We are getting discharged today!
We surely have a fighter for a grandson: A true warrior! From being hooked up to a heart and bp monitor, IV drip etc to being unattached except for our heart strings to him.
Here is an update:
It has been a crazy and wild roller coaster ride for all of us with Mikael.This is our 3rd time back at St Luke's Medical Center (QC) since December.
When Mikael arrived at the ER last Friday (Jan 18) his crea, potassium and electrolyte numbers were all shot with hemoglobin levels down (3rd blood transfusion since Dec), xray results also showed pneumonia.
His stats had the medical staff at the ER and at the pedia wing looking pretty alarmed so much so that they asked and reconfirmed about Aneka's DNR orders. (no intubation/no electric paddles). Clearly God has been responding to our prayer requests. They removed his oxygen assist last Monday morning. Removed his cardiogram electrodes (is that what it is called?) Monday evening and then transferred him out of IMCU at 1am Tuesday. Yesterday his heplock got blocked and the doctors not wanting to puncture him again decided to go back to giving everything orally (keeping our fingers crossed). His numbers are stabilizing and he is looking much better.
Nothing much has changed in his daily regimen except that some of his medicine was given intravaneously through his dextrose here at the hospital.
Despite his coughing and still slightly pale coloring the change in his demeanor is noticeable.From weak and fragile those past days at home to feisty, chatty and smiling.
There is a part of me that thinks that maybe when his time comes, he wants to leave us with happy memories of him and not his rag-doll like physique of the past days.
After these past couple of close-call episodes, we wonder if we are being prepared for d-day..like is this a dry run of sorts..practice? Of course we are always thankful for this precious extended time with our sweet little Mikael.
As always he continues to fight and live up to being #oursweetlittlewarrior !! We will continue to keep the faith and trust that this is all part of HIS plan.
Pls do continue to keep him & us in your prayers #chronickidneydisease