Where to even begin. Today was a whirlwind of emotion. I got to tour Vertex In Boston. I met the scientists that changed my life, the project managers behind this, the patient advocacy and engagement teams and so many more incredible people. People who were overly thankful and appreciative of me (and other CFers) for allowing them to do their jobs by participating in these studies... & that's something I just can't wrap my head around. I should be thanking them (which I did, probably 100 times) for all that they've done and continue to do day in and day out to improve the lives of those with CF.
When you walk into Vertex, there's this wall that says "All in for CF". That entire wall is covered in thousands of pictures of Vertex employees from all different departments with a sign that says why they are all in for CF. If that's not enough to make you cry, good luck getting past the scientists. These humans are so incredibly brilliant and so so passionate about all they do.
After touring this facility and speaking face to face with the scientists behind Vertex, there's no doubt in my mind that we're closer than ever to a finding a cure. They're spending hours on end to find a cure to this orphan disease that other companies said wasn't possible. They're putting their heart and soul into this and I'm living proof that we're on the right track.
To say that today was emotional is an understatement. But I held it together for the most part haha The question that gets me every time though is when people ask "how/when did you realize it was working" (😭) and I just instantly flash back to the day it all hit me. The morning I texted my research doc back home and said, "Something is different Dana, this is it." I'm constantly in awe of all the people I come across on this journey. Today was no different. My heart is full, my hopes are so high and I'm so grateful I was given the opportunity to participate in this life changing study.
Continued in the comments.. #cysticfibrosis #boston #teambsuuuue #raiseawareness #chronicillness #vertex #drugstudy #grateful #justbreathe