crohnsandcolitisuk crohnsandcolitisuk

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Crohn's & Colitis UK  Our charity is dedicated to improving the lives of everyone affected by Crohn’s Disease and Ulcerative Colitis.

Hi my names Lucy, I wanted to tell you about my mam. To me my mam is a legend, she's suffered with Crohn’s Colitis for 12 years, she never let it stop her from raising me and my sister the best she could. My mam is the strongest women I know, we see the pain and frustration she goes through every day, and it hurts so much to know there's nothing we can do fix it. We decided to do the WALK IT NEWCASTLE to prove how much we support her,I have raised over £140! Thank you Crohn’s and Colitis UK!

💜Lucy @lucy_martin16 Lucy’s Mum and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together💜

Hi, my name is Margarita but they call me Maggie. I have had Crohn’s Disease since 2002 and a colostomy since 2005. I am Chilean and I live at the end of the world but even here I met a man who loved me from the first day and with my colostomy, who helped me save my life. It was difficult for me to assume it at the beginning, today it is a little easier and when meeting this group, it has helped my self-esteem. Thanks to everyone who gives their testimony and thank you very much to my love ...

💜Maggie @maggieherane and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together💜

Hi my name is Sophie and I am 26 years old, I was diagnosed with Ulcerative Colitis in May 2017 after weeks of severe mouth ulcers and rushing to the bathroom up to 25 times a day.

The mouth ulcers then returned in March this year where I had between 2-10 at one given time causing me to not eat or speak due to the pain, this lead to me recently suffering a flare up and was rushed back to the hospital where i spent 16 days. A colonoscopy later and multiple x-rays and scans I was told I have acute severe Ulcerative Colitis. I am currently on a cocktail of medication that includes, mesalazine, steroids, azathiaprine and infliximab. •
The past seven weeks have been a shock but I have learned so much and I am extremely grateful for the kindness of people. My wonderful boyfriend along with family, friends and the NHS have kept me smiling and I am looking forward to regaining my strength and fighting this disease! One thing I know is I am not alone and everyone going through this invisible illness is a warrior!

Your illness does not define you.
Your strength & courage does 💕💪

💜Sophie @sophiehodgsonx and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together💜

Hello, my name name Is Lukas. I’m 19 years I’ll and I’ve had Crohn’s Disease for eight years. I have one operation behind me, but i always stay positive 😊 Sometimes it's hard to face people who make fun of you and your body, but you can handle it ... you just have to believe in yourself and be yourself.
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💜Lukas @lukas_dener and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together💜

"I was diagnosed with Crohn's Disease just after my 15th birthday, after ignoring the pain, hair loss, and severe weight loss I suffered. When the doctors told me the news, I felt as if my life had collapsed around me. .


Suddenly, I found myself being homeschooled because my attendance had dropped below 20% (I couldn't keep my symptoms under control during the train ride to school each day). I'd always wanted to study to become a travel journalist, but after the news it looked like I would no longer be able to do so. .

That was my attitude until my gastroenterologist was able to put me on medication that would control the symptoms (with a focus on the pain), and my friends and family worked as a support network to make me feel strong again. Slowly, I was able to re-claim my life. .

Learning to become more open about my disease made me feel on top of it, and I discovered that my diagnosis didn't have to take over my life if I didn't let it. Now, I've finished my first year of university with great grades, and am able to travel as much as I can afford. To the future I've always dreamed of - here I come." .


Amy and Crohn's & Colitis UK - fighting Inflammatory Bowel Disease together 💜

Hi, I’m Amber, I’m 22 years old. I was diagnosed with Crohn’s Disease five years ago after being rushed into hospital with suspicion of appendicitis, after being told there was a 1% chance this could be Crohn’s Disease I was rushed into surgery.

After surgery, it was a blur, honestly can’t really tell you what happened apart from hearing the words ‘Crohn’s Disease’. I was scared and honestly didn’t have a clue what it meant. I later found out that I was given a bowel resection, which involves removing the damaged portion of the intestine.

No one said Crohn’s would be easy and I would be lying if I said it was but one thing I have learnt is how amazing my body is considering what its had to deal with.

There is so much I’ve accomplished since being diagnosed, I graduated with a BA in dance at Sunderland University. Now I’m 16 weeks pregnant and expecting my first child! I just want to thank all my friends and family for everything you’ve done for me! Forever grateful! 😘

I’m still learning and still find myself on google now and then, but together we will fight and come out on top! 💕 •
💜Amber @littl3amb3r_ and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together💜

Hi I'm Cin-Duen. I was diagnosed with Crohn's in 2003. I’ve been on various medications;Modulen,Prednisone,Azathioprine, Infliximab, Humira to name a few. I had been on Infliximab for nearly eight years when I started falling ill again. It was no longer working for me so my consultant put me on Humira which didn't work. I broke down in front of my consultant and admitted it was time for surgery. I had my loop ileostomy in 2014. My friends and family were amazed at how quickly it made a difference. I was looking so much healthier.

