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Hey guys! Just wanted to give ya'll a sneak peak! This will be a one of a kind once it's up in the store so if you like it make sure you're the first to get it! There will be some more royal gold and cream ones up in the shop but NONE will be EXACTLY alike. It's a unique tubie/syringe roll that will be part of the "Royalty" collection. I'm still recovering from my Port placement surgery that I had Wednesday, but once I'm done recovering the shop should start stocking up on products ready to sell. ☺️✨ so glow queen/king 👑💎 •••The store does not currently have anything in stock but I will post an update when things are up••• #Spoonie #SpoonieShop #SpoonieStore #Fashion #Style #Pots #posturalorthostatictachycardiasyndrome #Port #Portacath #PICCline #Tubie #GTube #JTube #NJTube #medical #patient #medicalpatient #chronic #chronicillness #chronicillnesses #chronicillnessawareness

It's Sunday. Get outside! (📸: @gearbabybr )

Someone ate all of her breakfast & milk by mouth! (1 strawberry, 1/2 cheese stick & 5 pistachios) IG deal for this girl!! So daddy treated her to a trip to Toys R Us!! ❤️🙌🏽💕
#tubiekid #heartwarriorisa #heartwarrior #lolsurprise #lolsurprisepets #toysrus #gtube #sheate #celebratingeverything #lolsurprisedollscollector

Can anyone else agree?! Things may not be perfect but considering what they could be, He sure has been good! 🙌

AdoraBag Insulated Cover: Be Brave and Words of Love
The Insulated Feeding Pump Covers are designed to maintain the warm or cool temperature of an enteral nutrition feed. The cover is lined with water resistant material and easy to wipe away moisture. The interior includes a pocket for your ice pack (if you choose to use one). No longer will you need to worry about your feeds during extreme weather/temperatures!

Our AdoraBag Insulated Feeding Pump Covers have an opening for the tube.
We recommend machine washing and lay flat to dry (they are not suitable for the dryer). Our insulated covers are fun, functional and perfect any time of year! They fit in a feeding backpack, on an IV pole, or any other bag! And there is plenty of room for different sized ice packs.

Check our our etsy shop to place your order!
Bags with a loop are $27.
Bags with two exterior pockets are $30. ~Creating adorable bellys, one Tubie at a time®~ #mickeybutton #autism #pegtube #gtubebaby #gtube #jtube #gjtube #feedingtube #feedingtubepad #spoonies #tubies #tubielife #specialneeds #feedingtubeawareness #colostomy #adorabellydesign #growsimongrow #disabilities #specialneedschildren #GERD #failuretothrive #feedingmatters #childrenmatter #disabled #spoonieslife #adorabelly #tubie #tubepads #tubecovers #pediatricfeedingdisorders

Groovy Tubies tubie pads are custom made. Here's a 3inch one with Velcro closure. Always made with bamboo fabrics! 🌿💙💛
#bambootubiepads #feedingtube #feedingtubepad #gjtube #gtube #tubie #suprapubiccatheter #groovytubies #etsyseller #etsyshop #ebayseller #ebayshop #hobbyhorselane #onlineshopping

Special bond between Harlowe and her Mimi 💕🌼👋🏼

We went on an off-road adventure today in Pozo! So much fun!! We found new trails and some kind of mine (maybe). I can’t wait to go again! ❤️ #familyadventure #offroad #pozo #weloveadoption #adoption #specialneeds #schizencephaly #cerebralpalsy #autism #mosaicdownsyndrome #chd #gtube

AdoraBags Covers are insulated bags with a standard hanging loop. You may also customize the bag with two exterior pockets for an additional charge. The Insulated Feeding Pump Covers are designed to maintain the warm or cool temperature of an enteral nutrition feed. The cover is lined with water resistant material and easy to wipe away moisture. The interior includes a pocket for your ice pack (if you choose to use one). No longer will you need to worry about your feeds during extreme weather/temperatures!

Our Insulated Feeding Pump Covers have an opening for the tube. We recommend machine washing and lay flat to dry (they are not suitable for the dryer). Our insulated AdoraBag covers are fun, functional and perfect any time of year! They fit in a feeding backpack, on an IV pole, or hang just about anywhere! And there is plenty of room for different sized ice packs. ~Creating adorable bellys, one Tubie at a time®~ #mickeybutton #autism #pegtube #gtubebaby #gtube #jtube #gjtube #feedingtube #feedingtubepad #spoonies #tubies #tubielife #specialneeds #feedingtubeawareness #colostomy #adorabellydesign #growsimongrow #disabilities #specialneedschildren #GERD #failuretothrive #feedingmatters #childrenmatter #disabled #spoonieslife #adorabelly #tubie #tubepads #tubecovers #pediatricfeedingdisorders

Feeding as we sleep to grow big and strong all while using C.C. Moo onesies to make a night time feeds go as smooth as possible without waking my little
ccmooclothing.com
info@ccmooclothing.com @c.c.moo @22qfamilyfoundation @feedingtubeawarenessfoundation @thebabynation
#Digeorgesyndrome #lifewithdigeorgesyndrome #gtubeclothing #gtubeclothes #gtube #gtubelife #gtubekids #gtubebaby #adaptiveclothing #tubefed #rockyourq

Look at this photo I just got from my fellas at Cub Scout Snowshoe Competition Weekend at Camp Daniel Boone! The boys do cook their own food, and for Davis, that means he is cooking the one actual food he can eat - chicken! 🍗 He is trialing swallowed steroids with it in hopes that the steroid will work to keep it from flaring his disease. I am told the pack is doing "pretty good" in the competition - I'm so excited for them! ⚜️
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#superheroesfordavis #cubscouts #snowshoe #competition #disabilitiesdontstopus #spirittheskoolie #inhisspiritadventures

Me & my #gtube #baby #girl listening to some #mya #yassss what y’all know about that.. urghhh memories #mommy #polynesian #momof5 #lds #momlife #diabetic #motherhood #motherdaughter

Our little Webelo Davis is gone off to Snowshoe Competition Weekend with Tim! He's 10 years old and this will be the first time they have ever gone off camping without me. I'm sure they will enjoy some father/son time. 🏕
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We are so fortunate that the weather is warm for this, because Davis sometimes has a hard time regulating his body temperature especially in extreme temps due to dysautonomia. The high is supposed to be 74 today - gorgeous weather! 🌤 .
I wish his wheelchair would have been delivered in time, but thankful he still fits in his medical stroller so he can use it to keep up with the others.⚜️
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*For those that know Boy Scout uniform shirts are supposed to be tucked in, don't worry, we know that, too 😊. Shirts that are tucked in aggravate his feeding tube site in his stomach so he has permission to wear his untucked. (Lol, I've gotten comments and messages about his shirt before, I just wanted to save you the trouble 🤣.)
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#cubscouts #webelos #snowshoe #disabilitiesdontstopus #spirittheskoolie #inhisspiritadventures #themighty #liveagreatstory

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