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chronically_fighting chronically_fighting

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๐ŸŒผCamille Grรฉgoire-Dorรฉ๐Ÿ”ด๐ŸŒผ  โœจMedical accountโœจQc,๐Ÿ‡จ๐Ÿ‡ฆ Pain demands to be feltโค๐Ÿ’ช Tubieโžฐ โ™ฟGastroparesis, Ehlers Danlos, Fibromyalgia, POTS, scoliosis, intestinal dysmotility +moreโ™ฟ

https://www.youtube.com/user/coolcamille13

Going to the dentist is awesome ๐Ÿ‘ #Not
Still waiting on my surgeon to call me back so I can get my surgery scheduled ๐Ÿ˜• Meanwhile I'm trying to progressively stop my Butrans and man! My pain is unbearable! Hopefully I can get my surgery soon, so I can get my opioids back ๐Ÿ˜… I feel like a junkie saying that ๐Ÿ˜‚๐Ÿ˜‚
#surgery #jtube #gjtube #gastroparesis #ehlersdanlos #pain #butrans #dentist

I had to get a new driving license because I lost my old one and they had to take a new pic.... With my NJ tube ๐Ÿ˜‚ It's gonna be so weird to show my license so i can go to bars when I'll have my GJ haha
#tubie #njtube #gjtube #jtube #gastroparesis #ehlersdanlos #eds #spoonie #quebec #extraterrestre #martian #weird

I GOT TATTOOED!!! ๐Ÿ’‰
I wanted that tattoo for a long time and I finally had the guts to do it! It says "The path to heaven runs through miles of clouded hell". It's some lyrics from the song It's Time by my favorite music group ever: @imaginedragons ๐Ÿ’• Those words means so much to me! Imagines dragons songs are the best medicine for my depression ๐ŸŽต I'm so excited to see them FRONT ROW the 26th of October!
#imaginedragons #itstime #tattoo #tattooedgirl #watercolor #watercolortattoo #spoonie #ehlersdanlos #eds #ChronicIllnesse #gastroparesis #feedingtube #njtube #jejunostomy #jtube #gjtube #surgerysoon #surgery #hospital

Hi guys! ๐Ÿ’• I'm so sorry for being inactive these past few days, i've had a crazy month! I had a ton of appointements with my GI and my surgeon to fix a date for my GJ tube surgery, i started nursing school again, i started blogging on YouTube (link in Bio) and I also had a car accident last Friday ๐Ÿ’ฅ๐Ÿš— I'm now back and I'll try to post more often I promise! ๐Ÿ˜Ž
I had an appointment at the rehab center to get a custom ultra lightweight custom wheelchair!! I need to choose between the Quickie Q7 next gen (first pic) and the Tilite Aero Z (second pic). Do you have any advice? I have no idea which one to choose! Let me know in the comments if you ever had one of these two! .
#wheelchair #quickieq7 #quickie #tiliteaeroz #tilitewheelchair #gastroparesis #feedingtube #surgery #gjtube #njtube #ehlersdanlos #spoonie #chronicillness

This is the reality about Gastroparesis. I rarely post or talk about my bad days, my struggles, or about how I hate this illness. Today, i will! August is #gastroparesisawareness month so let's talk about the real stuff! Since December 2016, I've had 8 NG tubes, I'll get my 5th NJ tomorrow, 1 piccline,5 endoscopy, 2 gastric emptying studies, 40+ nights spent at the hospital, too many cannulas and bloods to count and a GJ tube in a few weeks... These days, I hear a lot about people faking the have GP so they can get tubes, attention or whatever they want.. Guys GP is no fun at all.. It is painful and life threatening! Here are some pictures of the side people may not know about GP
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#gastroparesis #Gp #gpfighter #feedingtube #njtube #ngtube #jtube #gjtube #gtube #tpn #piccline #centralline #hospital #spoonie #sick #inpatient #tubefed #tubefeeding #ivpole #pump #emergencydepaetment #gastroenterology

Omg good news!!! My NJ tube came out yesterday and today i called my GI for a new tube placement. At first when I called they said my GI doc would call me as soon as possible. At 14:00 I was still waiting for his call so I called back the office. My doc finally called me back and said he would not place another tube because I need to eat orally, that the feeds are a bad thing for me, that I need to see a psychiatrist because the problem is not physical, it's mental bla bla bla... My parents got mad and took my the his hospital to talk to my doc face to face. We waited 3 hours for him to finally come and see us. We talked and argue with him for about an hour and guess what?! He said a J tube would be an option and that he wants to help me (we told him we want to make a complain about him). So! He placed a new NJ and he said to wait 2 weeks with the tube to see if it really helps my symptoms etc and if everything works well with the NJ, he will refer me to a surgeon to do the surgery!! I'm SO happy! I waited so long to get that!

Here's my new tube! ....it's super short ๐Ÿ˜ฌ the placement was very traumatic. It took an hour and 45 minutes. I asked for some sedation but I still can rember everything ๐Ÿ˜ข It was absolutely horrible! The placed it via fluoroscopy and the guy had a hard time passing the tube! It hurt so bad and I was gaging non stop... But 1h45????? This is ridiculous for a nj placement! Now my tube looks like that.. It is super short and I need advice's on how to tape it on my cheek... What some awesome vacations ๐Ÿ˜‚
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#gastroparesis #feedingtube #njtube #nasejejunaltube #jejunum #formula #fluoroscopy #hospital #spoonie #sick #chronicillness #ehlersdanlossyndrome #eds

Enjoying the first day without a tube on my face in almost 6 months! ๐ŸŽ‰ They are tying to figure out a way to place a new one today but they said that they don't place NJs often and they usually need to admit patient to place those kind of tubes. We'll see what happens!
#gastroparesis #hospital #feedingtube #NJtube #spoonie #vacations #er #emergencyroom

We finally ended up in the ER because my NJ clogged. I'm seriously impressed by the ER! In Quebec they pus you on a stretcher in a hallway and you wait for hours/days to see a doctor. I literally waited 15 minutes and I got my room and I saw the doctor!

We arrived at the hotel! The trip was long (7 hours) but I slept for 6 hours ๐Ÿ˜‰ I hate car trips so much! My whole body hurts ๐Ÿ˜• #EDSSucks We stopped at a picnic spot to eat our sandwiches and I didn't have my pole and my backpack so I hooked my pump and feeds on a branch ๐Ÿ˜‚๐Ÿ˜‚ #gastroparesis #feedingtube #njtube #tubieprobs #oldorchardbeach #cartrip #roadtrip #family #spoonie

Hey guys! Friday, i'll go on a trip to the US with my parents! We will go to Old Orchard beach and then to Boston! I have so much stuff to pack! It's my first trip with my feeding tube.. Finger crossed I don't forget anything important haha!
#Mira #servicedog #assistancedog #spoonie #ehlersdanlossyndrome #eds #wheelchair #gastroparesis #feedingtube #NJtube #puppy #cute #chiot #labernois #travel #usa #trip #oldorchardbeach #oldorchard #maine

Here's an example of one out of the many tasks my future service dog will learn to help me get my independence back ๐Ÿพ๐Ÿถ๐Ÿ’• If everything goes as planned, I'll take him home in about 1 1/2 or 2 years!
Anyway, for those of you who didn't know, I'll get my customised lightweight wheelchair pretty soon! I love good news ๐Ÿ˜‰โ™ฟ
#ServiceDog #Mira #workingdog #assistancedog #wheelchair #spoonie #ehlersdanlossyndrome #eds #gastroparesis #feedingtube #njtube

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