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edswellness edswellness

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EDS Wellness  501(c)(3) Nonprofit • Integrative healthcare • Resources 4 living well w/ Hypermobility/EDS/Related Conditions • Movement • Nutrition • Mindfulness

https://www.facebook.com/events/225622707977076/?ti=icl

Registration and login information is up for EDS Wellness’ webinar tonight at 8:30pm with Rachel of Emerging Lotus Coaching, LLC. Please see event page below.
Tonight’s webinar kicks off EDS Wellness’ 2018 video webinar series, ‘Integrative Strategies for Managing Hypermobility Disorders & Related Conditions, Restoring Function & Living Well.’ I’m hopeful that our newly reorganized site and e-learning platform will be finally launching with us by tonight as well.
Our video webinar series will be held using Zoom. All participants will have their videos turned off - but you can chat actively and engage in the interactive Q&A session after. If we are able to stream live via Facebook & YouTube as well, those viewing on either platform will only be able to watch and listen vs. participate or ask questions. You can leave comments or questions below the video feed and Rachel or I will answer them afterwards.
Please let us know if you have any questions and we look forward to “seeing” everyone tonight! ***Reminder - this broadcast and all webinars in our 2018 video webinar series will be held through Zoom. They will not be held on our classes/event updates FB group, live on our FB page (unless we opt to), or another platform. Please make sure to download the app or familiar yourself with the site. The link to register and login, including call in information from a phone or out of be country is listed on event page (https://www.facebook.com/events/225622707977076/?ti=icl - link in bio also).*** #Just5Minutes #EDSWellness #NonProfit #GiveBack #BeTheChange #lifecoach #EDSLifeHacks #EDSKids #Teens #Millennials #Gratitude #Stronger2Gether #InvisibleIllness #Persevere #LiveEDSStrong #LifeHacks #InvisibleStrength #Gratitude #LiveEveryDayBetter #ZebraStrong #Spoonie #ChronicPain #POTS #CFS #EhlersDanlos #mindfulness #CareerGoals #LifeGoals #ChronicLife #ChronicIllness

#Just5Minutes at @sculptstudio - pre-Christmas, 15-year wedding anniversary & New Year’s celebrations.
This year has felt like an incredibly long endurance marathon - one that has me still inching towards the finishing as we leap into 2018. So, I’m wearing my Super T's Mast Cell Foundation tank for strength, patience, reminders to breathe deeply (& often) and the ability to refocus after the break.
It’s important to share that there really aren’t enough words to express how deeply grateful I am for the support, encouragement and strength I’ve received this year from all those who have stood by me (ie. with @edswellness & all else) - in person and virtually. This year has left me at a loss for words. Humbling only begins to describe how I feel. I’ve been challenged to the core of by my being in ways that I never expected - or, at least in ways that I did not imagine after all that I’ve gone through and fought for over the last 5+ years.
While I do not know the path(s) that 2018 will lead me down, I do feel more than content with the work and projects I’ve had the pleasure to work on for the broader EDS & hypermobility Disorders community - several of which are nearing final final completion. Finally.
Most importantly, I would not have a prayer to continue the work I do, in any capacity, if not for my wonderful volunteers, EDS Wellness’ Board of Directors & members of our advisory boards, and all of the providers I’ve come to know and those I’ve been blessed to work closely with, including EDS Wellness’ & @wellapalooza’s conference speakers.
And I would not still be standing (or sitting in my car) typing this post, if I did not have the support of EDS Wellness’ nonprofit collaborative & corporate partners, our individual donors (who have given generously, even a few dollars if and when they could, because every little bit helps immensely), my friends and family, and most importantly, the EDS & broader hypermobility communities. (Edited to add: My volunteers belong in the “wound not still be standing” category also - like 150x over.) Thank you for staying by my side and for believing in & supporting EDS Wellness’ mission & vision. Bio has full post link.

‘Applying for Disability Benefits with Ehlers Danlos syndromes and Other Hypermobility Related Disorders’ - http://edswellness.org/blog/2017/12/09/applying-disability-benefits-ehlers-danlos-syndromes-hypermobility-related-disorders/ #EDSWellness #Just5Minutes #Wellapalooza2017 #Wellapalooza #IntegrativeMedicine #CranioSacralTherapy #ChronicPain #EDSStrong #Persevere #LiveEDSStrong #ZebraStrong #InvisibleStrength #hEDS #hypermobilityspectrumdisorders #LiveEveryDayBetter #MCAS #Dysautonomia #Stronger2Gether #Spoonie #Strength #MoveYourDNA #movenourishbelieve #CFS #EhlersDanlosSyndrome #Hypermobility #Allergies #ChronicIllness #InvisibleIllness

