crookedguy crookedguy

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Nick Mahler  Viewing the world from a different angle. I have FOP, a rare disease. These are pictures of my journey through life.

http://www.crookedguy.com/

One of the best options I made sure to get from a list my good friend John Redding(RIP) gave me was the factory lighting system. My @permobil #F5 VS Corpus stander has a full #LED light package that includes the super bright headlights, front and rear orange turn indicators and work as hazards too, as well as rear mounted red lights. They all reflect so when they are off people can still see me in headlights. I turn my headlights on in very crowded places or the flashers because sometimes I'm invisible in my 600lb #wheelchair.

We got to see another @ifopa-er @thesarahsteele that while attending my little friend @erinmccloskey1969's #BirthdayParty in the family room in the @seattlechildrens ICU Floor.

We made it to the @canada #border now we wait to get in!

We stopped by @seattlechildrens to see my little friend Erin who is in a battle with #FOP. She had just gotten done meds so she briefly visited with us. We look forward to her #BirthdayParty on Tuesday!

Happy Easter Everyone!

Me hanging out after church Sunday at Axe Memorial United Methodist Church.

First time flying my new drone, hard to do with the Christmas decorations up, my wife would kill me if I broke something :-)

Colt Ford "Dirt Road Anthem" before it cut off

Colt Ford

Dirty Side

Colt Ford Stage at the Tulsa State Fair

Ready for a Colt Ford concert!

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