In 2015 I married my best friend and in 2016 I was five months pregnant when I had to go into A&E with severe abdominal pain. My inflammatory markers were through the roof, it was another flare up. My consultant said most people's Crohn's usually get better when they are pregnant. I guess I was one of the unlucky few. It was the scariest time of my life. I worried about how each scan,each medication I was having would affect my baby. The doctors and nurses at RBH were amazingly reassuring and took great care of me. I was discharged after a month with a course of steriods and put on a Modulen only diet (which was extremely hard for a pregnant woman with cravings). I became much better and managed to enjoy the rest of my pregnancy. I had a healthy little boy via c-section and he is amazing.

I lost a lot of confidence because of this disease but I have really supportive family and friends who have helped me fight through this. I want fellow Crohnies to know you can find love. You can have a family. You can do anything you want with IBD & a stoma.

💪💜Cin-Duen and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together💜💪

“My name is Princess, I am 20 years old, and this is my Crohn’s story. .

I was diagnosed with Crohn’s disease when I was 15, and the last 5 years have honestly been the most eventful yet educating years of my life. I didn’t realise how strong my body actually was until I saw it cope with a four stone weight loss, chronic abdominal pains, severe sickness/diarrhoea and multiple hospital procedures. .

When I was diagnosed with Crohn’s I was terrified and guess what? I still am! But I can honestly say that with knowledge comes power and the more I learn the stronger I become. .

I am currently in a period of fairly good health but you never know what is around the corner. That is why I strive to make everyday count and to help spread the awareness of Crohn’s and Colitis as much as I can.
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Every day I learn more about my body and how to mentally deal with such a like changing illness. Not only that but I get to interact with such a wonderful community of IBD patience. Life without Crohn’s would probably be easier but I definitely wouldn’t be the strong young woman I am today.”
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Princess and Crohn’s & Colitis UK – fighting Inflammatory Bowel Disease together

“My name is Joe and I’ve had Crohn’s disease for 10 years now. .


After a good few years the effectiveness of the medications I was taking wore off, and my health deteriorated to the point of needing hospitalisation and surgery. .

My advice to anyone who is struggling or going through a similar experience is to educate yourself, never give up have a goal to work towards or something to look forward to and surround yourself with positive people. .

Happy 70th Birthday to the NHS without which I would not have had this life changing surgery. .

I’m now recovering six weeks after subtotal colectomy surgery.”
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Joe and Crohn’s & Colitis UK - Fighting inflammatory Bowel Disease together 💪🏻

“Hi, I’m Harriet. I’m 24 and have Ulcerative Colitis. I was diagnosed in 2016 and no medications worked, my quality of life was declining and I couldn’t carry on working my dream job as a nurse. .

In February 2018 I had my large bowel removed and my Stanley stoma (my ileostomy) formed. I’m now back at work, living my best life I can and enjoying being able to go out again, walk my beloved dog Ralph and generally have a better quality of life! .

My operation has literally saved my life, I am very open to talk to as many people as I can and raise as much awareness as possible. .

Everyone is slightly different, not every disability is visible, and that’s what makes each and everyone of us special 🙂”
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Harriet and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together 💜🐶

“My name is Fay and I am 30 years old. In March 2015, I started experiencing blood loss whilst going to the toilet. My energy levels quickly disintegrated and I was losing weight rapidly.
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I was diagnosed in late 2015 with Ulcerative Colitis, but in April 2016, due to a lack in understanding of the disease itself, I relapsed into quite an aggressive flare and ended up having a blood transfusion and a two week hospital stay. IV steroids, iron infusions and an array of other medication was my new routine.
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I was due to get married a year to the day I was admitted and panic and anxiety started to set in. I couldn’t imagine myself ever being well enough to walk down the aisle or start a family with all the health problems I was currently facing. All the plans we had for the near future seemed so distant and unrealistic.
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Fast forward two years and a much more knowledgable insight into my condition, I did get better (thank you Infliximab!) we did get married and we welcomed our first baby in February 2018.
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IBD will always be a big part of my life but I will never let it get in the way of me living it. 💜”
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Fay and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together 💜🤵👰👶

“My name is Summer and I’m 24, from Sheffield. I was diagnosed with Crohn’s almost 10 years ago at the age of 14. .

Since then I’ve had steroids, infliximab, methotrexate, and azathioprine, which all made me really poorly. I’ve had 4 lots of surgery to remove my rectum, colon, and around 4ft of small bowel, and I now how a permanent ileostomy which has given me my life back. .

I’ve been able to get back into education since my last surgery in 2015 and I’m starting university this September to study radiography which I’m so excited about! Kicking Crohn’s disease’s ass since day 1 💪🏼”
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Summer and Crohn’s & Colitis UK - fighting Inflammatory Bowel Disease together

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