“No one is more grateful for innovation in medications for multiple sclerosis than me. Last year I was reliant on a wheelchair and Social Security Disability. Today I’m taking a newly approved medication, working and focused on my family. But with the excitement and hope comes feelings of anxiety: how can we, people living with MS, afford these medications?
I’ve been living with MS for 16 years and I am currently taking my sixth MS DMT. Before starting each, I had to obtain pre-approval through my insurance, find a pharmacy that could provide it and brace myself for the costs. When medications cost a minimum of $5,000 per MONTH, that deductible comes fast; the start of each health insurance year is a struggle. …Now I often wonder what will happen if I can’t afford my medication. I worry about becoming a financial burden to my family. We’ve already missed out on so much over the years…
If I don’t take the medication, I’ll be back in a wheelchair. I’m young (only 43 years old!) and I still want to work. I will continue to be an active part of my family’s life. I plan to dance at my kids’ weddings someday. Someday I will have grandchildren; I want to help, to hold them, and to carry them. For that to happen, we need to make medications affordable, make sure people can get the medications they need, and have a health system that is transparent and puts the patient first.
Without access to affordable, necessary medication, I am unsure of what the future of my health will look like. MS is volatile and unpredictable. The price and accessibility of medication to treat my MS should not be.” ~ Jessica
Nearly 300 #MSactivist leaders are in DC this week at the Public Policy Conference educating officials about #MSactivist priorities, including access to MS medication. Add your voice: http://ntl.ms/ActionAlertPPC18. #MSPPC2018