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•Payton•  I'm fighting multiple chronic illnesses. I'm here to spread awareness and to share some of my chronic illness journey with y'all! Need to talk? DM me!

https://www.instagram.com/paytonburger/

My mom and I are headed to Arkansas, yet again, today-8th to see my metabolic neurologist and geneticist. I'm always a bit anxious for these trips, but each time I'm shown the love and grace of the Lord in more ones then one.
Unfortunately, my 2 favorite specialists are moving to Phoenix Arizona next month. We're not sure if we're going to be able to keep going to them or if we're going to have to find new specialists. Over the past 2 years, they have been the only doctors who have made my mom and I feel like we have a voice in this struggle and they have put so much effort into trying to get me fully diagnosed. Whatever the outcome of this trip is, we will continue to praise the Lord for HE IS GOOD!
(Psalm 136:1)

Prayers would be appreciated💛

Chronic illnesses(for the most part) are NOTHING like what they are on tv.
For example:
It's RARE to find doctors who listen!
It can take YEARS to get diagnosed!
You don't get a magical pill and all of a sudden you're as healthy as before!
You don't stay in the hospital and have doctors working with you 24/7 to get you diagnosed!
You don't just see one doctor and he/she knows everything that's wrong with you!
Not all illnesses are visible like they are on tv.
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Have you ever seen chronic illnesses being portrayed on tv in a way that is nothing like what they are in REAL LIFE?? Let me know👇🏽👇🏽👇🏽

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One of the most difficult things in a chronically ill persons life is the disappearance of people who said they'd always be there for you no matter what, but then just when you need them the most they aren't there for you at all. I know that a lot of you who battle chronic illnesses struggle with this. I definitely struggle with it, so I personally know the pain and frustration that it causes. I'm genuinely praying for all of you who are also battling this. It's something that you don't expect to have to battle, but as your chronic illness journey grows this struggle becomes more and more REAL.
My advice: Give it GOD. Cast all your anxiety on HIM because HE cares for you and no matter how tough life gets or how many struggles you face HE will be your strength. Don't give up, even if certain people have given up on you.

(Swipe) to read about my experience at the MAYO CLINIC. 🌸

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Today was rough.
I've had really bad pain in my neck and back a LOT more often lately and today it was really painful, I'm still exhausted from the Mayo(what's new😂), and recently I've had a really tough time coming to terms with missing out on all the stuff that everybody around me is going to or celebrating that I'm not able to be apart of and today it got the best of me... ugh 🌸🌸On a positive note:
I'm currently obsessed with watercoloring and it's given me a way to be creative/artistic without having to get out of bed. So that's exciting. If you've ever had fatigue then you know what I mean🙌🏽 🌸🌸I'm curious: What's a hobby that you love that also helps your chronic illnesses(or at least helps you cope with your illnesses)?? Let me know👇🏽👇🏽

Excuse me while I sleep(I wish) for the next few weeks✌🏽✌🏽 ___

UPDATE: I'm still completely exhausted from the trip to the Mayo. I'm pretty sure it'll take me a week or more to get back to my "normal"(🤢😭) self, but for now I'm focusing on getting lots of rest and drinking a ton of water.
___

I will be doing a post about my experience at the Mayo soon😊

I'm currently preparing for a long and very difficult few weeks. I will be heading to the Mayo Clinic in Minnesota later this week... "I'm dreading it" is an understatement. Despite being extremely anxious for all of the terrible tests and the extra pain and exhaustion(and lots more)... I am extremely thankful to be able to go to the Mayo and potentially get some answers. This trip will be painful and exhausting to say the least, but I am hopeful for answers and hopefully getting closer to a full diagnoses!
------------------------------------------ I just want to say thank you so much to everybody who has reached out to me with their thoughts and prayers and their advice for preparing for the Mayo! It's a blessing to have so many people that I've never met before reach out to me and lend a helping hand wether that be with prayer, advice, tips and tricks, chronic illness hacks, or just being vulnerable by sharing their chronic illness stories with me. Thank you so much! 😊💛 ------------------------------------------ I most likely will not be posting a lot while I'm gone but hopefully I'll have enough energy to at least post some insta stories, so keep an eye out for those and you can keep updated with my mayo trip through doing so. I will try my best to post updates! ------------------------------------------ If you have been to the Mayo Clinic please Comment or DM me any advice or tips you have for enduring a week or more of awful tests and lots more. I would really appreciate it!

Currently experiences the consequences of taking a bath. Simple tasks are getting more and more difficult to accomplish. 😭😭 BUT I'm thankful I had enough energy to get up in the first place!

(DISCLAIMER: This is in NO WAY putting down those of us who do have to use a wheelchair. It is a struggle that Is beyond difficult and I'm praying for all of you who have to experience that struggle daily💛) _____________________________________________

There's a stigma that comes with having a disability person parking placard. Unfortunately that stigma is that if you aren't in a wheelchair then you don't need one of these placards. However, that couldn't be further from the truth. When my specialists issued me a placard(BTW You have to have a doctor prescribe you a one to get one. Therefore, anybody that has a placard has a justified reason to use one.) my first couple thoughts were, "Thank you GOD, this is going to save lots of my energy"... and, "I'm going to get judged hardcore". I've seen countless videos and heard stories of people being bashed and harassed(thankfully this hasn't happened to me personally) for using these placards while looking "normal and healthy". Let me just say, "THANK YOU for trying to defend the disabled, BUT you just might be doing more harm then good by judging and putting people down who use these placards who seem "healthy and normal". Most, if not all, people with a disability placard would GLADLY give up their illness and placard for no illnesses and no placard! PLEASE Think twice the next time you glare or speak up against those "normal healthy" looking people who have and use these placards. This is SO important! ☀️Also, if you don't have a disability person parking placard DON'T PARK IN A HANDICAPPED PARKING SPOT. ☀️ ___________________________________________

Please feel free to share your (good or bad) stories(in the comments below) about your disability parking placard. This is something that needs more awareneess.

Thank you to @moore_787_kaylen for helping me with this post💛💛

•••

Let us know(in the comments below) your advice for those that are just starting their chronic illness journey!
_____________________________________________
My advice:

1️⃣: Everybody is going to have an opinion on what you have, how it happened, what can fix or heal it, what you're doing wrong, how you need to be fighting your illnesses... etc. I think it's wise to listen to people's opinions and I definitely encourage that, but you know the truth and all the "invisible" aspects to your illness and they don't. So don't be afraid to say, "thank you but no thank you"(a kind way to say thank you but you have no idea what you're talking about).__________

2️⃣: Its ok to say, "NO"... lots of people won't understand you cancelling plans all the time or constantly saying no bc you aren't able to do certain stuff. But You will start to realize that it's ok to say, "no". It'll be really difficult but you just have to keep reminding yourself that YOU AREN'T UNRELIABLE... YOUR HEALTH IS!
3️⃣: Chronic illnesses have a way of showing you who your true friends are and THAT'S OK! You will lose some friends but you have to remind yourself that they just weren't the right friends for you... because the people who truly care about you and love you will stick with you even when you have a chronic illness!
4️⃣: It's OK to not be OK! You will be discouraged and feel down a lot of times but that doesn't mean you're failing or letting your illness control you. You can't expect to be OK 100% of the time. You're doing the best you can and you're not a failure if you let your illness get the best of you sometimes.
5️⃣: Be honest and SPEAK UP. This is SO IMPORTANT. So many people are fighting these illnesses alone, but theirs no need to. If you don't have anybody in your personal life to talk to then reach out to somebody online who is going through similiar struggles or join a chronic illness Facebook group. You're never alone in your struggle!

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