#65roses

MOST RECENT

My beautiful gifts from my best friend @louloubelle81xo and my beautiful goddaughter Amy. I am so blessed to have these wonderful people in my life all the smithettes are absolutely beautiful they are my family love and them to bits. #betterlifeappeal #myfamily #65roses

💛Friends and Family in Ventura County, please join us for the 30th Anniversary of Great Strides this Sunday!
🌄Rancho Tapo Community Park
3700 Avenida
Simi Valley, CA 93063
➡️Registration starts at 9am and the Walk kicks off at 10am👟🕶
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#greatstides
#walk #cysticfibrosis #curecf #fightcf #65roses #ventura #venturacounty #fundraise #walk

Follow✅ @normal_life_youtube ‪I’ve made a funny History video on CF History. Answering the questions of how and where did Cystic Fibrosis begin. Also answering why did the deadly faulty CFTR spread among the population. To watch click the link on my Bio ‪@CFAware #cysticfibrosis #History#cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfighter #cysticfibrosissucks #cysticfibrosisfoundation #cysticfibrosiswarrior #cflife #cfawareness #cfawarenessmonth #cfwarrior #chronicillness #raredisease #65roses #sixtyfiveroses #disability #illness #invisableillness #historymemes #historyfacts #old #blackandwhite

💯!!! One of our Weston Willies Team goals for 2018 was to get 100 followers. We did it!! Help us reach our last goal, $10,000. We are close! Link to donate or fundraise in bio 💯 💸🙏 #untilitsdone #cffoundation #65roses

Meet #LAFinest Nominee Dr. Kella Price 💫
Kella has more than 20 years of experience in human resources and training, and education in exercise science and nutrition, including corporate wellness programs. ✨
As CEO of Price Consulting Group, she is a trainer and facilitator. Kella is a social media expert and has presented and published on generational differences, communication, workplace effectiveness, and diversity/inclusion. In addition, she has designed numerous virtual training and development tools. Her expertise has been included in several books, including: Virtual Training Basics, The Books of Road-Tested Activities, and Pfeiffer Annual. She is also a contributing writer for T&D magazine's Learning Blueprint column, in which she has covered Google Plus and Pinterest for Learning. 💻
Kella’s sister Deanna and cousin Erin both were diagnosed with Cystic Fibrosis, so she has been involved in the CF Foundation and its fundraisers since she was a child. With her family, Kella has participated in numerous Great Strides Walks (including Chair for several years), Cycle for Life, and has completed the Grand Canyon Extreme Hike. 💜 @kellaprice @cff_losangeles

2k done, chest deffo feels like it's coping. Now for a bath and a rest, knees were much better with the K tape 👍😁
#run #fit #lungs #fitness #cf #cysticfibrosis #cfwarrior #65roses #love #peace #cfsussexdude #sweat #👍 #👊 #✌️

Slobbery kisses are THE BEST kisses! At least we think so! 10% of your purchases from our “Furry Friends” Collection will benefit a local, no-kill animal shelter named Suncoast Animal League.
https://etsy.me/2PlKzBa
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#candles #candle #candlemaking #smallbusiness #handcrafted #soycandles #aromatherapy #floridacandles #madeinflorida #instacandles #candlesofinstagram #shopsmall #shoplocal #etsy #etsyshop #adoptdontshop #cysticfibrosis #curecf #cfwarrior #65roses #justbreathe #breatheeasy #chakras #essentialoils #animalrescue #marinewildlife #savetheoceans

#CysticFibrosis is a rare disease affecting approximately 30,000 people in the US. Bristol was one of only 1,000 babies born in 2016 diagnosed. Yes baby girl, you are UNIQUE in every way- not just in your disease but in your beauty and personality too 😘
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#cffact #raredisease #rarediseasewarrior #cffighter #cfwarrior #unique #beunique #beautiful #invisibleillness #chronicillness #rare #65roses #sixtyfiveroses #cfawareness #cysticfibrosisawareness #2yearsold #cftoddler #toddlersofinstagram #beautifulfighter #curecf #curecysticfibrosis #setupnotsetback

“She was starting to think that it might be fun to be in control of her universe.”
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Canadian History was made today - the legalization of marijuana. If you’re scrolling through social media today, grab some popcorn + sit back. This is going to be wild. -

