bsuuuue bsuuuue

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barbara sue  While I breathe, I hope. πŸ’œ 27. Boston. ✌🏼

"Our hearts are broken but our voices will not be silenced." πŸ’•

#StageIVNeedsMore #MBCAware #MetsMonday #MooreFightMooreStrong

Forever the tall friend. So glad I got to meet these CF beauty queens today! πŸ‘‘πŸ’œπŸ’• #cysters #cytsicfibrosis #teambsuuuue #teamgoodvibes #GreatStrides #nashua #newhampshire #justbreathe

I am a fighter. πŸ’ͺπŸΌπŸƒπŸΌβ€β™€οΈ
I fight to breathe. I fight to find a cure. I fight for research. I fight to add more tomorrows to the lives of us with cystic fibrosis. We're almost there. A cure is so close! πŸ’œ I couldn't be more proud to be apart of this community. I wouldn't wish CF on my worst enemy but it's truly made me thankful for all that I have and all that I am.
#cysticfibrosis #teambsuuuue #curecf #justbreathe #greatstrides #nashua #bro #fighter #mfms #mbcaware #moorefightmoorestrong #support #vertex

Another day, another starbs. β˜•οΈπŸŒˆ

My heart is shattered thinking of your family and Matt. You were by far the most loved person I've ever met. Thank you for telling me to be brave and tell my story no matter how scary it was. Even from afar, you were such a positive influence in my life. The lightening in the sky is unreal tonight, and I'm not surprised one bit. #mfms #moorefightmoorestrong #mbcaware #fuckcancer

Forever my wish. 11:11 #curecf
Shout out to this girl for having the biggest heart in the world and supporting me every step of the way. πŸ’œ the world could use a few more people like you.
#cysticfibrosis #teambsuuuue

Where to even begin. Today was a whirlwind of emotion. I got to tour Vertex In Boston. I met the scientists that changed my life, the project managers behind this, the patient advocacy and engagement teams and so many more incredible people. People who were overly thankful and appreciative of me (and other CFers) for allowing them to do their jobs by participating in these studies... & that's something I just can't wrap my head around. I should be thanking them (which I did, probably 100 times) for all that they've done and continue to do day in and day out to improve the lives of those with CF.
When you walk into Vertex, there's this wall that says "All in for CF". That entire wall is covered in thousands of pictures of Vertex employees from all different departments with a sign that says why they are all in for CF. If that's not enough to make you cry, good luck getting past the scientists. These humans are so incredibly brilliant and so so passionate about all they do.
After touring this facility and speaking face to face with the scientists behind Vertex, there's no doubt in my mind that we're closer than ever to a finding a cure. They're spending hours on end to find a cure to this orphan disease that other companies said wasn't possible. They're putting their heart and soul into this and I'm living proof that we're on the right track.
To say that today was emotional is an understatement. But I held it together for the most part haha The question that gets me every time though is when people ask "how/when did you realize it was working" (😭) and I just instantly flash back to the day it all hit me. The morning I texted my research doc back home and said, "Something is different Dana, this is it." I'm constantly in awe of all the people I come across on this journey. Today was no different. My heart is full, my hopes are so high and I'm so grateful I was given the opportunity to participate in this life changing study.
Continued in the comments.. #cysticfibrosis #boston #teambsuuuue #raiseawareness #chronicillness #vertex #drugstudy #grateful #justbreathe

My rock. My best friend. My biggest fan. Thank you for always being there, on my best and especially on my worst days. I wouldn't be where I am today with out your love and support. You're appreciated more than you know, L-Rae. πŸ’œ I love you.xo

One of my favorite parts about the CF community is how passionate we all are about the bonds that we've made with each other and supporting one in other in the search for a cure. May might seem overwhelming in the social media world because of the amount of posts we do to raise funds and awareness but honestly, the amount of money donated by CFers in general is humbling. Wether it's to an event, a donation page or supporting each other by buying everyone's CF shirts. We're all in this together and not a day goes by that we aren't reminded of this.

This shirt- one of my favs- I knew of Erin, but didn't know her personally. But boy was/is this girl loved. πŸ’œ πŸ˜πŸ’œπŸ˜πŸ’œπŸ˜πŸ’œπŸ˜πŸ’œπŸ˜πŸ’œπŸ˜πŸ’œπŸ˜πŸ’œ "Do not be delicate. Be vast and brilliant."

seventeen five, same color t-shirt πŸƒ

Good morning, world. 🌻

Solid day off. Put in another 12,000 steps around the city. #wanderlust #teamiphone #boston #zakimbridge #cysticfibrosis #justbreathe

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