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Michelle Temkin  || Ulcerative Colitis Warrior || Stenographer || || *Captioner* ||

http://online.ccfa.org/site/TR?s_src=boundlessfundraising&pg=personal&fr_id=6806&s_subsrc=%3Asub_source&px=2801066

☠️always appreciate your health, bitches☠️ it’s literally the greatest gift you could have #myIBD #RaiseAwareness🎗

It’s Crohn’s & Colitis Awareness Week. This time I’m going to share the journey I’d been on these last 6 months.
In May I went to see a specialist at NYU who only sees patients with Crohn’s/UC. I’d told him about the years + that I’ve been on every single medication either alone or combined for patients with UC + that nothing had helped. He told me I had two options basically. One was surgery. The other, to participate in a Phase Two clinical trial for a new drug to treat this disease. He said in this particular trial I had a 92% chance of getting the drug + not the placebo which made me a little happier to hear. I decided that this was something I needed to do. After all the tests + procedures it was determined by a panel that i was sick enough to be part of the trial. Wild, right? SICK ENOUGH. I started the drug 8/21 6 pills in the morning+ within 2wks I was literally a new person. I won’t go into all the things that had changed. Being sick for so many years, it just had become my normal. I can’t remember ever feeling good + it was AMAZING. Happiness was constant bc my health was finally improving. At week 8 of the trial, they do another procedure to see if you are having improvements. And I DID. for the first time in 11yrs after my scope I finally heard a “we are seeing improvements!” Instead of “the disease is still extremely active” Then week 8 they rerandomize you + unfortunately my luck took a turn + I got the placebo + now back at square one.
I’m part of history though which is cool + now we know something has finally helped me + hopefully we can get me on the right track. It’s been a long journey but I wouldn’t change anything. I am who I am bc of this disease.
I just wanted to post some pics to show how misunderstood this disease is bc of how one looks when they’re ill. Pics from my S16 cruise when I was so skinny I couldn’t stand up straight bc I was in such pain + then the steroids side where I’m a balloon but finally feeling a little better. And then finally a pic of me on 9/23/17 when I felt the best I’ve ever felt in my life. Happy+healthy + I can’t wait to be that person again🎗 #MyIBD #GotGuts

android pic so shit quality 😛 and this chick always gotta make me look whiter than I am but I luv this lady more than anything my lil cutie patootie mamacita👯‍♀️✨

✨💙the most beautiful tree you ever did see💙✨

This past weekend I volunteered to work my first Camp Good Grief, which is a weekend camp for children and teens who have had a significant loss in their family whether a parent, sibling, or guardian. To say this weekend was emotional is an understatement. These kids are resilient and have inspired me in every way. To see them come on Friday one way and leave on Sunday in another was incredible. The transformation in just two days made me realize how great of a thing this camp really is. The stories I've heard this weekend were devastating and no one should ever have to experience these things but especially at such a young age. But like I said, kids are resilient. I was honored to be a part of this time for them and to help them smile and laugh even if it was just for a weekend. Getting Thank You cards from some of the kids made my rough few weeks 100x better. An experience I'll never forget. Can't wait for the next one! ✨🌼🎭🎨🎈💝

Looook at meeeeeee I'm Sandra fkin D, betch✨👱🏼‍♀️

👨‍👩‍👧‍👧💕all together again💕👨‍👩‍👧‍👧

casual thursday #TransparentBrows

sorry but I'm having a good weekend ok✨🤘🏼😛

The way I spice it up with the Mac-Mac brushes
L'Oreal got them wat-ballermelon crushes
That's probably the reason all these boys got crussssshESS...✨💃🏼🤘🏼🙌🏼🚬😝😈💍💋💄🤙🏼🏃🏼‍♀️🕶🐳🌺🌭🍆🏆💸⚒🔪💊💉🎉🔒🚯♿️🎶

💸✨back to traveling all over; soon enough we gonna be steppin' it up and it shall be to new countries✨💸

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