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morningstarfoundation morningstarfoundation

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Morning Star Foundation  Bringing LOVE, HOPE, HEALING and LIFE to children with severe heart disease. China-Uganda-India

http://morningstarproject.org/donate/

His little heart was repaired this morning in India. He's resting and recovering in the ICU. The Morning Star family and Philemon's family say thank you. Thank you for praying, thank you for giving, thank you for believing! Keep praying for his recovery and for his traveling buddy Mercy, who's case is being reviewed on Wednesday by her team. Pray with us for her upcoming surgery and healing of her broken heart too. #uganda #india #heartwarrior #surgery #hope

His name is Philemon, he shares his mommy and daddy with his twin brother and sister. They have been searching and hoping and praying for help. They prepared passports for travel believing help would come. We are so excited to be a part of their journey to healing! #hope #chd #surgery #uganda #india

Our little travelers have brought their mamas home! Back in Uganda with repaired hearts, renewed hope and so much JOY!!! #uganda #india #heartsurgery #hope

Our precious Addie is now forever healed -- heart perfectly whole in Heaven. We are heartbroken to say goodbye, and we hoped desperately for a different story.
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Her life was worth the risk -- hope is always worth the cost -- and we will never stop choosing hope.
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Addie will never be forgotten, and we will continue to risk, to hope, to fight for these brave hearts that come through our doors -- hearts just like hers.
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We were the most blessed to get to love her and she changed all our hearts.
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Thank you for helping us choose hope -- for praying and donating and allowing us to stand for her. We will always be grateful for you - and the way you helped us love our Adriel Brave. #chdwarrior #chdawareness #lethopeshine #ourAdrielBrave

Addie Brave was accepted as a transfer to the neuro ICU, and will be moved there sometime this morning. They are her very best chance of overcoming this fungal meningitis... and though it was one of the most difficult conversations ever possible, I am grateful beyond words for a "yes".
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The neuro attending looked me straight in the eye and asked point blank -- "Why do you want to help this child? Her costs are so expensive and she will have so many problems -- a very difficult life. We have so many children here who have families and need help with the cost... and they will not have brain and heart problems like her. She doesn't even have a family. If you have the money, you should help them instead."
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Addie Brave does have a family. We're right here. Phone numbers were exchanged -- a promise made to call anytime she has a family needing financial help, because we will always stand with and for them too -- but today we are here for Addie. Her life is so worthy.
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I try to be so careful with how often I do this here -- but friends? We do need you to stand with us for Addie. Her medical bills have already totaled more than $45,000 USD, and yeah -- that's no joke. The road ahead is not certain or easy... and we need you to help us fight for Addie's Brave hope.
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Hope costs -- and yeah, it's a risk -- she might not come home. That doctor eventually said yes, she would accept her -- but she can't promise an outcome. There's no guarantee that this all will be "worth it".
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Here's the thing. We're not asking for a promise or a guarantee -- no one ever can. We're just fighting for hope. Hope costs -- and she is worth it. Her fight. That chance. No matter what.
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If you want to partner with us -- stand with Addie and her warrior fight... donations can be made at www.morningstarproject.org/donate/ (link in my profile). Please know how truly, truly grateful we are. πŸ˜­πŸ’›. #chdwarrior #thehospitaldiaries #ourAdrielBrave

Please be praying!!!
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I am on my way to the hospital to meet with the chief of cardiology, the chief of neurology, several respiratory therapists who have been involved with Addie's care, and the head of infectious disease.
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Please be thinking and praying, as we need to advocate for our girl with the greatest respect, the bravest fight, the most daring courage, and steadfast strength.
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To be vulnerable in this space, extensive brain imaging and testing has shown that Addie has sustained moderate to severe brain damage, and neuro is not optimistic/unsure how much this may ever recover.
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Given this new information, compounded with the severity of her heart defects and her multiple systemic infections, the doctors feel strongly that the outcome is now no longer "worth the cost or effort" -- and would like to discuss removing Addie from all treatment and care.
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Quite simply? I vehemently disagree. Her life has value and worth -- she is named, and loved, and chosen. She is not defined as orphan -- she is called daughter... and I will fight for her as mine. We will not stop fighting for her every chance for hope -- her every chance to LIVE -- until it is clear her fight here is done.
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I do not believe in prolonged suffering, and I know the line when all that can be done -- has been done. I will gratefully step across that line, when it is clear that we've given it all we've got and her fight on this earth is done.
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This I know --- We are not there. Addie is not there. My girl named Brave is still fighting, despite all odds, and we will go to battle to protect that fight.
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Thank you all for loving Adriel. Thank you for showing up for her -- covering her in prayer and giving to provide the means for her fight. (Donations can be made specifically for Addie's medical care at the link in my profile). Thank you for your prayers as we go into today -- this girl is always worth the fight. Hope is always worth the risk. #chdwarrior #thehospitaldiaries #ourAdrielBrave

Update on Toby and Adriel!!!!
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Brave. He wears it so well, and I ask him all the time -- "Toby? Where's your Brave?" -- a perfect purple little exclamation mark now forever marking his chest.
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I didn't mean to disappear here, for the quiet to stretch so long. We're all here -- all just fighting for Brave in a million different ways -- Toby showing the way.
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I'll update more about our Adriel girl --- she keeps warrioring on in that Chinese ICU after her emergency surgery several weeks ago, despite all odds. It's been a month full of the hardest conversations, hours in ICU talking with the doctors, but Little Girl is proving that hope keeps showing up -- Hope never gives up. And like I told her doctor: as long as Addie fights? So will we.
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There's a new tiny one here that I need to introduce to you too... a little baby boy who, I am convinced, came with the sole intent and purpose of stealing your actual heart. You have been duly warned.
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It's true... July into August hit like a whirlwind -- and we're all just hanging on. On to hope... to Brave... to faith. Some seasons are just like that, for all of us, yeah?
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And.. fine -- when I need another reminder? I might just ask Toby one more time... "hey kid --- show me your Brave"... and throw my arms up with him. #chdwarrior #tobythebravestwizard

Our tiny baby Addie (9 months old, but so very small) made it through her very complex surgery but is still fighting for her life in ICU. Please pray for her to be strong enough to fight off all infection, and for her heart to be protected. She is the bravest little girl we know πŸ’›.
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Many have asked, donations can be made to help cover her surgical costs at the link in our profile (morningstarproject.org/donate). Note "Addie" in the comment field. Her surgery expenses are estimated to be close to $40,000 USD, so we are so grateful for the way you have helped us say yes to hope for Addie. #chdwarrior #ourAdrielBrave #chdawareness #lethopeshine

Our beautiful little Addie arrived at our home and was immediately admitted to the ICU. She is currently in critical condition and needs immediate emergency heart surgery. She will be having open heart surgery tomorrow afternoon, which is tonight US time. Please be praying for her! #chdwarrior #heartsurgery #hope #ouradrielbrave

It's with a sad heart that we share the sad news that baby Joseline has passed away. A couple of days before she was supposed to travel to India for heart surgery she was admitted to the hospital. She was then transferred to a different hospital that could care for her specific needs. Shortly after arriving at that facility, she passed away and is now fully healed. Please be praying for her family as they mourn this tragic loss. #uganda #heartdisease

After having a successful heart surgery, baby Jane and her Mama are finally home!!! Her Dad couldn't be happier to have his family home, healed heart and all!!! #uganda #india #chd #lethopeshine

Little miss Emma loves to make us laugh, and this does it every time! πŸ˜‚πŸ˜ We sure love this girl!!! #chd #lethopeshine #love πŸ“·: @yamidhr

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