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Scleroderma Research Fdn.  America's leading nonprofit investor in medical research to find better treatments and a cure for scleroderma.

The Scleroderma Research Foundation Spring Challenge continues through April, with a new (and easy) way to donate to the Lung Trajectory Project. By texting SRFMATCH to 56512, you can make an impact on #scleroderma research. Help us find a cure and give now! And don’t forget to share with your family and friends.

#researchisthekey #collaborationisessential #doubleyourmoney #springmatchcampaign

Until we have a cure, the Scleroderma Research Foundation is committed to funding the very best research. That is why we are asking you to support our Spring Match Campaign. It is the best way we know how -- to turn every dollar donated into two! Please watch this short video about the Lung Trajectory project. It explains how much your support matters. You can donate via the link in our bio.
#srfcure #scleroderma #researchisthekey #collaborationisessential #springmatchcampaign #doubleyourmoney

The 2018 SRF Spring Research Challenge Project is here! This year, we are supporting the #Scleroderma Lung Disease Trajectory Study under the direction of Drs. Antony Rosen, Livia Casciola-Rosen, and Scott Zeger at the Johns Hopkins University School of Medicine. In the Scleroderma Lung Disease Trajectory Study, @hopkinsmedicine researchers will analyze long-term clinical data on thousands of patients collected over the last 30+ years at the Johns Hopkins Scleroderma Center in combination with employing new techniques for identifying additional scleroderma autoantibodies and cutting-edge bioinformatics capabilities to more precisely define scleroderma subgroups. The study could be an important step toward more personalized medicine for scleroderma patients and improve our ability to conduct research studies and scleroderma clinical trials. Support this incredible project and have your donation matched dollar for dollar up to $75,000 through April. Click the link in the bio to give now!
#researchisthekey #collaborationisessential #springmatchcampaign #doubleyourmoney

Would you like your voice to be heard? We certainly would, so mark your calendars because the SRF is holding our first Google Hangout tomorrow, APRIL 5 at 11AM PT / 2 PM ET. Just drop us an email at info@sclerodermaresearch.org to be part of the session. Please join us!
#scleroderma #community #google #hangout

Today we would like to celebrate Amy Hewitt (on left with daughter Lauren), who has been the SRF’s fearless leader for 10 years, as she embarks on other adventures. As Executive Director, she put her heart and soul into making #scleroderma patients’ lives better. During her tenure, her good nature and generosity always drove her professional and personal relationships. We are truly indebted to Amy’s many years of service and are proud to continue to have her as a member of the SRF family. Thank you, Amy!! We will miss you! 🌈🌹❤️

Tell us how you REALLY feel. The best way to build a community is to start a dialogue. We’ve always loved sharing updates and insights with you, but now it’s your turn. We’d like to invite you to our inaugural GOOGLE HANGOUT on THURSDAY, APRIL 5 at 11AM PT / 2PM ET so you can make us smarter about the information, resources, and issues that matter to you. We believe an informed community is a closer one and who doesn’t want to be closer? You are welcome to actively participate in our conversation or simply check in and listen. Simply type “I’m in” in the comments section or send us an email at info@sclerodermaresearch.org if you’d like to be part of this session. See you soon…well virtually anyway.
#scleroderma #community #google #hangout

Wow! What an incredible response to Autoimmune Disease Awareness Month! Congrats to our 13 winners, who will receive this super stylish SRF backpack and water bottle that will definitely make all of your friends jealous. If you were tagged in the photo, please contact us at info@sclerodermaresearch.org to get your prize. If you didn’t win this time, keep following us and stay tuned. We love talking with you!
#ADAM #scleroderma #togetherwecanfindacure #researchisthekey

Pop Quiz! This is a photo of A. American Idol auditions B. Students who signed up for a new course in "Fundamentals of Instagramming Your Food" or C. Preparations for the SRF annual Scientific Workshop where we are bustin’ it out to find a cure.
#scleroderma #researchisthekey🔑 #collaborationisessential

March is Autoimmune Disease Awareness Month! Did you know that only 13% of Americans can name an autoimmune disease? No wonder we need more awareness. Show us you are part of the 13% and willing to help us spread the word. The first 13 people who reply to this post by naming an autoimmune disease and promising to tell two friends about it will receive some special swag.
#ADAM #togetherwecanfindacure #powerofone

The cold chill just keeps lingering this season, with #scleroderma patients prone to more Raynaud’s attacks. Please share your best tips or tricks to keep flares at bay.
#tips #patientstories #raynauds

#TBT to some of the awesome #CoolComedyHotCuisine female performers over the last 30 years who have supported #scleroderma research! Check out more pictures and fun facts of the event in our most recent Annual Report via the link in our bio.
#womenshistorymonth #comedy #researchisthekey

Meet SRF Cure Crew Member, Lori Butler! Lori is a mom, a friend of the SRF, a fitness enthusiast and a #scleroderma patient. A Northern California resident, she and her family participate in their local #stpatricksday fun run and for several years, she’s turned her love of fitness into a fundraiser to support the SRF research program. Lori and her husband, Mark, have also served on the #coolcomedyhotcuisine San Francisco event committee. They say it takes a village to achieve great things and we couldn’t agree more. It’s the passion and commitment from our community that will help find a cure. We are grateful to Lori and all of our #CureCrew Members and volunteers who are dedicated to making a difference in the lives of patients. If you are interested in becoming a Cure Crew member, please contact us directly at info@sclerodermaresearch.org.
#togetherwecanfindacure #researchisthekey #CureCrew

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