slopez113 slopez113

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Stephanie Lopez  Momma to my girls ๐Ÿ‘ง๐Ÿ‘ง๐Ÿ‘ฉ๐Ÿ‘ถ I'm an oncomom to my fighter Dalilah nothing can scare me, just about seen it all ๐Ÿ™ˆ I LOVE ๐Ÿ•โ˜•๐Ÿฎ Stay gold people ๐Ÿ’›

My love... I dont know what the future holds or what even this week will hold. You are very sick. So much has been going on but right now I need to make you my main priority. Unless you've walked a step in our shoes, it's hard to explain. I can feel myself slipping into a depression and sadness. I'm not one to complain because I love company but just for today id like to ask for a bit of privacy as we try to catch up on housework and family time unless I call you for something. Recent events have led me to think about a lot of things, but know I truly love all of our family. Things will be ok. I just have a lot going on in my mind. ๐Ÿ’œ

I'm so glad we switched hospice care. Trinity kids is AMAZING! She is moving! This morning I couldn't even touch her. Trinity tripled her methadone to 15mg and she is taking additional 5mg for every hour to really get it in her. They are ALL about pain control. I love it. A bit of relief until the time comes. Love you baby.

THIS is childhood cancer. My daughter IS worth #morethan4. #NCI are your children worth more than 4? Do you see that big lump in the middle of her head? Do you know why it's there? Because we have no cure, now my daughter is dying of the disease shes been fighting for 5 years. Why don't we have a cure? Because children get less than 4% of funding to research the cancers. There are only 3 FDA approved medications that give a much better outcome. One is for neuroblastoma, but it didn't work. Dalilah has a pathway gene that finds its way around it all, just from relapse shes had over 20 different rounds of chemo that only kept her stable at a curie score of 15-20. Not acceptable. Why does my daughter have to die to get your attention? Why did any children have to die? #nationalcancerinstitute shame on you. My daughter needs a miracle, get your heads out of your asses and get your funding right!

So fresh and clean... Brushing her hair ๐Ÿ’œ

It never fails... 3 monkeys on my bed... Dad even left to sleep on dalilahs bed ๐Ÿ˜‚ Marley ONLY likes her bed so no problem there... #mybackhurts #ineedabiggerbed

She LOVES elotes ๐ŸŒฝ

How else do you snack and watch trolls?


We all went to sleep VERY late and they act like I had a 12 hour sleep...

Knocked put on that benadryl... Getting @mspatty16 platelets I'm assuming... Hope she's not allergic to you ๐Ÿ˜‚โค

When you do your eyeliner in the car... ๐Ÿ˜ธ ๐Ÿ‘Ž that's what happens when you have to move lol... Catching some zzz's there ay @sublime4life323 lol...

Shes catching some zzz's while waiting for her platelets. I had a mini nap so I feel good. Maybe need another. Doesn't look like she will be needing blood since shes at 10 but with platelets she needs them as they've dropped to 27. She needs 4 pre meds so that will take about 45 mins

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