austincarlile austincarlile

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Austin Carlile 

This year's Marfan Annual Family Conference was a great success! Living with Marfan Syndrome has changed my life more than I ever could have imagined. I love being a part of a community of others than actually understand what it is like living daily with a chronic disease and overcoming constant chronic pain. Such a strong group of teens, young adults, parents, and even staff that all have become family to me over my years of working with the foundation. I found out I had Marfan when my mother suddenly passed from an aortic dissection when I was 17... she was only 38... Marfan Syndrome is a very rare and daunting genetic disorder that medical professionals have yet to find a cure for, but knowing there are others battling the same thing brings so much hope and inspiration. The Marfan community are some of the strongest people I know and with the biggest hearts (some literally.) It was a blessing to spend the weekend with our community and meeting new friends as well. Massive gratitude to @themarfanfoundation for allowing me to speak and participate alongside so many wonderful individuals. With a condition that makes you feel very much alone, it's hard to feel that way after leaving our annual conference and forming life long lasting relationships. Everyone has different struggles and battles in life, but those with Marfan Syndrome or related disorders deal with a different type of chronic pain, being lethargic, and a surplus of hip, rib, lung, heart, feet, spine, eye, head and leg issues day in and day out... Warriors. I'm thankful to be a part of such a caring, strong, and persevering community. Victory together. More info on our condition and how you can help us find a cure in the link in my bio: Marfan.org โค๐Ÿ‘Š๐Ÿผ๐Ÿ•Š

May 13th, 2005, I was 17 years old when I unexpectedly & suddenly lost my momma to an aneurysm in her heart due to her unknown & ongoing battle with Marfan Syndrome. After being diagnosed with the same rare chronic illness, I was just 21 years old when I wrote the song "Second & Sebring" (the street corner where we last lived) which was about her, how I hoped that "I would make her proud" & quickly became still one of Mice's most popular songs to date. (Fun fact: the studio demo version of the song was called "Austin Hates" before vocals were recorded because I didn't think the song was heavy enough ๐Ÿ˜‚) so I wrote it about something that meant a lot to me... She was my world & I was SO angry at God for taking her at the young age of just 38... But she was taken for a reason, that reason made the band what it was, affected the lives that it did with the song, and eventually made ME the man that I am today. ย At the hospital when they asked me to come look at the body, instead I ran outside, cursed God, and ran far far away from my faith in the Jesus she so vividly represented. Between the many albums sold, multiple magazine covers, various awards, and shows all over the world, I was constantly attempting to make her "smile when she looked down on me" by my accomplishments... I know that now she is MOST proud of me for returning to my walk with Christ after so many years of running from Him more than any of those other things... because there is NOTHING in this world more important... Just wanted to take this chance to say happy Mothers Day to all the single Mom's out there & all Mom's in general... Your job is the hardest in the world, you are irreplaceable. Let your light shine, because your children are watching. What you are teaching them now, and how you live/love will carry with them forever into adulthood. If you're reading this today, give your momma some love from me, mine left me with plenty to go around. Because she showed me to the love that I have found in JESUS CHRIST who has SO MUCH for each of us & that it is unfathomable just how much He REALLY does love us all as His own sons and daughters. God bless, don't take a single moment for granted โš˜

Speaking @alivefellowship this Wednesday night May 9th, in East LA! โœŠโœŠโœŠ (REALLY only going because we will have my favorite TACO TRUCK there! ๐Ÿ˜‚๐ŸŒฎ) Free event! Come as you are & hang with me before I fly back to Costa Rica! ๐Ÿ•Š

"You're looking for the old me?
Check the morgue." โœŠโœŠโœŠ "Since you have heard about Jesus and have learned the truth that comes from him, throw off your old sinful nature and your former way of life, which is corrupted by lust and deception.
Instead, let the Spirit renew your thoughts and attitudes. Put on your new nature, created to be like Godโ€”truly righteous and holy, living in a way that expresses to God your gratitude for your salvation." -Ephesians 4:21-24 ๐Ÿ•Š๐Ÿ•Š๐Ÿ•Š

Blessed. All smiles meeting with everyone on our last evening here in Jerusalem tonight! ๐Ÿ•ŠโœŠ

Been such a blessing being a tourist here in the Holy Land. Walking where Yeshua (Jesus) walked, and seeing what He saw. Visiting the many places where He taught & performed miracles has been refreshing my spirit daily ๐Ÿ•ŠโœŠ Photo by: @imagesbyperry

(Swipe) Jerusalem, TONIGHT! Tuesday May 1st @ 7:30pm the Dan Jerusalem Hotel has provided us with a conference room for me to share my story & for us to meet/greet/take photos/etc! FREE EVENT, come hangout & bring your friends Hopefully @sonnywhosoever will show up too! ๐Ÿ•Š

Address:
Dan Jerusalem Hotel
Lehi St 32, Jerusalem

https://goo.gl/maps/dNjPEGAQfQx

geeking out ๐Ÿซ

Would be lying if I didn't admit that these 5 photos were the best part of my day! ๐Ÿ‡ฎ๐Ÿ‡ฑ

Last minute meet & greet hangs here in Tiberias Israel, at the sea of Galilee! Was wonderful meeting & talking with all of you for a few hours! Especially in a place where so much of the gospel was written & Jesus' missions / teachings / miracles took place... ๐Ÿ•Š

JERUSALEM!!! We will be doing something similar in a few days, can't wait to see you all! (Details on that soon!) ๐Ÿ‡ฎ๐Ÿ‡ฑ Photo by my dad @imagesbyperry ๐Ÿ“ธ

Israel! Friday night, April 27th 7:00pm!

Join us at our hotel in Tiberias as @sonnywhosoever & myself take over a conference room, meet up with all of you, & share our stories together! Come hangout! FREE event ALL AGES, address:
Gai Beach Hotel- ืžืœื•ืŸ ื—ื•ืฃ ื’ื™ื
Eliezer Kaplan Blv, Tverya, 141020ย ๐Ÿ•Š๐Ÿ‡ฎ๐Ÿ‡ฑ

Happy birthday my brother xx @machinegunkelly xx

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