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#Stelara

MOST RECENT

Infusing myself with vanilla (milkshake) before the nurses infuse me with iron. Haven't seen much improvement with these iron infusions and my HGB mildly dropped since last infusion cycle.
Next month, if labs are still looking low. I'm gonna go Bugs Bunny on the Hematologist and ask "Whats up doc?!"

I have so many plans to reach out and help so many people. And I can't wait to share them all with you. Posting this quote tonight when I pushed myself too far health this evening(check my story) might seem like strange timing but it's the perfect time to reflect. I'm on the right track. I just hit a little speed bump from starting a new medication this week. 😄The more experiences I go through, the more I feel it's for a reason. If I can help other people learn how to get through hardships, or educate people about mental or chronic illness, then every moment of pain is worth it. Does anyone else feel this way? 💕#imgoingtomakeyousoproud #inspirationalquotes #motivation #mentalillness #chronicpain #crohnsdisease #beproud #fibromyalgia #crohns #spoonie #stelara #ustekinumab #thinkpositive #positivevibes #motivationalquotes #depression #determination #invisibleillness #butyoudontlooksick #chronicillness #selflove #nevergiveup #dublin #goaldigger #lifegoals #dreambig

Had a great 10K trail race and places 1st overall women. The after party was a light 8miles to make it long run of 14M. Not bad for a day 😋😀 . #crohnsandcolitis, #Crohnsfighter #crohnsfitness #crohnsrunner #ibs #stelara #remicade #autoimmunedisease #crohns #crohnshumor #fuckcrohns #crohnsawareness #ultratraining #running #fuel #endurance #hammer

Went into Dublin City to see a Chinese New Year lion dance so I made a a very last minute mask for several reasons-protection for my low immune system from medication, it helps with TMJ jaw/nerve pain from the cold(thanks Irish weather) and it's a visual sign to other people that I'm not well. Which comes in handy for things like public transport etc when I need a seat but look "young and healthy"! Also the skulls make me feel like a badass. Not pictured...the painkillers, energy drinks and bandages that I needed to get out of the house 😐😄 #butyoudontlooksick #stelara #immunosuppressed #fibromyalgia #crohnsdisease #skulls #chinesenewyear #crohns #spoonie #invisibleillness #ustekinumab #chronicpain #tmj #chronicillness

Een nieuw medicijn.. je kent het wel als je arts erover begint.
Binnenkort mag ik gaan starten met Stelara (unstekinumab). Ik ben benieuwd wat mij dit gaat brengen. Uiteraard neem ik jullie mee in dit proces en zal ik laten zien wat dit medicijn doet en hoe het werkt 😉👍🏻. We gaan ‘t zien! #stelara #unstekinumab #crohn #ibd #colitis #disease #medicatie #infuus #spuiten #medication

I haven't posted about my Stelara experience so far because I've been sleeping so much 😄 Main side effects I've had so far are joint/back pain and severe fatigue! I wanted to make a video today but I went to see Black Panther instead-amazing movie!!!! Yay for leaving my bed for a few hours 🎉😄Also have a post coming soon about tips for people on or starting Prednisolone so look out for that! Annnnd now it's back to bed for me 😄😴😴😴#stelara #fatigue #crohnsdisease #crohnswarrior #chronicillness #positivevibes #tired #butyoudontlooksick #prednisolone #advice #blackpanther #marvel #dinosaur #tardis #fibromyalgia #moonface #crohns #spoonie #ustekinumab

Nothing like some boiled eggs for that post #bootyworkout protein.

Tonight i smashed some personal bests in my #weighttraining. I smashed my booty with my #auraeve booty bands.
Its so strange to see how much my body changes in between my #stelara treatment. The last 2 wks i have struggled with just daily activities. Then after my dose last friday i spent a good 4 to 5 days very sick and lethargic. Yet one wk later and my body is in a good place and i can push thru that bit more. I know over the 8 wks between doses as it wears off ill slowly go down again. But while i can ill keep smashing it.

And i think my poor legs maybe hungover tomorrow, they sure got a beating tonight.

#crohns #crohnsdisease #crohnsfitness #bootybands #legday #gym #snapfitnessormeau #Fridays #workout #ibd #weightloss #medications #aussiegirl #australia #qld #goldcoast #protein

Last 2 injections than i am finished. I tried, i waited but no luck with positive progress. Due to have a pill cam test done at end of the month and a retry of previous drug. However i know what my future holds and i am ok with what plans i am going to be dealt. 💉💊💰
#Crohnsdisease #Stelara #Medication #bowelresection

Having a flare up of blasted Psoriatic Arthritis in my fingers, wrist, neck, knee, toes and eyes believe it or not! Roll on Rheumatologist appointment to see whats what! 😣 #psoriasis #psoriaticarthritis
#stelara #medicalfunding

Waking up from sedation like!!!!!!!!!! What year is it!!!!!!!!!! #flawless

This morning I had a sigmoidoscopy and a biopsy of my colon taken to rule out infection. I really really don't enjoy these procedures and they make me hella anxious, but I got some DAMN GOOD SEDATION and a wonderful team of nurses💘


My inflammation is lower than it was yesterday and I'm hoping I might be able to go home by the end of the weekend ✨🎊

Gonna spend the rest of this day enjoying my drowsiness 😋


#crohns #crohnsdisease #crohnslife #crohnzprobz #like #likeforlike #like4like #followforfollow #follow4follow #happiness #colitis #chronicpain #chronicillness #chronicfatigue #invisibleillness #invisiblepain #hospital #sedation #prednisone #colonoscopy #stelara

