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Kehinde Salami  Founder and Director of Sicklekan Cic, and Sicklekan Sickle Cell Foundation. Sicklekan.info@yahoo.co.uk

http://www.sicklekan.com/

๐Ÿ“ฃAnnouncement!! โ€ผ๏ธโš ๏ธ
Reeepooossttt
So we have less than a month till our blood drive event in partnership with @givebloodnhs @wantsscg @unsicklemycells @sicklecellunite @scafuk2000 @melvninmvde @thewallofcomedy @wordonthecurb @lazarastorm will be held on Friday the 16th of March.
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Why the need for such sessions?
Currently there is a shortage of BAME blood donors registered to give blood. These blood donors due to their unique blood subtypes are needed to treat members from the BAME community that are affected by sickle cell disease and other rare conditions.
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Your blood could save up to three lives. Donโ€™t delay save a life today.
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You can register via www.blood.co.uk, or via phoning 0300 123 23 23.
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All are welcome to attend as there will be food, refreshments, guest speakers and entertainment on the day.
We look forward in seeing you there. ๐Ÿ‘Œ๐Ÿฟโค๏ธ
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So the question is will you be there?
#sicklecell #sicklecellawareness #bloodrive #blooddonation #savethedate #register #signup #music #event #morning #health #wellness #life #london #community #love #help #nhs #food #entertainment #london #church #catford #charity #goodcause #breakthesilence #speakup #sicklekan

Sickle cell is hard to manage at the best of times but imagine having a crisis while pregnant? Breastfeeding ? While your baby is crying or just trying to chase after toddlers, teens and young adults.
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This is what I see when I see many mothers with the condition not only fighting the illness but revelling, killing it and being the super heroes to their children, grandchildren and families holding it down.
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We love you, we need you and we appreciate everything that is special about you. Keep going ladies ๐Ÿ™Œ๐Ÿฟโค๏ธ๐Ÿ˜๐Ÿ˜˜ Tag an awesome mother with the condition in the comments section and letโ€™s show them some massive love ๐Ÿ™Œ๐Ÿฟ๐Ÿ˜โค๏ธ
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#sicklecell #sicklecellanemia #sicklecellwarrior #strength #superhero #wonderwoman #courage #respect #motherhood #backbone #rock #love #appreciation #thankyou #pregnancy #amazing #inspiration #smile #powerful #blackwomen #unconditionallove #melaninpoppin #savingtheday #powerful #breakthesilence #speakup #sicklekan

When your gassed because you just watched black Panther then buss a little two step small small after hearing an old school banger at the after party.
The positive vibes were real man ๐Ÿ™Œ๐Ÿฟ๐Ÿ™Œ๐Ÿฟ๐Ÿ‘Œ๐Ÿฟ
#blackpanther #brixton #ritzy #music #oldschool #dance #twostep #naija #nigeria #nativeattire #fun #wakandaforever #ogaatthetop #positivevibes #melanin

#BlackPanther #brixton #grouplinkup

Just doing native small small in the native attire with crew at Black Panther yesterday๐Ÿ‘Œ๐Ÿฟ๐Ÿ™Œ๐Ÿฟโค๏ธ with the lovely Temisan and organiser ๐Ÿ‘๐Ÿฟ
#blackpanther #wakanda #brixton #ritzy #african #nigeria #naija #fresh #native #proud #unapologetic #lookinggood #chief #oga #fun #goodvibes #movie #melaninpoppin #smile #wakandaforever #london #style #naijajollof #family

#flashback #sicklecell #londonlive

These two clips took me down memory lane to almost two years ago starting this journey and sweating tremendously due to nerves being interviewed on London live talking about sickle cell and the charity in general. .
Looking back I can truly appreciate the fact that @londonlive gave sickle cell a platform on the news and an opportunity for me to learn from the various mistakes I made in the interview due to nerves ๐Ÿคฆ๐Ÿฝโ€โ™‚๏ธ๐Ÿ™ˆ #sicklecellswareness #sicklecellanemia #sicklecelldisease #news #london #nervous #flashbackfriday #fbf #twoyearsago #sweating #interview #tv #firstime #thankful #grateful #charity #platform #education #health #wellbeing #life #sicklecellwarrior #nigerian #breakthesilence #speakup #sicklekan

#sicklecell #jamaica #warrior

Love reading stories about young sickle cell advocates making a difference.
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This story curtesy of youth link Jamaica covers the story of young sickle cell warrior Jamal who not only has sickle cell but continues to push the boundaries in Jamaica in regards to awareness and his shear determination to succeed despite having the condition refusing to let sickle cell hold him back. .

