stephaniemvazquez stephaniemvazquez

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Stephanie Vazquez  Our life in tiny squares. Mostly pictures of my warrior son, Noah. 🖤 Follow his journey and help spread awareness. #sturgewebersyndrome

We took the Polar Express to the North Pole and Noah got to meet Santa and Mrs. Claus. It’s the first year he wasn’t scared and literally ran right into Santa’s arms. So happy to see my sweet boy coming out of his shell. He also really wanted to tell Santa he wants a big yellow digger and a fire truck for Christmas. ♥️ #polarexpress #train #northpole #santa #mrsclaus #christmas

Happy smile now that his appointment is over. 😬 📷: @playtimedentistry #dentist #pediatricdentistry #nocavities #saycheese

Thanks to this #glowgirl @eolmedispa my skin feels better than it ever has. 💕 #skinpen #microneedling #skincare #antiaging #essenceoflmedispa #repost #repostapp

This guy was such a great helper decorating the tree this year. 🎄 #home #christmas #tree #christmastree #helper #tippytoes #noah #santaswatching

So happy to be back home to HIM! His winky smile is the best. 😉 #homesweethome #missedhim #happyplace

One day in the Caribbean is not enough but after an intensely busy week in Florida I’m so ready to go home and snuggle my baby. #caribbean #nassau #bahamas #atlantis #twodaycruise #inaugural #travel #work #lifeatexpedia

Hello! I don’t think I’ve done this officially before so hi and welcome to our journey. I’m Stephanie, mama to our three year old Noah and partner to Mark. I didn’t create this page for Noah but once he was born and we learned of his diagnosis it because a safe place for me to share, create awareness and seek support. Noah is 3.5 and was diagnosed with Sturge-Weber Syndrome at 3 months old. He had his first seizures before he turned six months old and we were in and out of the hospital that first year. It’s been a rollercoaster and I can honestly say as hard as this journey has been, there’s been so much more good than bad. Presently Noah is 16 months seizure free and for that we are ever so grateful. Thank you for following along on our journey. 💕
📷: @idlewildphotoco
#fridayintroductions #hello #thisisus #family #familyphotography #noahsjourney #teamnoah #sturgewebersyndrome #sturgeweberawareness #raredisease #awareness

Happy Halloween! So proud of this guy. We practiced trick or treating at home this week and saying thank you. He’s usually so shy but today he was so brave, confident and on a mission.🍫 #chaseisonthecase #getallthecandy #happyhalloween #pawpatrol #chase @thesturgeweberfoundation #sturgewebersyndrome

Happy Halloween from Chase! 🎃 #pawpatrol #chase #costume #halloween #happyhalloween

Boo! 👻 🎃 Train ride, pumpkin patch and spooooky maze with his bestie. 🧡 #sundayfunday #halloween #pumpkinpatch

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