I've set my just giving page up - any donations are massively appreciated!
As many of you know Charlene and Lisa were both born with Cystic fibrosis (CF) and unfortunately it's not a condition that's easy to treat or manage (it's a life-limiting genetic condition affecting 10,000+ people in the UK, half of which will not live past 41). When they were born, Chris quit her job to become a full time carer. She's taken them to countless hospital appointments, scans and helped them with all their medication.
Sadly Charlene's condition deteriorated over the years and she passed away when she was only 19 meaning we lost a daughter, sister and dear friend too early in life. Lisa's now 35 and has just had two beautiful twins. She still has the condition but thanks to the trust, she is able to receive drugs that were specifically developed for her CF gene combination.
The @cftrustuk is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
On the 30th September, I along with Charlene's sister and parents will be taking part in Tough Mudder (a 12 mile obstacle course) to raise as much money as we can for the trust so they can continue to fund their research and support those affected by the condition (both the individual and families). Thank you.
#cysticfibrosis #cysticfibrosistrust #toughmudder2018 #justgiving #justgivingpage #donationsneeded #charityevent #raisingmoney