We the Sicklekan community are inspired by his efforts and wish him every possible success in the future โค๏ธ๐Ÿ™Œ๐Ÿฟ๐Ÿ‘Œ๐Ÿฟ
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#sicklecellwarrior #sicklecelldisease #youngadvocate #jamaica #rolemodel #inspiration #motivation #youth #smile #proud #family #support #news #sicklecelltrait #happy #positivity #futureleader #globalawareness #health #wellness #life #breakthesilence #speakup #sicklekan

Hahaha I remember this very well. Throwback to a couple of years ago where my princess who was going through her own sickle cell crisis asked me to sing to her to take her mind off the pain. I obliged albeit poorly ๐Ÿ˜ฉ๐Ÿ˜ข๐Ÿ˜‚ but it got giggles and smiles from her ๐Ÿ˜โค๏ธ๐Ÿ‘Œ๐Ÿฟ mission accomplished ๐Ÿ™Œ๐Ÿฟ๐Ÿ™Œ๐Ÿฟ.
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On a more serious note, caring for a child with sickle cell disease isnโ€™t easy. Me and her mother were blessed with the fact that she was diagnosed at birth and that she had early access to the best treatment available which is still ongoing to help her live a healthy and normal life as possible. .
Her personal message to warriors around the world is to get their daddies to learn to sing better ๐Ÿ˜ฉ๐Ÿ˜ข๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜โค๏ธ๐Ÿ™Œ๐Ÿฟ. Duly noted princess Angel ๐Ÿค—
#throwback #tbt #sicklecell #sicklecellwarrior #sicklecellanemia #princess #daughter #singing #morning #music #painmanagement #family #snapchat #smiles #hugs #love #education #rest #recovery #health #wellbeing #crooner #fatherslove #breakthesilence #speakup #sicklekan

Flash back to last week where @thevoicenewspaper covered a break through story on sickle cell that could see people affected by the condition live pain free.
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While it was a pleasure for us to be featured in the story. I still stand by my point. There needs to be as much investment for people affected by the condition in regions in Africa and the Caribbean where the bulk of sickle cell patients are affected by with limited access to treatment/education as there is in the west to combat the chronic illness respectively. .
#sicklecell #sicklecellanemia #sicklecelldisease #tbt #sicklecellawareness #news #breaking #treatment #cure #chronicillness #pain #thevoicenewspaper #newsstory #africa #caribbean #research #education #cells #molecules #laboratory #comingsoon #london #morning #hopeful #future #breakthesilence #speakup #sicklekan

A massive thank you to @itsmechan83 for sticking to the promise she made to herself to donate blood.
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Not only was this her first time, @itsmechan83 has also pledged to make blood donation a regular part of her lifestyle. .
Thank you for giving the gift of life to up to three people โค๏ธ
If you also are interested in giving blood you can via visiting www.blood.co.uk
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#sicklecell #sicklecellanemia #sicklecellawareness #blooddonation #firsttimer #lifesaver #supehero #hero #thankyou #love #givingback #smile #standingovation #BAME #black #asian #community #help #support #signup #register #now #breakthesilence #speakup #sicklekan

Flash back to couple of weeks ago when we were invited to Parliament with various sickle cell, stem cell and organ donor organisations.
This time with thanks to @amsie_rose co founder of @sicklecellunite we were able to catch a short interview with Beverly De-Gale from the African Caribbean Leukaemia Trust (ACLT) who are actively advocating for more donors within the BAME community
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Beverleyโ€™s close ties with this campaign and creating the charity was due to her son Daniel De-Gale needing an bone marrow transplant due to complications with Leukaemia in the 1990s and finding the odds due to their being so few registered donors at a staggering 250,000 to one to finding a suitable match. .
For more information on the ACLT you can visit via http://aclt.org/

#sicklecell #sicklecelldisease #leukemia #stemcell #bonemarrow #blooddonation #organdonation #parliament #westminster #sicklecellanemia #sicklecellwarrior #aclt #bame #black #asian #savelives #register #donate #breakthesilence #speakup #sicklekan

Great props to Beenie Man for this Repost from @thejamaicastar using Dancehall artiste @kingbeenieman says that he plans are underway to relaunch his foundation. According to the entertainer, the Beenie Man Foundation was established decades ago but was placed on the back burner for a while. "Mi did launch it already through Shocking Vibes but too much man did wa nuff up in it. But everything iron out now and the plans are in place as to how it will operate and generate funds for charity," he said. Beenie Man toldย THE STAR that the foundation will be aimed at the youths and persons affected by sickle cell, which is the most common genetic disorder in Jamaica. Beenie Man, as well as his son, Moses Jr, suffers from the effects of the sickle-cell trait. Beenie Man said that although he does not allow the disease to affect his career there have been times when he is struck with pain while onstage. "Sometimes when the fans dem start see me move pon one foot a it enuh, a nuh dance me a dance but me nah make it stop me nuh time," he added.
Read more:ย bit.ly/BeenieManFoundation
#BeenieMan #Foundation #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellswareness #sicklecellwarrior #music #reggae #dancehall #health #wellness #celebrity #help #support #thankyou #breakthesilence #speakup #sicklekan.

