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#LangerhansCellHistiocytosis

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#Repost @bur_rabbit (@get_repost)
・・・
πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight

πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Supporting All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much.
Raising awareness and hoping that one day there will be a cure.
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor

Xo much love, light πŸ’™πŸ’™
Regrann from @harrywallace39 - πŸ”Ή Always Honor Those Who Have Fought, Before You, For You, With You .... Continue The Fight In Their Name, Never Giving Up, Never Giving In πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Along With All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor # - #regrann

#Repost @harrywallace39 (@get_repost)
・・・
πŸ”Ή Always Honor Those Who Have Fought, Before You, For You, With You .... Continue The Fight In Their Name, Never Giving Up, Never Giving In πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Along With All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor

I haven’t shared much on IG about this new life changing journey I have encountered. I posted screen shots of my support page updates. Please add me to any lists for prayer! Send good vibe, thoughts...etc. Also, if you want, find me on Facebook β€œAll In For Jocelyn” and follow my journey through my personal blog/support page! #allinforjocelyn #histiocytosisawareness #langerhanscellhistiocytosis #raredisease #cancerousbonedisease

Regrann from @bur_rabbit - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight - #regrann

Regrann from @bur_rabbit - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight

#Rensta #Repost: @bur_rabbit via @renstapp Β·Β·Β·
β€œ πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight ”

Regrann from @bur_rabbit - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight - #regrann
πŸ’€β€πŸ’„πŸŽ©#ItalyVillainettes
#VillainetteHopeful
#EuropeVillainettes
#TheVillainettes
@thevillainettes
@mrs.bearded_and_fit πŸ’„Founder
@bur_rabbit πŸ’„ Ambassador
@a

#Repost @bur_rabbit (@get_repost)
・・・
πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight

Repost from @bur_rabbit using @RepostRegramApp - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight

Regrann from @bur_rabbit - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight - #regrann

Regrann from @bur_rabbit - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight - #regrann

#Repost @harrywallace39
・・・
πŸ”Ή Always Honor Those Who Have Fought, Before You, For You, With You .... Continue The Fight In Their Name, Never Giving Up, Never Giving In πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Along With All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor #

#Repost @harrywallace39 (@get_repost)
・・・
πŸ”Ή Always Honor Those Who Have Fought, Before You, For You, With You .... Continue The Fight In Their Name, Never Giving Up, Never Giving In πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Along With All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor #

#Repost @harrywallace39 with @get_repost
・・・
πŸ”Ή Always Honor Those Who Have Fought, Before You, For You, With You .... Continue The Fight In Their Name, Never Giving Up, Never Giving In πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Along With All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor #

Fly high πŸ’™
β€’
From @bur_rabbit - β€’
πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight

I didn't have the chance to meet this strong woman. I learnt about her from my sister @bur_rabbit .... πŸ’™πŸ’™πŸ’™πŸ’™ Let's share this post to raise #awareness πŸ’™

Regrann from @bur_rabbit - πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight - #regrann

πŸ”Ή Always Honor Those Who Have Fought, Before You, For You, With You .... Continue The Fight In Their Name, Never Giving Up, Never Giving In πŸ”Ή Today I Go Blue To Honor A Friend And A Warrior πŸ’™

Along With All The Warriors Fighting, The Ones We’ve Lost, And The Families Who Have Been Though So Much
#GoBlue #HonorOurWarriors #ThankYouForAllYouDidForOurCause #HistioWarrior #HistioAngel #LCH #langerhanscellhistiocytosis #multisystemlch #plch #hlh #adultswithhistio #HistioFamily #whomixedcancerwithmyautoimmunedisease #nocure #wewillfight #nevergiveup #nevergivein #wewillfindacure #lifeisworthfightingfor #

πŸ”ΉπŸ”Ή GOING BLUE πŸ”ΉπŸ”ΉπŸ”Ή
The world is now short a warrior, but the heavens have gained an angel
Pat Bender - Levinson fought a long battle with LCH Langershans Cell Histiocytosis & a few nights ago her fight ended when God called her home ....... my heart is heavy with grief........ When Harry was first diagnosed there was no Facebook or social media and so for several years we were very alone in trying to find answers or support but when Facebook started so did our first Histio support group for adults, there was about seven of us at the time and Pat was one of the people that made it all run. From that day forward she became a pillar of support and love in our lives, she always kept up with our latest Dr news or struggles the emotional journey and physical. A few years back when things got very shaky and we didn’t know if it was the end for us Pat message every single day for weeks until we had made it to the other side even though she was in the hospital receiving treatment and surgery herself.... and what is most special is I am not alone with this story she provided this love and support for many families struggling and fighting with this horrible disease. Always at the front of the pack demanding attention, awareness, and recognition for what are Warriors have dealt with and how many angels we have lost... Today I go Blue πŸ”Ή In honor of a true warrior who has now earned her wings and become a Histio Angel .... She will never be forgotten πŸ’™
And we will continue the fight!!! We will not give up till we find a cure, we will continue to demand better treatment for adults, push for more awareness, and support all fighters and families πŸ’™
I will miss you Pat πŸ’™ Fly High Histio Mom #HistioAngel #HistioWarrior #Lch #Langerhans #langerhanscellhistiocytosis #MultiSystemLCH #PLCH #HLH #HistioFamily #Cancer #CancerWarrior #ChronicIllness #NoCure #WhoMixedCancerWithMyAutoImmuneDisease
#chronicPain #AdultsWithHistio #AdultsWithLCH #awareness #NeverGiveUp #AlwaysFight

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