austincarlile austincarlile

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Austin Carlile 

When my vocal students ask me why we spend so much time on breathing exercises& techniques ๐Ÿ‘Š๐Ÿผ

Thank you @kwve radio @ryanries @thewhosoevers & @subaru_usa for having me on 107.9 last night! For those of you that didnโ€™t tune in, you can watch & listen at www.ryan-ries.com or click the LINK IN MY BIO! (Gets good at 32 minutes in) Usually Ryan interviews people or asks variety of questions, the first half of the show was like this... The whole second half of it I went on a bit of a rant. I spoke on the recent suicides & overdoses in the worldโ€ฆ celebrities, influencers, & the rising number of people in general that we don't even hear about. It has become such a pressing issue for me, because it is so real. The number of deaths are rising, but the answers & ways to overcome these addictions, demons, & depressive or suicidal thoughts are NOT. Condolences can be a beautiful thing, but a simple suicide hotline post, or a โ€œkeep going, it gets betterโ€ will NO LONGER SUFFICE! When the number of people taking their own lives or overdosing keeps rising, we as a populace MUST be able to see that the answers to happiness the world offers are not enough! "If you just reach this amount of fame, if you just get this much money, if you just get this many followers, if you just find the right man or woman, if you just obtain this or that, your life will fall into place & you will be happy!" This is FALSE, THIS IS A LIE! And it is a lie that people (especially todays youth) hear daily everywhere, from social media, TV, commercials, music, influencers, artists, etc. If some of these celebrities or influencers that have plenty of money, plenty of opportunities, plenty of fame, access to plenty of drugs, access to the best clothes or best technology, access to special treatment or the ability to have any man or woman they desireโ€ฆ If these are the people we are seeing so often taking their lives or overdosing because of addiction or depression, canโ€™t we see that happiness is in fact, NOT obtained by reaching any of these goals or achievements that the world has to offer?! You must. And it has been pressing on my heart to share...ย Please watch, youtube link is in my bio..... "ENOUGH IS ENOUGH" ๐Ÿ•Š

"Don't turn your back on me, I won't be ignored." @chesterbe @linkinpark

Day eight update: down to only two IV's in my arms! (have had over 30 "pokes" this week alone haha) Because of my extensive medical experiences over my life my veins are extremely hard to find, get blood, or even keep a line in, because they rupture so easily or just won't take a poke at all. My most crucial areas for contrast lines, IV's, or even the dreaded blood draws every 4 hours, are all hardened with scar tissue. Many times I have to resort to lines in my feet or neck or ultrasound. Add a connective tissue disorder like Marfans Syndrome to the mix? Nightmare. Always my joke with nurses "let's see if you can get an IV to stay in under 8 sticks"... If you frequent hospitals or have multiple treatments monthly you understand... As of yesterday the pouches of fluid in my forehead, eyebrows, sides of head, and skull have been completely drained and removed! Very excited about that, but unfortunately even with all the swelling gone the pressure & pain in skull and spine remains the same. I still have another day of intrevenuous antibiotic treatment, and two more days of similar steroid treatments as well. Will know next steps when those are completed. My specialists also put me on a medication a few days ago that slows the production of whatever enzymes that creates cerebrospinal fluid production in my body, which has proven beneficial to not only the swelling in skull but the pain as well. Tomorrow I will start back with more testing and begin to remove other variables and possibilities of what could be the root of the problem, leak, draining, etc.
For many that battle with chronic illness this is just another walk in the park, another hill to climb. It is frustrating at times but I am at peace. Words cannot express, you will never truly understand how much it means to me that all of you have stood by my side even when these same health issues took me from Mice. This small bout came out of nowhere and I will leave it behind just as quickly. God has been working immensely in my life and I have been working on new things that I've poured my entire heart into and cannot wait to share them with you. One step at a time. Grateful. ๐Ÿ‘Š๐Ÿผ๐Ÿ•Š

Cerebrospinal fluid (CSF) leak (have had multiple of them in the past) collecting in my head this time around. Pouches of the fluid are accumulating between my skull & skin leading to swelling in different areas each day. Discover, drain, patch, assessment, repeat. Where, what, why? Infection of said spinal fluid? Intro: intravenous wide spectrum antibiotics administered daily. Observe. More blood cultures, observe. Currently on day five of this, two hospitals, MRI's, CT scans, X-rays, EKG's, ultra sounds, blood work, etc. I'm at Stanford University Hospital with my specialists once again for further observation & testing. Was just here Friday for sleep/pain study but had to return when another hospital team couldn't help my unique case/situation. Another step. Another hurdle Marfan Syndrome throws in my way. Another day I get to kick it in the face & remind it that it doesn't own me, nor can it keep me down for good ๐Ÿ•Š๐Ÿ‘Š๐Ÿผ

