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#Ileostomy

MOST RECENT

On this day, seven years ago, he was two & I was twenty-one...& blonde. 💁🏼‍♀️😳 #WhereDidMyBabyGo

This girl and her jpouch are headed to dinner .. OUTSIDE of out house ✌🏻
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I’m very interested to see how my jpouch does with restaurant food. Im anticipating feeling full fast and probably dealing with a little bloating when I get home but it will be worth it. Just feeling thankful to be well enough to leave the house! 🍽
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Hope everyone is having a great night ✨

I don’t know why but car washes give me crazy anxiety. It might stem from before my #ileostomy when I needed to dart to a bathroom at any second. So thankful I don’t have to worry about that anymore! #ibd #crohns #crohnsdisease #ostomy #chronicillness #invisibleillness #carwash #ostomybaglife #ostomylife

I just wanted to write a quick appreciation post for ALL OF YOU ! Olly’s Wednesday adventure was pretty scary, but seeing so much love and support on my page reminded me that I am not alone in this journey. So thank you everyone ! Olly has been sore, and did prolapse a little bit today after a light workout, so I’m still trying to figure all this out. I like to play my situation Medial Whack-A-Mole - just when I think I have one thing under control, another thing pops up to make life a little more interesting !

I also wanted to take the time to acknowledge that I truly feel blessed to have some resources and support through all of this. I was talking to a friend who’s on her own chronic illness journey recently, and she reminded me that there are so so many people out there who may not have the same support system out there. And any hardship is a million times harder without anyone on your team. I feel tremendously fortunate to have amazing parents, doctors, friends, and a boyfriend who will bend over backwards to help out, but sadly, that’s not the normal. So if I can do anything through this account, I want to remind people fighting their fights that they are FAR from alone. It’s easy to get hopeless, but we are so much stronger than our medical woes. And we can always boost each other up - even if it’s from a post on an Instagram account. #mollyollyostomy #ileostomy #ostomy #chronicillness #invisibleillness #spoonie #nocolonstillrollin #ostomates #stoma #ittakesguts #girlswithguts #chronicallymotivated #pots #posturalorthostatictachycardiasyndrome #dysautonomia #eds #ehlersdanlossyndrome

Having a chronic illness is no walk in the park- it is full of upset, hard times, frustration, sadness, anger, confusion, and about a million other emotions.

But despite the bad, sometimes there is also good 🌼

One of the biggest silver linings I have gained through living with Crohn’s Disease and now an ostomy is the even closer bond and relationship I have with my family, especially my mom ❤️ I have always been really close with my family, but being unable to care for myself and having to lean on others caused my relationships to grow immensely. After my total proctocolectomy (and joining the Barbie butt club) I physically couldn’t do much - my mom had to bathe me, hold me up in the shower, and even brush my hair. She fed me, helped me get dressed, helped me walk through the hospital (because I was too stubborn to use a wheelchair) and did so much more. But the most important thing? She was my rock 💜

They say that going through such a life-altering event like this only makes you stronger - and it’s true. But I know that I could have never done any of this without my family, their love, and their suppport.
You are strong, you are brave, but don’t try to do this alone. Asking for help and needing someone to lean on doesn’t make you weak - in the end it will only make you stronger 🌻

Thank you mommy, for everything. I love you ❤️✨💜 {Then: 2016 Total Proctocolectomy}
{Now: Happy & Healthy Mommy/Daughter Day }

#ostomy #chronicillness #crohnsdisease #crohns #spoonie #spoonielife #ibd #ileostomy #awareness #invisibleillness #health #healthyishappy #spoonies #motheranddaughter #iloveyou #strong #warrior #fighter #happylife #selflove #bodypositive #bodypositivity #recovery #surgery #throwback
#brave #hair #longhairdontcare

While I’m not out of the woods yet, I have hit some milestones this past week and with that I’m attempting to shift my mindset from cautiously optimistic to optimistic ✌🏻
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After about a month of being out on leave / working remotely, I was finally able to get back into the office for two days this last week. The bright office lights were intense but I can say I felt MUCH better going back this time in comparison to when I went back after my last surgery. I remember my gas pains and loud intestinal noises interrupting my conversations and just generally being more uncomfortable. Since my stool has thickened up, I’ve been able to pass gas at night when I’m laying down and I don’t have nearly as much noise going on (unless I eat something that’s prompts extra gas). And to have a cup of coffee and not be running to the bathroom like I use to with UC is heaven 🙌🏻
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This week my TPN was also cut off due to my lab work being pretty good - last night was my last infusion! I’ll be keeping the PICC line in for a couple weeks while they monitor me and my nutrition but assuming I do well ... this thing is coming out. I’ve also taken my last dose of Cipro this morning - that leaves my steroids, enemas and Flagyll, which I’ll be weening off of for the next two weeks ☝🏻
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Last milestone is that my ostomy site has finally closed up. It was being a bit stubborn due to a suture that my surgeon had to trim back about a month ago and I don’t think the bloating with the infection helped ... but thankfully it seems to have healed over nicely. I’ll be sure to post a picture once it’s down to just the scar ✨
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Feels like we are heading in the right direction. From this point on I’d like to share more pictures of life with a jpouch and will start phasing out the text posts (unless you feel very strongly against that ☝🏻). Im ready to move on to the next phase knowing that I can’t control what the future holds. So with that I’ll say life starts here ....