Community outreach!!
Whatโ€™s the best way to raise awareness? .
Connecting with various members of the community on various projects.
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Last week we were fortunate enough to connect with individuals, organisations affected by sickle disease passionate about raising awareness for the condition within their local and wider community. Shout out to @moremoneymorelove @mizznellynellz @africansdoeverything @sola_popoola @elormlovex @petrapetra__ For a productive meeting. I left truly inspired believe me.
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#sicklecell #sicklecelldisease #warriors #strong #united #meeting #inspired #sicklecellawareness #sicklecellwarrior #awareness #sicklecellmatters #community #love #smile #family #london #thenextgeneration #health #wellness #nhs #progress #teamwork #breakthesilence #speakup #sicklekan

Hahaha this is hilarious the excitement over Black Panther ๐Ÿคฃ๐Ÿ™Œ๐Ÿฟ๐Ÿ™Œ๐ŸฟI would have been buzzing too.
Thanks also for the love and continued support wearing the Sicklekan shirt too bro ๐Ÿ‘Œ๐Ÿฟ๐Ÿ‘Š๐Ÿพ๐Ÿ˜‚๐Ÿคฃ
Repost from @axelcomedian When he found out we got tickets to see Black Panther premiere ๐Ÿ˜œ ----------------------------------------------------#blackpanther #morningvibes #tamtambumbum #INGL #ImNotGonnaLieee #funny #hilarious #music #jokes #excitement #father #son #dance #blackpanther #wakanda #movie #premier #axel #thankyou #breakthesilence #speakup #sicklekan

Here we have founder and CEO @iamchaneltaylor of @unsicklemycells capturing the attention of the whole room with her sickle cell vision and why there is greater need for more support for community organisations advocating for blood, organ, stem cell and bone marrow donors within the BAME community in parliament yesterday. .
Didnโ€™t she do an amazing job guys? ๐Ÿ™Œ๐Ÿฟ๐Ÿ‘๐Ÿฟ
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#sicklecell #advocate #stemcell #organdonation #bonemarrow #parliament #westminister #blackgirlmagic #health #wellness #blackgirlpower #life #community #help #support #london #morning #video #outreach #blooddrive #follow #like #unsicklemycells #breakthesilence #speakup #sicklekan

Yesterday was too good an opportunity not to talk about the importance of community outreach in regards to changing peoples perceptions in the community not just about giving blood but organ donation in general. .
Thanks to the fantastic team that attended parliament with me in the form of @iamchaneltaylor from @unsicklemycells and @amsie_rose from @sicklecellunite we are able to address a few issues which focussed on greater the support needed for community based organisations like ourselves and many more in delivering the message to the local, wider and greater community.
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Itโ€™s loud and clear we need more BAME donors from across the board and with your help we can get there.
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#sicklecell #stemcell #organdonation #bonemarrow #housesofparliment #westminster #mps #meeting #help #community #outreach #support #black #asian #health #wellness #life #family #love #discussion #video #london #progress #charity #blooddrive #breakthesilence #speakup #sicklekan

Itโ€™s always a pleasure to be invited to these parliament meetings. Whatโ€™s even more special is the fact that more and more grass roots organisations are giving them platform to speak about issues concerning our community. .
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The topic about BAME donors coming forward to be registered to give blood, organ donate, join the stem cell and bone marrow register is of mass importance.
Our matches can and will only go to helping those within our own communities and itโ€™s bout we did more to address the issue.
Lives, our lives can only be saved if we do more to help more people in need.
#sicklecell #sicklecellawareness #sicklecelldisease #parliament #westminster #mps #blooddonation #organdonation #stemcell #bonemarrow #bame #community #help #support #savelives #health #wellness #life #love #smile #meeting #outreach #nhs #london #positivevibes #family #breakthesilence #speakup #sicklekan

#sicklecell #parliament #BAME
When you are unapologetic about raising awareness not just about sickle cell but for organ donation and stem cell research then you will continue to bang down doors that to ensure your voices are heard.
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Today with fellow warriors @unsicklemycells @sicklecellunite and of course our brother offering us moral support @wantsscg and our disinter @scafuk2000 we were able not to only sit on a panel with influential MPโ€™s and various organisations but to also engage in important discussions around increasing the number of blood, organ, bone marrow and stem cell donors within our BAME community.
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It was a fantastic experience but the work continues and it can only be achieved with ourselves so letโ€™s be the change we need to help our community.
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#sicklecell #sicklecellawareness #bonemarrow #stemcell #organdonation #blooddonation #health #wellness #life #community #westminster #mps #housesofparliment #london #boardroom #progress #charity #help #support #positivevibes #love #breakthesilence #speakup #sicklekan

#science #chemistry #sicklecell.