Fun fact about me? I’ve had a medical perscription for CBD/THC oil for about a year now. I have extreme stomach issues that are caused from years of surgery, blockages and chronic digestion issues. When in extreme, unrelenting pain, these oils have allowed me to have some reprieve. I’ve used it only when needed but I don’t know where I’d be without it.
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On the flip side, I don’t want to unintentionally fill my lungs with smoke when walking down the street. I take meticulous care of these lungs. I hope I don’t pass too many ‘happy clouds’ when coming in and out of stores in the coming months.
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How are you feeling about all of this? Stoked? 😏 ...see what I did there?
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Personally, I’m just curious to see how this plays out. I’m willing say that not much will change - in a good way.
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#historyismade #canada #hightimes #whatsyouropinion #maryjane #notshoes #youropinionmatters

Errybody loves parfaits! 😍😍

THIS IS NOT A FOOD POST. 🍴🙅🏻‍♀️
Sorry if that’s going to annoy anyone but I have had a few exciting opportunities recently which I am going to share some of on this channel in the hope they might be of interest and possibly useful for some of my followers!
So, the first is I have been given the opportunity to become a @fiit ambassador 🙋🏻‍♀️ - to try out their device and program as a way of trying to get a little exercise into my life...which will allow for more food in my life too 😉.
As someone who enjoyed sport and was really active up until my early 20s my decline in health due to my CF over the last few years and then my transplant meant I lost not just the ability to exercise but also the confidence to do it.
FiiT allows you to exercise at home, with a whole load of expert trainers coaching you through your tv/phone/laptop but with a monitor included so you can track your progress.
No gyms, no need to go out in the cold, flexible and tailored around your life, health and abilities?! Sounds good?? I thought so...
Anyway, I am going to give it a go and will be posting on my stories a little with my honest views/opinions and journey. Don’t worry, my feed will remain 95% about the eating but I hope others post transplant or following for other reasons might be interested and could benefit too.
So, wish me luck 😬
💡And if you want to get involved too this code will get you £20 off your #fiit membership: https://getfiit.tv/dhpt7dw
❗️Full disclosure: I have been given the @fiit device and membership free in order to review and share my thoughts on @nowwhatcanieat

I often can’t help getting post-appointment blues... (oh now the picture makes sense 😏) ••• Both my FEV1 - lung function - and weight have dropped slightly since I was discharged post-op (55% , which is around my baseline). There’s little they can do for my chronic back pain, though we are going to see if my osteopenia has got any worse. As for fatigue and night coughing? That’s just part and parcel really 🤗 More antibiotics and strong words from the nurse to get my flu jab and it’s back to the grind... I know where I’d rather be. Anyone else ever get that feeling after hospital? 📸 @charlogriff ••• #cysticfibrosis #cysticfibrosisawareness #mentalhealthawareness #cfaware #cfirl #cyster #65roses #hospital #beach #sea #southafrica #holiday #wednesdaywisdom #chronicpain #spoonie

Be brave my darling, you have faced dark times before and you’re still here now. *||* The last two months haven’t been easy. I’ve found myself sleeping for 13+ hours a day and still waking up tired. When I would think of getting out of bed and leaving my apartment I felt exhausted just thinking about it. Even when spending time with family and friends I didn’t feel the usual happiness and joy. I didn’t realize my depression had totally taken over. I wasn’t able to realize the decline of my emotional health until I was at clinic. My social worker asked how I was handling being deferred again for transplant. When I responded, “Not well. Yeah, not well...” did I fully realize I’ve been in a fog. I’m lucky that I have a great care team that makes mental health as much of a priority has physical health. Of the many reasons I created this account the main one was it gave me a creative outlet to take photographs and write. Writing about my experiences (the good, the bad, the ugly) living with Cystic Fibrosis in this big, wide, world how allowed me to meet others with CF but also other chronic illness warriors. Remember to check in on your friends and loved ones, especially the ones you see as being strong and courageous all the time. Sending you all good love and good vibes! #saltywoman #cfirl #cysticfibrosis #cfaware #cfcommunity #cfawareness #curecf #65roses #breatheasy #oxygentherapy #mentalhealth #goodvibesonly #mentalhealthawareness

I'm running my first sale! 25% off SITEWIDE. The catch? It's only one day! Oct 17! Take advantage guys! .
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#cysticfibrosis #cysticfibrosisawareness #cfapparel #65roses #awarenessapparel #sixtyfiveroses #breathe #fucf #cysticfibrosisawareness #cfapparel #cfsale

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