Liking these Holister bags but the fabric baseplate is so hard to take off even with using plenty of the adhesive spray to take it off. Sore skin.....ouch ! #stoma #ostomy #ileostomy #stomalife #nocolonstillrollin #ulcerativecolitis #ibd #getyourbellyout #barebelly

Highs and Lows
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Well, for the first time since 2002 I am off all medications and, for the most part, am free from any Crohn’s symptoms! Yesterday I found out that the blood clot in my neck that we discovered last November is finally gone. So, for now the only pills I am taking are vitamins - and my liver and I couldn’t be happier about that.
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However, as much as I would love to say I’m doing great, that just wouldn’t be honest. I am still struggling with seeing an ostomy bag hanging off of my body everyday and I am constantly afraid that something will go wrong or I will get a blockage and end back up in the ER. To make matters worse, just this morning I had my first mishap with my bag while out in public. When I tried to empty it, my hand slipped which resulted in it exploding all over the bathroom stall. So, I cleaned it up and went about my morning; then I had a nice long cry in my car when I was alone and it was time to head home.
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That’s the thing with invisible illnesses, after living with one for so long you learn to hold in the pain and tears just long enough so that to the rest of the world you appear fine. I can post pictures on social media where I am smiling and happy, and while yes there are many moments where this is the reality, there are also moments where I don’t even want to leave my house. I don’t even remember the last time I went more than a day without crying at least a little bit - whether it be about a mishap with my bag or just the fact that I have one. But, this makes the happy moments so much sweeter. Living with this illness has completely changed my way of viewing even the simplest parts of the day. Any moment that I can smile and not think about my health issues (even if it is just for a few minutes) is worth everything to me.

Four years ago TODAY. I had my entire colon removal or total #colectomy. I went from weight gain to weight loss, from absolutely fatigued to energized and happy. Life has never been easier without my colon. I was told the reason for the removal was simply a rare disease that doesn’t even really have a name. We were told that my colon looked like a “65 year old colon that had been taking laxatives for over 45 years” 😮. It wasn’t until a lot of tests and specialists said it’s gotta come out! 22 and my life was changed forever! •




#nocolonstillrollin #colectomy #totalcolectomy #nocolonstillrolling #nocolon #colonremoval #colitis #ibd #irritablebowelsyndrome #healthissues #hospital #surgeries #colonsurgery #lifechanging #ileostomy #ostomyawareness #ostomygirl #ostomylife #bagwhatbag 😜

I think someone knows I'm in need of extra loving today! First she jumps up and hugs my leg, then she joins me in reading the end of my book ❤ she is a loving cat our little (big) Mirre 😻
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#lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #colitis #crohnsandcolitis #tired #catsofinstagram #instacats #catlove #loved #catcuddles #catsforhealth #catsareawesome #blackcats

It’s often easy to get frustrated by the restriction health issues can place on us. Thanks @kristenschronicles for reminding us about we shouldn’t forget all the things we can do. 💪
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“Without my ileostomy I would not be walking, running, swimming, singing, dancing, pursuing a degree, working out, spreading love and kindness or trying to change the world. While my ileostomy may make me a little different, I will never apologize for something that saved my life.”
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#ileostomy #ulcerativecolitis #chronsdisease #chrons #chronsandcolitis #chronicillness #chronicillnesses #chronicpain #chronicfatigue #spoonie #spooniestrong #spoonielife #lupus #fibrofighter #fibro #fibeomyalgia #autoimmunedisease #autoimmunedisorder #ehlersdanlossyndrome #ehlersdanlos #lymedisease #jpouch #jpouchlife #fightlikeawarrior #chronicillnesswarrior #spooniesupport #spoonieproblems #spooniefamily

For any of you that may need graphic design work done or new website building. The very talented @csfx @phoenixdigitaluk designed and built my logos and website for crohnsfighting along with design work for @andywhittamore for @ibdsuperheroes charity event along with @pw_charity marketing as well. Check him out should you need any further information #graphicdesign #graphicdesigner #websitedesign #logodesign #ostomyblogger #stomalife #ostomates #crohnslife #crohns #whatdayisit #outwiththeold #ibd #diet2018 #ileostomy #ostomydiet #weightloss #sepsissurvivor #sepsis

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