This year's Marfan Annual Family Conference was a great success! Living with Marfan Syndrome has changed my life more than I ever could have imagined. I love being a part of a community of others than actually understand what it is like living daily with a chronic disease and overcoming constant chronic pain. Such a strong group of teens, young adults, parents, and even staff that all have become family to me over my years of working with the foundation. I found out I had Marfan when my mother suddenly passed from an aortic dissection when I was 17... she was only 38... Marfan Syndrome is a very rare and daunting genetic disorder that medical professionals have yet to find a cure for, but knowing there are others battling the same thing brings so much hope and inspiration. The Marfan community are some of the strongest people I know and with the biggest hearts (some literally.) It was a blessing to spend the weekend with our community and meeting new friends as well. Massive gratitude to @themarfanfoundation for allowing me to speak and participate alongside so many wonderful individuals. With a condition that makes you feel very much alone, it's hard to feel that way after leaving our annual conference and forming life long lasting relationships. Everyone has different struggles and battles in life, but those with Marfan Syndrome or related disorders deal with a different type of chronic pain, being lethargic, and a surplus of hip, rib, lung, heart, feet, spine, eye, head and leg issues day in and day out... Warriors. I'm thankful to be a part of such a caring, strong, and persevering community. Victory together. More info on our condition and how you can help us find a cure in the link in my bio: Marfan.org โค๐Ÿ‘Š๐Ÿผ๐Ÿ•Š

Busy. Different rehearsals six days a week for all my music students since I've back from Israel... Our recital is June 1st!
Happy. Short hair cut & clean shave for first time in ages, the doughnuts are back at my favorite bakery, and the awesome gift of an X-Men tee shirt ๐Ÿ˜‚
Sharing the gift of teaching, learning, understanding & practicing MUSIC with youth here in Costa Rica really makes me smile... Thats all this post was for. Joy is a good thing, smiling is too... I'm allowed a selfie every couple months or so right?
What makes YOU smile? Genuinely. Pursue that. Pursue that continuously ๐Ÿ•Š #NoMakeUp #NoFilter #CouldGoForAnotherChocolateIcingDoughnut ๐Ÿฉ

May 13th, 2005, I was 17 years old when I unexpectedly & suddenly lost my momma to an aneurysm in her heart due to her unknown & ongoing battle with Marfan Syndrome. After being diagnosed with the same rare chronic illness, I was just 21 years old when I wrote the song "Second & Sebring" (the street corner where we last lived) which was about her, how I hoped that "I would make her proud" & quickly became still one of Mice's most popular songs to date. (Fun fact: the studio demo version of the song was called "Austin Hates" before vocals were recorded because I didn't think the song was heavy enough ๐Ÿ˜‚) so I wrote it about something that meant a lot to me... She was my world & I was SO angry at God for taking her at the young age of just 38... But she was taken for a reason, that reason made the band what it was, affected the lives that it did with the song, and eventually made ME the man that I am today. ย At the hospital when they asked me to come look at the body, instead I ran outside, cursed God, and ran far far away from my faith in the Jesus she so vividly represented. Between the many albums sold, multiple magazine covers, various awards, and shows all over the world, I was constantly attempting to make her "smile when she looked down on me" by my accomplishments... I know that now she is MOST proud of me for returning to my walk with Christ after so many years of running from Him more than any of those other things... because there is NOTHING in this world more important... Just wanted to take this chance to say happy Mothers Day to all the single Mom's out there & all Mom's in general... Your job is the hardest in the world, you are irreplaceable. Let your light shine, because your children are watching. What you are teaching them now, and how you live/love will carry with them forever into adulthood. If you're reading this today, give your momma some love from me, mine left me with plenty to go around. Because she showed me to the love that I have found in JESUS CHRIST who has SO MUCH for each of us & that it is unfathomable just how much He REALLY does love us all as His own sons and daughters. God bless, don't take a single moment for granted โš˜

Blessed. All smiles meeting with everyone on our last evening here in Jerusalem tonight! ๐Ÿ•ŠโœŠ

Been such a blessing being a tourist here in the Holy Land. Walking where Yeshua (Jesus) walked, and seeing what He saw. Visiting the many places where He taught & performed miracles has been refreshing my spirit daily ๐Ÿ•ŠโœŠ Photo by: @imagesbyperry

geeking out ๐Ÿซ

Would be lying if I didn't admit that these 5 photos were the best part of my day! ๐Ÿ‡ฎ๐Ÿ‡ฑ

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