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alirae29 alirae29

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Ali Chandra  Walking the road of heterotaxy and complex CHD; these days it's mostly in the forest. Updates on our journey are on Facebook at Hope for Ethan. 💙

http://bit.ly/2zSuQEs

We got to visit the Husband of Joy at work today; I'd be willing to bet this whiteboard isn't getting cleaned any time soon.
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#zoes_bouffant #zoequotes

"The winter has its own kind of beauty," she told me, settling down on a log to shoot the icy forest (for a few minutes until her hands got too cold). I foresee many photography hikes in our future once the weather warms up a bit again. (There's a great photo of her brother over on her account.)
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#ethans_heart #hikeitbaby #hikeitbaby30 #optoutside #candidchildhood #childhoodunplugged #cameramama #momtogs #clickinmoms #runwildmychild #wildandfreechildren #wildandbravelittles #zoequotes

The photo he's holding hangs on my fridge, a constant reminder of how far we've come, and as we creep towards the one year mark since my boy was given this marvelous chance at a life with a four-chambered heart, I thought it might be time for a before and after.
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Pink looks good on him.
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#ethans_heart #heterotaxy #CHDawareness #biventricularrepair #feelthefeelings #candidchildhood #pixel_kids #WHPmystyle #cc_favdetails

Not one to make the same mistake twice, I brought the suits to pickup today, much to the delight of my children who immediately headed straight for the biggest puddle ever and got right to work.
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#ethans_heart #zoes_bouffant #zoeandboo #oakiwear

I don't have the heart to tell him those are herbivores.
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#ethans_heart #candidchildhood #childhoodunplugged #pixel_kids #cameramama #momtogs #clickinmoms

This moment brought to you by: "shoulda brought the @oakiwear suit to pick up big sister from school."
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#ethans_heart

I know this won't mean anything to the vast majority of you, but I'm watching the @mercyships Thursday night global community gathering along with people from the ISC in Texas and in national offices around the world and over on the ship in West Africa, and it just feels like coming home, right here in my own living room. I love technology, even if it is making me sob far too hard to even try singing right now. #missingmercyships

Going through photos from earlier, and this one of Ethan and his buddy Wes on what is, I think, a toddler treadmill, is making me laugh so hard for some reason. And also I want one of these in my basement because it would be amazing to be able to just send the children down to run/roll.
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#ethans_heart #oakiwear #hikeitbaby #optoutside #candidchildhood #childhoodunplugged

My little boy is suddenly all in on big, bold body movements (see previous video of him wanting to somersault everywhere) so a low wall and a little snow drift made the perfect combination at a @hikeitbaby meetup this morning. He played hard for almost three hours, and I feel happier than I have in weeks thanks to all the sunshine and fresh air.
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If you've been thinking about checking out your local HIB branch but you're nervous about hardcore trail hikes, keep an eye out for 'park and play' hikes; they're just play dates at the park, except when HIB people are involved you might find yourself encouraging a little more adventure and, in our case, hot chocolate.
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#ethans_heart #hikeitbaby #optputside #oakiwear #raiseawildchild #wildandbravelittles #candidchildhood #childhoodunplugged #letthembelittle #riskyplay

Finally warm enough to walk to school (and do a little mountaineering on the way) without Ethan coughing up a lung!
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#ethans_heart #zoes_bouffant #zoeandboo

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