In 1998 my cousin was diagnosed with a severe case of hemophilia. A serious bleeding disorder for which there is currently no cure. But with help we can continue to improve the quality of lifeissues and eventually cure the disease. Year after year my uncle Patrick Mancini, the New England Hemophilia Association President and Chairman works his hardest to help raise money for individuals and families affected by this disease. This year in particular support is critical because of the challenges those affected face with the Affordable Care Act and it's potentially devastating affect on rare diseases including Hemophilia. By making a donation to this years 8th annual walk you’re enabling children and adults in the community to attend special programs, summer camps, and symposiums that teach best practices for care, healthy living, and patient advocacy. Young adults like my cousin are able toachieve leadership roles in and out of the community, mentor other children and create many transformations that last a lifetime. 100% of every dollar raised directly support our local chapter's advocacy, education and research initiatives.
Click the link in my Bio to donate!