tickets online. Link in bio. #lifeaftertransplant #transplant #transplantrecipient #research #goodcause #fundraiser #abetterway #foodforlife #foodforchange #getyourtickets #thenewoxford #yaletownlife

1 day late but wanted to wish my heroic Reina a very happy 4th birthday! You continue to inspire be every SINGLE day! Happy birthday to my beautiful hero! #happy4thbirthday #teamdelfina #myreina #hero #transplantrecipient #bilaryatresia #beachbirthday #family #beach

Been home for about 2 hours and have been a busy women.
Unpacked ✅
Load of laundry done ✅
Scooped litter boxes ✅
Cleaned bathroom ✅
Vacuumed the house ✅
Supper made ✅
Dishes done ✅
Think the only thing I didn’t do was clean the car. I am as ready to go back to work tomorrow as I can be.
I’m happy to be home with my fur babies but very sad vacation is over 😢

Unfortunate news for myself regarding the Transplant Games. I've had to pull out of competing this year. Had a fall over the weekend which has resulted in a crush fracture of my coccyx (tailbone). I still plan on attending out of support for others and meet other recipients, and little miss madelyn is still doing her events as well. So if anyone is about let us know.

So now I'll just start counting down to the next games 🙂🙂🙂 #brokenbutt #transplantaus #transplantrecipient @transplantaus @transplant_australia_qld @hlttv #transplantgames #transplantgamesgoldcoast2018 @kidneyhealth #hearttransplant #kidneytransplant

Having a celebratory coffee and tempting fate. Happy to have a transplant date, but expecting reflux shortly. #kidneydisease #kidneytransplantlist #pkd #transplantrecipient #breakfast #eggs #freerange #homegrown

Monday inspiration. #motivationmonday

Back in the hospital! People always ask us if Noah’s system will always be compromised? Well, this is what a simple cold can do to him. One day he is doing just fine fighting off a simple cold (which we thought was a tooth breaking through) and the other he is in the hospital fighting pneumonia.
He is doing well now. Finally getting some rest, he had a terrible night last night but of course he still finds ways to find his happy place, even if that’s surrounded by his toys or in mamas arms. #noahstrong17 #donatelife #becauseofanorgandonor
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#biliaryatresia #stanfordchildrenshospital #livertransplant #transplantrecipient #liverrecipient #organdonation #hospitallife #babyboy #mylittleman #15months #15monthsold #sacramento #lifeaftertransplant

Noah caught a cold that quickly turned into pneumonia. So just like that...we are getting adjusted to the hospital life again. Respiratory therapists are our best friends. Hopefully a short visit. Please send your prayers this way. 💚♻️ #noahstrong17 #donatelife #becauseofanorgandonor
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#biliaryatresia #stanfordchildrenshospital #livertransplant #transplantrecipient #liverrecipient #organdonation #hospitallife #babyboy #mylittleman #18months #18monthsold #sacramento #lifeaftertrantsplant

i offer private yoga as well @youngs_pt 💚🖤 learn tailored techniques specifically for you to manage stress, improve strength, flexibility and emotional wellness. •





#transplantrecipient #noexcuses #ididntsurvivetobebasic #lifeaftertransplant #yogaeveryday #iloveyoga #igyoga #yoga #yogi #privateyoga #privateyogateacher #yogaisforeveryone #greenvillenc #greenvilleyogis #fitpheyoga

I have never been the one to put on some leggings or a baseball hat and go out.
Well friends, I have finally reached that place 😂 Last day of vacation and headed to the zoo. Still not sure I’m a baseball hat girl but I am enjoying the comfort of the leggings!

Now, time to go see some penguins and monkeys 🐒

A beautiful intersection between self care and organ advocacy: attending the Transplant Patient/Family day event my hospital hosted!
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There was face painting, rides, great food, caricature drawings, and most importantly, the chance to connect with other people who have had all types of organs transplanted. It was a good time 🙂 I hope you've all had good weekends too! ---
#justkidneythings #kidneydisease #ckd #chronicillness #donatelife #kidneyfailure #kidney #fun #weekend #drawing #facepaint #friends #family #support #nature #transplant #transplantrecipient #becauseofadonor #organdonation #organdonor

Congratulations to Rahmeka Cox @rahmekacox, our amazing volunteer and advocate, who just became Miss New York! Rahmeka will use her @missamericany platform to promote awareness about kidney disease and living kidney donation. We can’t wait to see what she’ll be able to accomplish! Also, doesn’t she look stunning in orange!? #missamerica

praying for those facing challenges in the wake of hurricane flo. if it's safe for you to head out, join me on your mat this week! •
🧘🏾‍♀️
MON 3:30 - 4:30 pm all-levels @youngs_pt
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TUE 8:30 - 9:30 am all-levels @youngs_pt
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WED 9:00 - 10:15 am gentle @yogivibesstudio &
6:00-7:00pm restorative @greenvillenc aquatics center •🧘🏾‍♀️ SAT 9:00 - 10:00 am gentle @youngs_pt & 1:00 - 2:00 pm hip hop yoga @yogivibesstudio
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i am attending a conference thursday and friday about organ donation and transplantation. ❤️🙏🏾





#transplantrecipient #noexcuses #ididntsurvivetobebasic #lifeaftertransplant #yogaeveryday #iloveyoga #igyoga #yoga #yogi #blackyogateacher #blackgirlmagic #blackgirlyoga #blackyoga #yogaisforeveryone #greenvillenc #greenvilleyogis #fitpheyoga #gentle #gentleyoga #hiphopyoga #hurricaneflorence #hurricaneflow #hurricaneflo #cabinfever

Post-op Day 2: Ze'Miah is recovering very well as alot of thing have been and is still being wheened down. Her ventilator and nitric (helps with her lungs) has started to where down since yesterday morning and will continue as long as she tolerates it. Her blood pressure and sedation meds are continuously being wheened down until it can't be wheened any further. Her left lung ended up having some fluid build up, but cleared up ALOT by her regular lasix on top of some extra diaretics. Alot of swelling gradually decreasing and she is starting to periodically wake up and respond to her surroundings. As long as everything continues to improve, plan extubation is set for tomorrow morning!! Thank you all for your continuous love, thoughts and prayers. OH! And she wouldn't be Ze'Miah if mommy didn't do her manicure, glitter just like Ze'Miah likes it ☺️❤️💙 #HLHS #CHDawareness #PrincessZ #HeartWarrior #WearRed #TransplantRecipient #DonateLife

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