chronically_fighting chronically_fighting

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🌼Camille Grégoire-Doré🌼  ✨Medical account✨Qc,🇨🇦 Pain demands to be felt❤💪 Tubie➰ ♿Gastroparesis, Ehlers Danlos, Fibromyalgia, POTS, scoliosis, intestinal dysmotility +more♿

http://www.tvanouvelles.ca/2017/03/26/a-18-ans-elle-souffre-de-la-maladie-des-contorsionnistes

Here's my new tube! ....it's super short 😬 the placement was very traumatic. It took an hour and 45 minutes. I asked for some sedation but I still can rember everything 😢 It was absolutely horrible! The placed it via fluoroscopy and the guy had a hard time passing the tube! It hurt so bad and I was gaging non stop... But 1h45????? This is ridiculous for a nj placement! Now my tube looks like that.. It is super short and I need advice's on how to tape it on my cheek... What some awesome vacations 😂
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#gastroparesis #feedingtube #njtube #nasejejunaltube #jejunum #formula #fluoroscopy #hospital #spoonie #sick #chronicillness #ehlersdanlossyndrome #eds

Enjoying the first day without a tube on my face in almost 6 months! 🎉 They are tying to figure out a way to place a new one today but they said that they don't place NJs often and they usually need to admit patient to place those kind of tubes. We'll see what happens!
#gastroparesis #hospital #feedingtube #NJtube #spoonie #vacations #er #emergencyroom

We finally ended up in the ER because my NJ clogged. I'm seriously impressed by the ER! In Quebec they pus you on a stretcher in a hallway and you wait for hours/days to see a doctor. I literally waited 15 minutes and I got my room and I saw the doctor!

We arrived at the hotel! The trip was long (7 hours) but I slept for 6 hours 😉 I hate car trips so much! My whole body hurts 😕 #EDSSucks We stopped at a picnic spot to eat our sandwiches and I didn't have my pole and my backpack so I hooked my pump and feeds on a branch 😂😂 #gastroparesis #feedingtube #njtube #tubieprobs #oldorchardbeach #cartrip #roadtrip #family #spoonie

Hey guys! Friday, i'll go on a trip to the US with my parents! We will go to Old Orchard beach and then to Boston! I have so much stuff to pack! It's my first trio with my feeding tube.. Finger crossed I don't forget anything important haha!
#Mira #servicedog #assistancedog #spoonie #ehlersdanlossyndrome #eds #wheelchair #gastroparesis #feedingtube #NJtube #puppy #cute #chiot #labernois #travel #usa #trip #oldorchardbeach #oldorchard #maine

Here's an example of one out of the many tasks my future service dog will learn to help me get my independence back 🐾🐶💕 If everything goes as planned, I'll take him home in about 1 1/2 or 2 years!
Anyway, for those of you who didn't know, I'll get my customised lightweight wheelchair pretty soon! I love good news 😉♿
#ServiceDog #Mira #workingdog #assistancedog #wheelchair #spoonie #ehlersdanlossyndrome #eds #gastroparesis #feedingtube #njtube

I just had an endoscopy to place a new tube. I'm not sure about it, but I think that it is a NJ! Gosh that wasn't nice to have 2 tubes down my throat at the same time 😬
#gastroparesis #tubefeeding #feedingtube #ehlersdanlossyndrome #hospital #endoscopy #gastroscopie #Gi

My GI just called and apparently I have refeeding syndrome! I have an emergency appointment tomorrow to discuss about a plan 😱 I seriously never heard of that syndrome so I dont know anything about it 😕 Does any of you ever got that? Please DM me if you know anything about that I'm so scared 😧
#refeedingsyndrome #feedingtube #tubefeeding #gastroparesis #ngtube #ehlersdanlossyndrome

Color me rad 2017! I'm paying for it tonight, but it was worth! @colormerad5k #colormerad #ehlersdanlossyndrome #gastroparesis #feedingtube

Currently at the ER because there's something wrong with my neck... 😧
#FuckEDS #ehlersdanlossyndrome #eds

Happy mother's day to the most loving and caring woman in the 🌎! Thank you for everything you've done for me during all of those years! Have a cup of wine and take a warm bath you well deserve it 😉❤ @juliedore37
#mother #mothersday #hospital #ngtube #feedingtube #tubefeeding #ehlersdanlos #gastroparesis #mom #mommy #mylove #myhero

Yesterday, i've ben diagnosed with hypoglycemia 💉 I now have to take my BG once a day before eating!
#hypoglycemia #bloodsugar #gastroparesisprobs #gastroparesis #feedingtube #tubefeeding #ngtube #ehlersdanlossyndrome

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