cherie.louise cherie.louise

485 posts   2,316 followers   755 followings

Cherie  Byron based Diversity activist

Happy sweet 16 to my sister Monny bon bon bon @_mbarry21_ πŸŽ‰πŸŽ‰πŸ˜˜ love you

Shh my son

πŸ’•πŸΈπŸΉπŸ₯‚πŸΎ

Not bad for your first headline @oneruel @chelseadonoghue_ @nateflagrant

Dippy πŸ’–

🌊🌊

Taranaki πŸŒΏπŸƒ

Today in #limblossawarenessmonth seemed appropriate to talk about phantom pain. The last two nights have been sleepless and what I would describe as torture. The twisted part about my phantom pain is how it's at its worst when I'm lying down aka trying to sleep.

The also say phantom pain is brought on by stress and lack of sleep - causing what feels like an endless cycle.

I can always feel my "other" foot. I can move my toes on the leg that doesn't exist. I can feel textures against it like my sheets or grass. My foot tickles when a dog licks me. But worst of all is the pain, these last two days have been the worst in about a year and I'm finally starting to feel it ease off.

Sometimes it's a shock-like feeling and sometimes more stabbing. This time the feeling was the tip of a knife being stabbed underneath my toes. I've tried countless treatments, medications and mind tricks over the past 20 years and am yet to find something that works for me.

My boyfriend found something today called Farabloc and I'll be ordering one of their blankets soon. I'll share if it works for me just in case there's anyone else out there looking too. I'm off to catch up on some rest, but that's my phantom pain experience. 😴

Island style holiday 30 mins from home 🌴🌊

Spending my birthday at my new favourite retreat with @simonkertonegoro. Food, swims and spa baths. Thank you everyone for the birthday love. 26 feels like it's gonna be a good year and I can't wait to be back in Melbourne surrounded by all my favourite people.

Being an amputee means I constantly have people staring at me or that I can't go out in public without someone asking me "what happened?" This post is a quick FYI on when I think it is or isn't appropriate to ask a disabled person "what happened?" (Note this is my personal account and others may have different feelings). Being out and trying to get on with my life, whether I'm doing groceries or at a bar with friends shouldn't include me recounting the most difficult, physically and emotionally exhausting time in my life. I'd equate it to walking up to a stranger and saying "Hey, tell me about the worst time of your life." Or "hey do you mind running through your medical history real quick." Keyword here is stranger. I like to be able to share things with friends and my friends should know what happened to me in the way that friendships begin and people get to know each other. What I don't like is a stranger feeling entitled to personal info just because my condition is visible.

I also think it's ok if it's in context. Such as a back and forward conversation about such conditions or if I bring it up first, which is an indication that I'm ok with sharing such details with that person.
In short, don't walk up to a person with a disability just to ask them to recount what happened to them in order to fill your curiosity. Who they are is more important than what happened to them.

#limblossawarenessmonth #disability

I go back and forward between not wanting to share anything about my life because I don't want strangers to feel entitled to it and then feeling oh wait I need to share stuff in order to raise awareness so that society can move forward with how they treat people like me.
A lot of people are touchy about using the word "disabled" as though calling yourself disabled means that you're incapable or unable to function as a human being.
I call myself disabled all the time because I don't see my missing leg as my disability. I see the fact that I'm living in a world that's made for people who aren't like me as my disability. It means that society doesn't enable me and has a long way to go before I will be treated as or seen as an equal.
Also when someone talks about their disability don't go saying shit like "what disability? You're just like everyone else." and completely undermine everything they have to deal with that you do not.
That's my thoughts on the D word. ✌🏻 #limblossawarenessmonth #disability #bodypositive

Most Popular Instagram Hashtags