Here comes some more science bit. ๐Ÿ˜…๐Ÿค“Ever wondered what the scientific explanation to what happens when a sickle cell crisis occurs ๐Ÿค”
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. ***Scientific Explanation***
In sickled red blood cells, mutated hemoglobin can Polymerise when deprived of oxygen, assembling themselves into long polymer fibres that push against the membranes of the cells, forcing them out of shape. The stiff, ill shaped cells then can become lodged in small capillaries throughout the body , leading to painful episodes known as sickle cell crisis.
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#sicklecellawareness #sicklecelldisease #sciencebit #scd #blood #cells #crisis #pain #facts #polymer #membrane #capillaries #redbloodcells #sicklecellanemia #education #afternoon #research #oxygen #interesting #health #wellness #life #breakthesilence #speakup #sicklekan

The constant battle with fatigue has been a life long one. The common misconception of being lazy from your peers because you tire easy over the simplest of tasks.
Trust we have all been there as sickle cell warriors. However remember the importance of rest and recovery. Over exertion is one of the main triggers of a sickle cell crisis. So if you need to take that extra rest take it, you deserve it warriors. โค๏ธ๐Ÿ‘Œ๐Ÿฟ
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#sicklecell #scd #sicklecellawareness #morning #facts #sicklecelldisease #awareness #warriors #rest #recovery #fatigue #blood #redbloodcells #tired #sleep #healing #health #wellness #life #slumber #stressrelief #shelflife #sciencebit #science #biology #sicklecellcrisis #humanbody #breakthesilence #speakup #sicklekan

The time is vastly Approaching and weโ€™d like to say appointment slots are open again. To make sure you get a slot register then DM us your Donor number and preferred time slots and weโ€™ll make sure you get booked in.

#sicklecell #sicklecellawareness #sicklecellmatters #heroes #superheros #lifesavers #giveblood #blooddonation #register #signup #dm #health #wellness #london #catford #life #event #community #blood #breakthesilence #speakup #sicklekan

Today I was part of the fantastic team at kings college hospitals sickle cell patient forum where we had specialist nurses, doctors, welfare and psychological advisors plus myself speaking to patients giving advice in all matters involving sickle cell disease. .
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I must say that it was an insightful experience and the passion the staff have at kings college hospital to improve all aspects of the patient care experience has been second to none. Very proud to witness and be apart of fantastic strides the hospital has made in improving the lives of those affected by sickle cell disease.
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#sicklecell #sicklecellawareness #scd #hospital #doctors #nurses #patients #healthcare #welfare #psychology #support #health #wellness #help #advice #community #london #progress #nhs #sicklecellmatters #warriors #proud #love #family #breakthesilence #speakup #sicklekan.

Throwback Thursday to the vibes of Arrested Development.๐Ÿ‘Œ๐Ÿฟ #tbt #throwback #backintheday #music #chilling #goodvibes #mood #happy #oldschool #arresteddevelopment

#blooddrive #nhs

The issue currently only 3% of BAME donors give blood. To break it down even further only 1% of the black community are registered to give blood. .

This is alarming as this means there are shortage of available blood donors with our blood subtypes available to treat rare conditions that are exclusive to our community such as sickle cell disease.
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A sickle cell disease patient for example may need a blood transfusion/blood exchange every 6 weeks so letโ€™s do better as your donation of blood could save up to 3 lives. .
Come join us in collaboration with @sicklecellunite @unsicklemycells @wantsscg @bigj_uk @scafuk2000 @melvninmvde @givebloodnhs @thewallofcomedy @wordonthecurb to donate blood mingle, catch some food or just be part of the overall experience by walking in to support on the day.
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There are also various other sessions available to donate blood at and you can by visiting www.blood.co.uk or by calling 0300 123 23 23
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#sicklecell #sicklecellawareness #sicklecelldisease #blooddonation #bloodexchange #transfusion #london #event #morning #goodcause #savelives #health #wellness #family #life #children #babies #adults #london #blood #community #help #food #entertainment #catford #breakthesilence #speakup #sicklekan

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