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julie_oregone julie_oregone

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Julie  💚🌎🇭🇷🇺🇸✌🏻❤️💁🏼‍♀️ Lyme Advocate. Iggy & muž lover. Proud Croatian. Fan of ozone. Meditation evangelist. Pro Oxford comma. Coffee. Portland, Oregone.

Working from home is so much more fun with my assistant.

Finding a Lyme doc that is so caring, intelligent, and invested in my wellness was a godsend. The added bonus is his IV nurse who is up for seeing weezer cover bands with me. If you know her, you love her. Nurse Megan is the best. #lymediseasesucks #lymedisease #lymediseaseawareness #spoonie #ivtherapy #nurse #llnd #lymeliterate

This is the hardest part about living far from my family: having to FaceTime with my niece Emma to see her. Emma has cerebral palsy and can’t fly. While sick with Lyme, I was only able to fly home once to see her. I miss her so much. We have such a strong connection. I spent every Wednesday with her in my senior year of college, just after she was born, learning to care for a special needs child. I learned to suction her trach, feed her via stomach tube, and sing and dance with her for a smile. It was a lot for our family to learn, but I think it prepared me for a level of empathy and compassion I’d later give myself while dealing with chronic Lyme. Any way, Emma rules. There’s no one I’d rather sing Baby Einstein songs with. #niece #cerebralpalsy #cerebralpalsyawareness #lymedisease #lymediseasesucks #lymedontkillmyvibe

Near infrared light (NIR) from @saunaspace. I don’t have the money or space for the full sauna yet so I opted for a individual panel to help with the various issues I still deal with. Red light and NIR are great for inflammation, boosting cellular regeneration and repair, cell detox, metabolic enhancement, etc etc. Add this to the list of ‘I’ll try anything to feel good.’ So far so good. #infraredsauna #sauna #pain #inflammation #lymediseasesucks #lymedisease #spoonie #chronicillness #redlight

Beautiful day for hiking with beautiful ladies. I’m so lucky to have a super supportive, fun, and loving group of friends. I’ve known these two for 24 and 22 years. That’s crazy! And it’s Rae bird’s bday. What an amazing day! First hike of the year, and I feel good. #pdx #portland #oregon #vitamind #lymedisease #lymediseasesucks #forestpark

Lyme tried to kill my vibe today. Couldn’t breathe well when I woke up. Then almost threw my back out (reaching for my Bluetooth speaker 🤦🏼‍♀️). But alas NO! I still hung out with friends and hiked on this beautiful day! #lymedontkillmyvibe #lymediseasesucks #lymedisease #spoonie

In my family, music reigns. My dad was a concert freak in his day (kinda still is). He was the house photographer for the Richfield coliseum (Clevelanders know) for a while. The first set of tees is part of his enormous collection of concert tees that he’s been giving me and my sibs. The later are part of my own collection. #proud

Happiest birthday to one of my oldest friends and arguably iggy’s favorite person. Love you KT!

Spent the last 10 days drying out in Southern California. I felt so good and as much as that absolutely rules, there’s nothing that makes me happier than the friends and family I’ve spent time with. I’m so lucky to be surrounded by some of the best folks I could ever imagine. Thank you all for the hugs and high fives and laughs and love. 😘😘😘 #lifeafterlyme #lymediseasesucks #joshuatree #sandiego #sunshine

Reunited with some of my favorite people for a few days of sunshine. Damn I’m gonna miss them and it ( ☀️ ). #mačka

It’s official, I feel amazing in the desert in winter. The difference I feel between rainy Portland and dry desert is staggering. I can’t believe how much better I feel here. Sunshine is good for this moldy, Lymie human. #desertdaze #lymedisease #mold #lymediseasesucks #spoonie #chronicillness #recovery #wellness #livinglife #joshuatree #highdesert

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