kennygy2k kennygy2k

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Kehinde Salami  Founder and Director of @sicklekan_ Cic, and Sicklekan Sickle Cell Foundation. Sicklekan.info@yahoo.co.uk #sicklecell #charity #mentor #advocate

Was a fantastic event at the Redbridge Labour Anual gala event, got to catch up with the mayor of London, @sadiq Khan and various other Labour MP's interested in working together to support those living with sickle cell all across London.
Better believe a change is coming my fellow sickle cell warriors πŸ’ͺπŸΎπŸ™ŒπŸΎπŸ˜Š
#sicklecell #sicklecelldisease #london #mayoroflondon #sadiqkhan #labourparty #community #grassroots #charity #redbridge #health #wellness #support #progress #photo #breakthesilence #speakup #sicklekan

Wow Stan Lee @therealstanlee was the guy responsible for everyone's childhood being greater and better.
Rest in Peace Mr Marvel, your work continues to inspire others on the big screen it's just so sad you couldn't hang on to infinity war part 2.
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Gone but never forgotten. We shed a tear but also smile for the great memories you have us and continue to.
#ripstanlee #stanlee #marvel #superhero #marvelcomics #legend #inspiration #restinpower

***Link In Bio*** Sickle cell disease despite being known as a national health risk by the World Health Organisation still isn't listed as a condition worthy enough of getting prescription exemption from the UK government. .
We can use our numbers to get this discussed by the powers that be and put pressure for change. .
It starts with your signature let's do our bit so if you are a warrior, friend or know someone affected by sickle cell pass this on and let's fight this together united.

#sicklecell #sicklecelldisease #medicalexemption #prescription #healthrisk #winter #petition #fight #sign #share #together #better #health #injustice #wellness #linkinbio #london #uk #breakthesilence #speakup #sicklekan

Got moved to guys hospital from King’s as they specialise in my treatment as the Infection spread to my left eye from my ear, looking like I did rounds with AJ. .

However sickle cell pains kept to a minimal and now can drink and eat with no pain.
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So perfect time to post a pissshuuure with the S on my chest cos even without the cape we as sickle cell warriors are super πŸ’ͺπŸΎπŸ‘ŒπŸΎβœŠπŸΏ "You are as strong as the challenges you face"
#KennyG2018

Now to face the other challenge of getting a decent trim without messing up my shape up πŸ˜©πŸ˜‚
#sicklecell #earinfection #eye #health #wellness #super #superman #naijajollof #guyshospital #superman #health #wellness #life #london #breakthesilence #speakup #sicklekan

Surgery successful to deal with my ear infection which triggered a sickle cell crisis in my ear.
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Had to have this emergency surgery as I was deaf in my left ear due to the swelling. Ear still swollen but now I'm truly on the road to recovery.
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Like I said before when sickle cell knocks us down we just got to come back up swinging πŸ₯Šbetter and stronger. Always

#sicklecell #sicklecelldisease #ear #infection #ermergency #surgery #Incision #inflammation #swollen #cut #faith #hopefull #health #wellness #rest #recovery #success #stronger #better #positivity #breakthesilence #speakup #sicklekan

Dealing with a chronic health condition can be overwhelming at times, however as I recover I say to myself, you are not weak because you have sickle cell disease. You are strong because you have it πŸ’ͺ🏾✊🏿
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Shout out to the warriors that keep bouncing back, better and stronger than ever you are the real MVP's
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#sicklecell #medication #painrelief #rest #recovery #inflammation #chronicillness #health #wellness #strength #courage #mvp #positivity #faith #goodvibes #smile #breakthesilence #speakup #sicklekan

Today was a proud and emotional moment for myself seeing my daughter and @sicklecelladvocate meet for the first time, and just click like long time friends.
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What's more incredible is the fact that both were able to guest speak at the NHS blood donation event and say thank you to those that have donated blood 100 times or more saving 3 lives at a time.
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It's also amazing that the total sum of those who attended that gave blood contributed to saving 26,000 lives via their selfless donations of blood. πŸ˜³πŸ™ŒπŸΎπŸ‘πŸΏβ€
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Real life heros don't always wear capes but they are just as fantastic.
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Please visit www.blood.co.uk to sign up to give blood today as your blood really and truly saves lives πŸ‘ŒπŸΎπŸ™ŒπŸΎ
#sicklecell #sicklecelldisease #sicklecellawareness #blooddonation #givebloodsavelives #princess #health #wellness #blackgirlsrock #guestspeakers #youngstars #smile #proud #supersheroes #london #love #sisters #positivity #thankyou

Throwback to last month's @ciannassmile sickle cell masquerade ball in Reading with @unsicklemycells πŸ‘ŒπŸΎ
#sicklecell #awareness #ciannassmile #unsicklemycells #reading #smiles #teamwork #masquerade #sicklefly #sicklestrong #life

Time and time again we have been screaming for advancements in treatment and medicines in sickle cell disease. How we get there is through such trials as these which are medical breakthroughs which I felt compelled to take part in.
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I thought instead of trying to explain myself why this trial is taking place why not get Henry and Yemi to explain in greater detail why this trial is taking place for the new study drug IMR-687
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Also there are places left for this trial which will also pay you for participating. If you would are a sickle cell patient and would like to get involved please either DM us or send an email to us via sicklekan.info@yahoo.co.uk

#sicklecell #sicklecelldisease #clinicaltrials #bbcnews #Bame #medicine #research #treatment #new #progress #health #wellness #london #guyshospital #positive #awareness #igers #IMR-687

We have some fantastic news for patients, caregivers, parents and advocates.
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1) We are working with both Imara Inc who are enrolling patients between 18-50 to take part in a clinical trial for a new possible treatment for sickle cell called IMR-687.
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Travel costs to and from the venue will be reimbursed as well as compensation for your time and effort.
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2) We are working with Adkins Research group who want to interview patients, and parents/guardians of patients who have to condition in a series of paid, one to one and telephone interviews.
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If you are interested please send an enquiry to sicklekan.info@yahoo.co.uk and well take your details down to register and will get a research agent to book you in Asap.
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We can be the change we need for not just awareness but treatment and care. β€πŸ™πŸΎ
#sicklecell #sicklecelldisease #awareness #treatment #clinicaltrials #new #signup #register #health #wellness #family #parents #children #life #exciting #london #change #breakthesilence #speakup #sicklekan

#streetdance #vibing #children
Sometimes just dance and be happy. Love this so much β€πŸ’–πŸ‘ŒπŸΎ
#dance #happy #goodvibes #watch

Young Miai, warrior princess, sickle cell warrior and fantastic advocate. Educating the world about sickle cell disease.
We love you Miai.πŸ’–β€πŸ‘πŸΏ
#sicklecell #awareness #princess #blackhistory #blackhistorymonth #sicklecelldisease #blackgirlsrock #inspiration #health #wellness #positivity #proud #love #instavid #blooddonation #giveblood #bame #smile #breakthesilence #speakup #sicklekan

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