#IdiopathicPulmonaryFibrosis

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You never know how many lives you will effect with a simple sacrifice.
#idiopathicpulmonaryfibrosis #pfforg #lungs #breath #donation #transplant #donatelife #transplantrecipient

We met former NY Yankee Bernie Williams at a seminar about my illness, idiopathic pulmonary fibrosis. I will always fight. Every. Single. Day. #ipf #idiopathicpulmonaryfibrosis #ala #lungdisease #prayerandaction

This is my gorgeous, amazing stepmom, Kristy Raub. I haven’t posted on this before because it’s been personal, but I want to raise awareness. She just had a double lung transplant for her idiopathic pulmonary fibrosis. In case you don’t know, IPF is a “type of chronic lung disease characterized by a progressive and irreversible decline in lung function.” This woman is one of THE STRONGEST people I know. I can’t believe this miracle! ❤️ This post is to recognize her and raise awareness about this disease. I love you, Kristy. #ipf #idiopathicpulmonaryfibrosis #survivor #love #pulmonaryfibrosis #awareness

Just a gentle reminder that this time of year is much harder for those with a suppressed immune system like Trenty 💚💙 #waitingforlungs #doublelungtransplant #idiopathicpulmonaryfibrosis

Join us in congratulating Dr. Mary Armanios as the 2018 winner of our Kuno Award for Applied Science! We’re celebrating Dr. Armanios for her research that aims to advance the care of #IdiopathicPulmonaryFibrosis (IPF), with a focus on the role of #telomeres and #telomerase in disease.
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Dr. Armanios earned her medical degree at #OhioStateUniversity and is now a professor of Oncology and Genetic Medicine and the clinical director of the Telomere Center at the #JohnHopkinsUniversity School of Medicine. Learn more about Dr. Armanios by clicking the link in our bio. #KunoAward #AppliedScience #SocialGood #SocialImpact #CulturalCollaboration

At 25, Lyle Romans is a man on a mission. When we first met, he was preparing to take the stage at the Oregon State Fair. He was a finalist in the state’s talent search. As he wheeled his way to center stage that hot Saturday afternoon, no one had any idea.

Growing up, sitting still was not in Lyle’s DNA.

He loved being active, especially when it came to lifting weights. It was all he really thought about. Thinking that having muscles was his true self, nothing else mattered.

That is, until his senior year of high school.. You can read the entire piece I wrote via @psi4patients per link in my bio. Pictured here, me introducing Lyle at the @oregonstatefair.

Noi, i fumatori contro il fibroma polmonare... perche fare i coglioni è bello ma lo è di piu raccogliere i fondi per la ricerca! 💙❤️
#neverquit #blf #idiopathicpulmonaryfibrosis #sailingforcharity #659forcharity #ita659 #sailinglife #inlovealways

My lovely father-in-law’s memory will live on, thanks to those that donated at the funeral. @t.pretzel101 we were blessed to have shared some wonderful times together with your dad. Xx 😘🙏🏻❤️Going to start training for the Reading Half Marathon next year and raise some more money for a brilliant charity. #ipf #idiopathicpulmonaryfibrosis #teambreathe #blf #britishlungfoundation #britishlungfoundation🎈🎈🎈 #bereavement #nomoresuffering #breathedeeply

Many thanks to all those who attended my Dad's funeral on Thursday 4th Oct 2018. The donations amounted to £100 which has been sent to the British Lung Foundation to help in the services they provide which includes research into conditions like my dad had. Thank you all he will always be with me in spirit but I will miss him immensely ❤ x. #mydad #britishlungfoundation #blf #idiopathicpulmonaryfibrosis

Super stoked I got to see these guys when they came thru Ohio, definitely a memorable night. RIP Fred. #pulmonaryfibrosis #idiopathicpulmonaryfibrosis

Muitas descobertas em doenças intersticiais pulmonares. Experiência para tratar melhor.
#dispneia #tosse #doencasintersticiaispulmonares #cough #dyspnea #fibrosepulmonar #idiopathicpulmonaryfibrosis

She was such a STUNNAH!! What I would GIVE just to hear you trip over & stutter through the 3 of our names & THEN the grandbabies names, just to end up telling us, "you know who the eff I meant!!" 😂 ~Dear GOD, how we miss you, mummy! Praying you catch our love❤
#RestEasyMummy 9/2/51 - 9/19/17 #IdiopathicPulmonaryFibrosis

A requirement of getting a #lungtransplant is to participate in a “pre habilitation” program. Day 1️⃣ complete ✅ .
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Started my day off by slicing off most of my thumb on a mandalin while making the kids lunches. 😫So it was good I was already on my way to the hospital 😕 Trents nurses take care of me too so they cleaned my wounds and wrapped me up before we went to pre-hab ❤️👌🏼
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Pulmonologist stopped by Trents unit after pre-hab to check in on things. I told him about Zachary’s dream last night: **Dad came home with new lungs** so we all have our fingers and toes crossed 🤞🏼 that it was a premonition instead of a dream ❤️
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Took Trent to have a shower - which literally was the best part of his day. Gave him 10 minutes of happy 😊 .
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I left so I can pick up the kids - but Trents mom will be visiting him this afternoon 👍🏼
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If anything - I love all the time we get to spend together because of all this craziness we’re experiencing. I ‘should’ be at work... but hanging out with this guy is much more enjoyable ❤️
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#waitingonlungs #idiopathicpulmonaryfibrosis #beadonorsavealife


September 30th - the last day of September and therefore the last day of both, #ArthritisAwareness and #PulmonaryFibrosisAwareness month 💡.

This however, does not mean the end of raising awareness for either of these two medical conditions. In fact, this is just the beginning for me. Stay tuned 😊

Silently living/struggling with both of these conditions at a raw age for over a half a decade now, I've come to the realization that unless you have someone dear to you living with either of these conditions, or you're directly living with it yourself, you're probably unaware that such conditions exist, or unaware of how debilitating and life altering it truly can be.

My objective as a patient of both autoimmune, inflammatory arthritis AND Interstitial Lung disease causing pulmonary fibrosis, is to:
- continuously educate myself and keep myself informed to the best of my ability
- become a better advocate for myself as a patient
- attempt to raise awareness and provide insight into what it entails living life with such conditions
- live MY best and most productive life enjoying every moment as it comes!
- spread positivity & hope to fellow patients, while also learning and seeking support from the community myself! We're all in this together 🤗💪🏽

To all those living with any form of arthritis and/or pulmonary fibrosis, I say - Live on, one step at a time; Live on, one breath at a time.

#Awareness #Arthritis #RheumatoidArthritis #AnkylosingSpondylitis #PsoriaticArthritis #ReactiveArthritis #InterstitialLungDisease #COPD #CysticFibrosis #IdiopathicPulmonaryFibrosis #RA #ILD #Lungs #Breathe
#AnoniRogue #Autoimmune #AIP #AutoimmuneDisease #Rheumatology #Respirology #Health #Medicine #Nutrition #Hope

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