#1p36

MOST RECENT

He has be re admitted only 4 hours after being discharged. #mybaby #hero #thespecialmomsworld #hospital #strong #strength #fighter #superman #1p36 #specialneeds #respect #love

She has grown up heaps .almost a teenager 😖

あっという間に大きくなってしまってもうすぐ中学生かぁ。。 #長女#障害児#知的障害#遺伝子異常 #ミックスキッズ#ハーフ#そばかす#メルボルン#disability #specialneedskids #chromasomes #1p36deletionsyndrome #1p36#melbourne#mixkids#biracial

This boy is the love of my life. Last year he recived a Make A Wish. He wished to have annual passes to Disney. It was an unusual wish but Make A Wish and Disney granted it. We moved from Florida at the end of July. The day before we moved I stopped packing grabbed my kiddo and headed to Disney. Disney is his most favorite place in the world. We spent our last night in Florida at Hollywood Studios. It was bittersweet, but I promised him 5 more trips before his pass expired. One month after moving and a week before our first trip back Josh had a seizure that almost took his life. The seizure was so strong the convulsions actually broke both of his hips. It was devastating. He ended up losing 5 months worth of his annual pass. It's been a long recovery. Last week (8 months after his seizure) we went to hear some good news and get medical approval to go to Disney, but the news was not good. I have been planning a trip for Josh's 16th birthday. I wanted to make sweet 16 the best birthday ever and I've been saving to get him annual passes again. Well, instead of Disney my sweet boy will be rolling back to surgery to have another hip surgery. Disney will have to wait and I'm so sad about it. I desperately wanted my favorite boy to spend his 16th birthday at the happiest place on earth and his most favorite place. He is truly my hero.
#disney #disneyfanatic #blogger #travel #epcot #disneyworld #waltdisneyworld #myhero #mylove #fighter #1p36 #disneyblogger #disneymomandbeyond

Let's start talking about Sammie-Grace! My life change when I had her in 2015.
I've learned more and handled more than I ever believed imaginable!! Running break time with Lexi and the puppy!! #ellendegeneres #Ellenmeetme #1p36 #1p36dsa #1p36deletionsyndrome #1p36deletion #specialneedsmom
@theellenshow @portiaderossi @apryl_morning

Part one:
She is one of many tough kids I know! Sammie stole our hearts a little over 3 years ago.
We are blessed that she is alive and pray she stays with is a long time!! This post goes out to all of Sammie-Grace's 1p siblings!!! Let's get some love for those who are our angels looking over us and for those of us battling every day!! We love you!! Facebook friends, post your 1p36 kids in the comments!!! #1p36deletionsyndrome #1p36deletion #1p36 #1p36dsa #3yearsold #smile #chromosome #specialneeds #specialneedsmom #Ellenmeetme #ellendegeneres
@theellenshow @portiaderossi @apryl_morning

I long for better days. This beautiful boy will be having hip surgery in 8 days. He is truly my hero. There are no words to describe the depth of love I have for him. The extreme pride I feel for him. My heart aches for him. He shouldn't have the battles life has given him. He is amazing. He deals with his lows with so much grace and strength. I am proud to be his mom and to learn from him. He is so much better than anyone else I know. He is a true inspiration.
#thespecialmomsworld #myhero #sunshine #mylove #mommysboy #son #blogger #lifestyle #1p36 #fighter #warrior #iloveyou #inspiration

Quando a caminhada fica dura, só os duros continuam caminhando.

Mano Brown

Today is the day!!! We are waiting to go back for xrays to find out if this strong boy is finally healed. Fingers crossed.
#thespecialmomsworld #myhero #sunshine #blogger #lifestyle #specialneeds #1p36 #handsome #hip #fratures #loveofmylife #unc

Target has Mickey and Minnie bedding for older kiddos.Somebody is getting a room makeover. ❤❤❤ #disneymomandbeyond #disneyworld #disneyfanatic #travel #blogger #disneyblogger #specialneeds #1p36 #disney

His body language does not show how much he loved this zipline swing. He was flying and loved it.
#thespecialmomsworld #myhero #specialneeds #allinclusive #1p36 #raleigh #lifestyle #blogger #fun #sunshine

Eds first ever drawing. On my living room wall, of all places.
I didn't even think he knew what pencils were for. That'll show me!
#1p36

How is it possible to love someone this much? He truly is the greatest person/gift I've ever known. He is so innocent and pure. I am so lucky to be his mama. ❤❤❤ #thespecialmomsworld #myhero #sunshine #mylove #mommysboy #lucky #grateful #lifestyle #blogger #specialneeds #1p36

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