Join us in sending positive thoughts to baby Arlo. So tiny yet so strong #Repost @eldalto (@get_repost)
Day 152 - Our first night rooming in with Arlo!
Thought now might be a good time for a bigger update.
So oxygen first. When Arlo returned from the children's last week the Consultant had looked at his sleep study and it wasn't as good as they'd been hoping. It showed his sats sitting quite low whilst asleep and the odd desat/brady. So he was put straight back onto low flow oxygen at 0.1 and that's what he'll be coming home on.
Feeds wise. He's now upto 180ml per kilo per day, and still wanting more, little piggy! He's also piling on the lbs now which we're all very pleased about after his weight being static for a good while. This might be partly because his jaundice level is now pretty much normal (yay!) so he's absorbing fats better, but also because he's back on his oxygen now and that helps with growth. He's now very comfortably in Newborn clothes (apart from Next clothes which have to be 0-1 month, because they shrink terribly on a 60 wash 🙄). We had a MDT meeting on Thursday with everyone who's involved in his care. It was really helpful and also a little bit emotional. To have gotten to this point, after how unwell he was... Well, t was a big day for him, and us.
Discharge has already been pushed back slightly, which we're absolutely fine with. After this long on a neonatal unit you really do learn to not pin your hopes on dates too much because stuff changes so quickly, it's better to just try and go with the flow (faaaar easier said than done, I know!). He does need his eyes checking again before we go home, and of course there's still the possibility of surgery so we need to bear that in mind too.
Cont. in comments. #25weeker #premature #prematurebaby #preemie #premmie #roomingin #milestone #ArloRiver #TheAdventuresOfArloRiver