Reminder - our “Just 5 Minutes” Class is tomorrow, Wednesday, at 2:30pm EST. This virtual movement “class” is free. No charge. However, please remember that I cannot see you - you can only see me. These classes aren’t directives for everyone with hypermobility related disorders, such as a type of EDS or HSD, nor are they applicable and appropriate for everyone. They are solely to help provide a bit of motivation and some helpful tools for self-care and moving more and moving better on your own - wherever you are located. It’s always best and recommended to ask your doctor first before trying anything new or participating in an activity that you haven’t done before. When in doubt, just watch and listen. We literally focus on moving (or breathing) for “Just 5 Minutes.” Registering through the EDS Wellness website or the MINDBODY app lets me know who will be “on the other side.” This virtual class will be live and broadcasted in our EDS Wellness/Wellapalooza Events Facebook group. However, we will record, edit and upload the class afterwards.

One week class schedule registration link - http://edswellness.org/one-week-class-schedule/

If you would like to participate live and aren’t part of our events and updates groups, please join by going to - https://m.facebook.com/groups/1647248865580301 (link in bio also). #Just5Minutes #Wellapalooza #EDSWellness #IntegrativeMedicine #ChronicPain #EDSStrong #Persevere #LiveEDSStrong #ZebraStrong #InvisibleStrength #hEDS #hypermobilityspectrumdisorders #LiveEveryDayBetter #MCAS #Dysautonomia #Stronger2Gether #Spoonie #Strength #MoveYourDNA #movenourishbelieve #CFS #EhlersDanlosSyndrome #Hypermobility #Allergies #ChronicIllness #InvisibleIllness

RP @Wellapalooza - Dr. Lawrence Afrin's Presentation Slides 'Mast Cell Activation Disease: Current Concepts' Presentation Slides – Wellapalooza 2017, are posted publicly with permission. If referring to this presentation or using to source in information, please source correctly by providing the following link (in bio also) -http://www.wellapalooza.com/dr-lawrence-afrins-mast-cell-activation-disorder-presentation-slides-wellapalooza-2017/#Just5Minutes #Wellapalooza #EDSWellness #IntegrativeMedicine #ChronicPain #EDSStrong #Persevere #LiveEDSStrong #ZebraStrong #InvisibleStrength #hEDS #hypermobilityspectrumdisorders #LiveEveryDayBetter #MCAS #Dysautonomia #Stronger2Gether #Spoonie #Strength #MoveYourDNA #movenourishbelieve #CFS #EhlersDanlosSyndrome #Hypermobility #Allergies #ChronicIllness #InvisibleIllness

#GivingTuesday is today! And... There's Still Time to Submit Monetary or In-Kind Donations to EDS Wellness!
All Donations are 100% Tax-Deductible!
Donations Submitted Through Facebook's Donation Button or EDS Wellness' #GivingTuesday Facebook Campaign are matched because of an agreement with Facebook and the Bill & Melinda Gates Foundation!
Giving Tuesday is a big day for all nonprofits - especially ones that are new and are in desperate need of funding to keep going. [ 258 more words ]

http://edswellness.org/blog/2017/11/29/givingtuesday-theres-still-time-left-donations-eds-wellness-can-go-twice-far/ #Just5Minutes #Wellapalooza #EDSWellness #BeTheChange #LiveEDSStrong #EDSStrong #Persevere #InvisibleStrength #Namaste #Gratitude #LiveEveryDayBetter #CHES #HealthEducator #PublicHealth #IntegrativeHealth #ChronicPain #HealthCoach #Stronger2Gether #Spoonie #Hypermobility #EDSWarrior #MoveYourDNA #movenourishbelieve #Retreat #EhlersDanlosSyndrome #RYT200 #Nutrition

‘Giving GPs the Tools’ – Hypermobility Syndromes Association (@hmsacharity) New Awareness/Educational Campaign and EDS Wellness is Helping!’ Campaign begins November 30th, 2017! http://edswellness.org/blog/2017/11/21/giving-gps-tools-hypermobility-syndromes-association-hmsa-new-awareness-educational-campaign-eds-wellness-helping/ (link also in bio) Stronger2gether #BeTheChange #Collaboration #EDSWellness #HealthEducation #PublicHealth #MedEd #LiveEDSStrong #InvisibleStrength #EhlersDanlosSyndrome #hypermobility #EhlersDanlos #connectivetissue #Genetics #HSD #hEDS #SticklerSyndrome #osteogenesisimperfecta #loeysdietz #vEDS #Contortion #IntegrativeHealth #EDSAwareness

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