Today is #trigeminalneuralgia awareness day. It’s on October 7th each year. One of the pictures is from the very first brain surgeries I had. It was supposed to be the best option. My trigeminal nerve has proven to be very stubborn throughout 3 surgeries. It’s basically kind of an asshole. .
This month is also #facialpain awareness month so I get to acknowledge f💙ck face and all of her glory all month as if noticing her daily is not enough. I feel a bit snarky about it this morning bc she kept me up a lot last night. Sigh. It’s actually very important to spread awareness about facial pain diseases bc there is so little research being done. It’s so very rare & people are suffering so much w trigeminal alone, they also call it “the suicide disease”. So many have taken their life because they have found no relief & living w this kind of pain is unbearable. .
Trigeminal neuralgia alone is said to be the worst pain known to mankind. It involves the 5th cranial nerve that runs throughout 3branches of the face. All 3 of my branches were affected. And after 2 years of trying next right things to relieve my horrific pain, I ended up with the worst possible outcome. And I don’t have but one more option to try. .
When I look back, I often think that I never imagined waking up one day & having something make me sick & change my life so drastically & leave me w unbearable chronic pain. And yet. Today, I go to my first facial pain #supportgroup here in Louisville. It was just recently started. I’m not sure what to expect, I just know I need people who know what this feels like. I need to hear someone say, “me too”. Someone who has words when I say, “I don’t know if I can get through one more day.” .
I choose Joy through all of my days. It’s what keeps me here. I love my life, my people. I don’t ever want to miss it. AND it’s so very painful. I’ve spent so much time in the laundry basket as of late, pushing my self. I don’t like pushing anyone, my self included. .
Today is the day we go teal. How appropriate that I have an “I choose Joy” tee in teal, huh?! It’s our day. These disease is such a f😑cker. This I know. #Joywarrior