New drug time! C'mon Stelara...we can do this! We can get me back in remission 🙏 Found out yesterday that I would be starting Stelara/Ustekinumab this morning, I had a few minutes of excitement before it turned into anxiety. Anxiety over whether I would tolerate the new drug, would I have a reaction, what side effects I would experience, would it leave me worse off like other drugs I've tried before. Then I had a nap. When I woke up again I was determined to focus on everything positive that could happen. So here's to getting healthy again. Here's to getting stronger. Here's to getting in remission. I'll be recording as much as possible, the vlogging starts now! #wonderwoman #crohnsdisease #stelara #chronicpain #thinkpositive #thesecret #ustekinumab #chronicillness #crohnswarrior #positivevibes #anxiety #prednisone #fibromyalgia #goodvibes #remission #letsdothis #lawofattraction

It wasn't until after surgery when I found out I'd made it to the fistula stage. Now that I'm back to 'normal' I'm focusing on what I have control over - my diet. #eatingcleanbecauseihaveto #ilovebrownies #getontherighttreatment #crohnsawareness #crohnsdisease #paleo #crohnie #complications #stricture #fistula #teamsurgery #crohnsdiet #stelara #eatclean #crohns #newjourney

Welcome first dose of #Stelara. 2 1/2 hours and 2 IV sticks later. #Crohns sucks! Nervous about this medicine. #Humira worked for a little bit but eventually wasn’t as effective. We’ll see what happens now.

No matter how old I get, I will always need my mum. Sometimes she drives me crazy, and I’m sure the feeling is mutual 🙈 but no matter what she is there for me. Today she’s spending her day sitting in the most uncomfortable chair whilst i have my infusion ❤️ I also woke up to so many lovely messages that helped put a smile on my face.. I am one lucky girl ❤️#ustekinumab #stelara #infusion #crohnsdisease #iamlucky #feelinggrateful #theyarethebest

BUT DIDNT I TELL YALL I WAS GONNA SHAKE BACK THO?! — First three photos are me flossin’ like a MF today after my doc appt when I learned I had gained a significant amount of weight! Last photo was this past summer in the middle of an excruciatingly painful #crohnsdisease flare weighing only 99 pounds, a number I had NEVER seen in my teenage/adult life! Do y’all peep the difference? Cause I sure as heck do! If y’all have been following my story the past year or so you may have known that I was battling a #crohndisease flare (frequent hospital stays, multiple emergency blood transfusions, life threatening reactions to failed medicine) Shit was hella wild I legit thought I wasn’t gonna live — I lost 30 pounds due to the complications I was suffering and I was extremely underweight + weak. I had never been so unhealthily thin in my entire life and it truly killed ALL securities + confidence in myself. Being from the south and all, I don’t play about my curves y’all — but even deeper than the outer view, I just felt so disconnected with my temple. I felt weak, and I was always in pain and so fragile. My body was so outta whack in a variety of ways and I despised the fact that I didn’t have control of MY body — So earlier this year I started a new medicine called #Stelara in conjunction with some natural herbal remedies and overall change in MINDSET. I stopped getting on the scale for awhile so it wasn’t until my appt today that I realized I’ve gained 12 pounds (which may not seem like a lot but gaining weight is hard AF w/ a physical ailment that impairs the body’s ability to absorb nutrients and hold weight) — I still got a bit to go to get to my target weight but them HIPS AND ASS IS COMIN BACK THO 😝 but even more important than that is I FEEL better/stronger! I’m having to relearn my temple so things aren’t 100% and I still have some rough days, however I’m way more healthier than I was! I mean, I was 99 pounds on the last photo; 99 FREAKIN POUNDS! I looked & felt sick! But I am SO thankful for what I’ve battled & conquered! I’m a warrior y’all, real talk. GOD IS REAL #crohnsdisease #crohnswarrior #livingwithcrohns #crohnssurvior #ibd #crohnslife

For anyone who thinks I'm positive and strong 24 hours of the day SURPRISE 😊ask anyone close to me- they've dealt with my meltdowns (god bless them)!!!! ~reality check I am grumpy all the time~

I'm still in the hospital and I'm heckin ready to go home. I miss my dog. I want to eat a pizza. I want to sleep in my own bed. I want to have a bath. I don't want my blood taken at 6am. I don't want hospital food. I WANT MY NORMAL LIFE BACK. Maybe that's a lot of complaining when I should be grateful to be here (and I am) but I AM OVER IT

I was supposed to get my Stelara injection today and they didn't order the prescription in time so I didn't get it. So I'm pissed. I'm annoyed, I haven't slept in a week

I had a good cry today. I feel better

I'm obviously feeling 100% better than when I got here but I'm impatient and I'm homesick

So this is me, annoyed, and binge eating a bag of M&M's and I don't give a heck if I feel like garbage or not 🍪🍪🍪

TOMORROW WILL BE BETTER- still moving forward!!!!!!!!✨☀️ but just do ya thing and don't spend so much time trying to hold it all together


#crohns #crohnsdisease #like #autoimmunedisease #follow #followme #follow4follow #followme #happiness #strength #colitis #colon #hospital #sick #stelara #prednisone #iv #selfcare #selfie #chronicillness #chronicpain #chronicfatigue #invisibleillness #illness #fatigue #dogs #health

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