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Kerrie♿️Newton-PPMS  MS & disABILITY awareness advocate📢MS clinical exercise trials💪🏼& Fundraise for MS research so our sons & daughters may live in a world without MS💋

http://www.mamamia.com.au/ms-personal-story/

This is @sallysingsing - Sally was there when I found myself housebound for a few years due to MS. Sally came to my house & taught me singing but more than that she showed me kindness during some dark times. Fortunately most people don’t have to experience the loss of basic freedoms- things like meeting a friend for a coffee, taking a walk along the beach or just having a swim to cool off. Sally is an angel, she crossed my path & helped me change my direction & for that I am grateful.
I love this video Sally took during a quick break between teaching her students today. I love her authenticity and her voice reminds me of the beautiful old movies! 💚🎶🍃
Sally has taken her teaching to the Blue Mountains so my family & I miss her a lot.
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#KissGoodbyetoMS#multiplesclerosis#motivation#singing#msfindacure#msgetinvolved#mssociety#msresearch#msexercise#mstherapy#foodforthesoul#friends#bluemountains#katoomba#teacher#tibetansingingbowl#wheelchair#wheelchairlife#neurological#disABILITY#accessibility#laveinrose

Well today has been a long time coming- I had my first dose of Ocrevus. It’s the first ever med for Primary Progressive MS & hopefully it will slow down the progression of this disease. Progressive is an adjective which normally describes positive progress which certainly isn’t the case in PPMS. I was probably a little naive 9 years ago as I put my faith in research & that it would be quick & that ‘I’d be right’ as a result. It hasn’t quite worked out that way but I know the next 10 years will be different.
I had the great pleasure of speaking with some amazing researchers 👨🏽‍🔬👩🏻‍🔬 from all over Australia & from around the world before the MS Conference last week in Sydney & WOW are they excited about all the MS research projects they’re working on atm. While I probably won’t be buying any running shoes too soon, I’m confident there will be some MS breakthroughs on the horizon for the many thousands of people struggling to live with this disease 🙏🏻
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#kissgoodbyetoms#realmsresearch#msresearch#wheelchairlife#curems#msawareness#msexercise#multiplesclerosis#neurology#neurological#autoimmunedisease#ocrevus#wheelchair#wheelchairdontcare#accessibility#disABILITY#ndis#bcells#doitforms#msfundraiser#candlelover#motivation#meditation#msgetinvolved#iamadaptive#adaptiveexercise#lipstickcureseverything#sydney#australia

Glamour & high fashion are definitely not big in my life atm 😂I am continuing my MS exercise study, this time adding arm cranking to the Electronic Stimulation on the legs to add some aerobic exercise. Nose pegs are not my favourite fashion accessory & It's just so lovely to finish the session with a lap full of saliva! 😩💧😂
#kissgoodbyetoms#medicalresearch#sydneyuni#msexercise#accessibility#iamadaptive#keepmoving#wheelchair#wheelchairlife#exercise#fitness#multiplesclerosis#healthscience#msresearch#msstudies#exercisephysiology#disABILITYawareness#msawareness#aerobic#health#adaptiveexercise#training#rehab#msfundraiser#candlelover#neurological#physicaltherapy#physio#ndis#researchstudy

For those following my MSRA Electronic Stimulation trial, I gained 19% in muscle mass in the legs. Having Primary Progressive MS, I've never regained anything that I've lost so this is quite miraculous for me! I am continuing the exercise once per week which is maintaining the mass. It has definitely helped when I weight bare as I can rely on my legs to hold me up when transferring. I am happy. 😊Thanks Frederick for all your help & all the best for your final semester studies🎓
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#msresearch#exercise#msexercise#medicalresearch#multiplesclerosis#wheelchairlife#wheelchairexercise#electrostimulation#fes#keepmoving#kissgoodbyetoms#sydneyuni#exercisescience#health#motivation#adaptivefitness#disABILITY#neurological

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