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Please come visit us and enjoy our most popular items: BBQ Chicken, BBQ Beef, Chicken Katsu , Kalua Pork and Spam Musubi. Keep an eye on us because we will feature weekly specials!! #llhawaiianbbq #llhawaiianbbqmiramar #mcasmiramar #mcas #newkahunaintown #lunch

So this is basically what my week has looked like, and i’m not really complaining. I think one thing that I have learned since my illness has been that necessity (and boredom) often inspires creativity. I have been given the luxury of free time to discover my passions and to learn and nurture so many new hobbies, many of which I have been able to to share which you guys, which has just been the cherry on top. 🍒 .
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#chronicillness #invisibleillness #chronicpain #zebrastrong #crochet #butyoudontlooksick #handmade #chrocheting #ehlersdanlossyndrome #dysautonomia #spoonie #tubie #positivity #etsy #knotting #spinalfusion #mastcell #feedingtube #recovery #succulent #mcas #mastcell #peoplehopetribe #dysautonomia #pots #choosejoy #christian #chiarimformation

Me and the fur babies can’t wait to be home with this guy 😘 This past year he has taken me to so many appointments🏨, sat in the middle of the night at the ER (without having dinner 🍔 and missing a bachelor party 🍻), delivered my urine to Duke🚽 🤣, been my shoulder to cry on 😢and then traveled with me to have surgery🤯...all while still working! @mattarm11 #oncloudarmstrong #flashbackfriday

Pilot! He was one of my favorites, he was adopted by one of my friends and she named him Doodle. #fosterupdate #doodle #pilot #mcas #lovedhim #kitten #catsofinstagram #handsomeboy

We are having a ruff day today. Not feeling the greatest. This was taken couple weeks ago with my girl hope! Any suggestions on anything you would want me to post about? #chronicillness #pots #eds #mcas #centralline #servicedogintraining

Too true @catanacomics. Too true.

My partner calls this the witching hour. I can be laid up all day but I still manage a mad 5. I'm exhausted 🤣

#witchinghour #witchinghouriscoming #catanacomics #spoonie #spooniehumour #POTS #posturalorthostatictachycardiasyndrome #ME #CFS #hEDS #EDS #MCAS #fibromyalgia #recovery #standinguptoPOTS #jointheuprising

久しぶりに岩国へ行って来ました。 去年の5月以来。
#海軍#岩国#海自#MARINES#アメリカ海兵隊航空基地#MCAS#山口県

Wanted to share some of today's workout 🙂

Back together with this woman after her bailing on me for 3 months 😂🤓 😁

#soldiermedic #combatmedic #usarmy #armystrong #empower #68w #militarymuscle #military #militarylife #mcas #lovethepain #training #family

Not 24 hours after being discharged from the ER for unspecified chest / arm pain, repetitive bouts of prolonged pre syncope and three syncopic episodes and no answers but “do you have a history of depression?” I had horrible and terrifying reaction to a non contrast MRI today (my internal organs felt like they were burning and going to melt and dizzy like my head was spinning 1,000 mph, nauseous, nerve and muscle pain, itchy skin, eye pain, migraine, rigors none of which have gone away) and then another reaction to EKG adhesives 30 minutes later (literally on me for less then 60 seconds) and then another reaction to dinner and another to tums and then to end the day with a cherry on top with the usual rashes after I shower, wash my face, etc.
Needless to say my Allergist suspects MCAS and ordered a tryptase script and referred me to a specialist. She also wrote me a script to get a second tryptase test done in the ER the next time I have a reaction to see what it says.
In the mean time she wants me on Allegra and to lay off the Benadryl as it keeps me in a cycle but if I feel like I’m going into anaphylaxis then to take it. OH and I got an email in the hospital that Mayo Clinic in Minnesota declined me because they don’t have the availability of specialist for my needs. Super 👍🏻 Next try Florida.
I mean, does it ever end?
Also, has anyone had that kind of reaction to food or non contrast MRI’s before? No one could understand what was happening to me. •

#medicalmystery #awareness #hypothyroidism #tendinitis #invisibleillness #chronicillness #dysautonomia #autonomicdysfunction #POTS #smallfiberneuropathy #neurocardiogenicsyncope #ehlersdanlossyndrome #EDS #MRI #MRIReaction #myalgicencephalomyelitis #raynaudsdisease #siccasyndrome #vocalcorddysfunction #dystonia #gastroparesis #sensoryprocessingdisorder #migraine #chronicpain #MCAS #chronicillness #notalldisabilitiesarevisable

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